• Frustrated about missed infusions.

    Asked by SueRae1 on Thursday, January 3, 2013

    Frustrated about missed infusions.

    Just need a little TLC. I've had two infusions since Early/mid Nove. I missed the one the day before Thanksgiving due to sever anemia, and received a blood transfusion instead. Received treatment the following week.

    Skipped the next two weeks because of a very very bad case of bronchitis, which had me on two courses of antibiotics.

    Finally got an infusion the Thursday before xmas. My Platelets were 25 last week so the treatment was canceled, They were up to 59 today, but my treatment was called off.

    I am getting so frustrated. I missed 3 treatments between the August and Nov due to low white blood counts (nuporgen seems to have taken care of that) and one borderline platelet count - before the first infusion of a cycle.

    Thanks for letting me rant.

    11 Answers from the Community

    11 answers
    • GregP_WN's Avatar

      Thats why we are here Sue, to listen and rant with you. I know its frustrating. I had to stop a couple of times along the way during my chemo treatments. What was supposed to take only 6 months wound up being almost a year. But, I guess they have to stop when the treatments are starting to kill more than the cancer.

      You will get to ring your bell before you know it. Hang in there!

      almost 4 years ago
    • Harry's Avatar

      I know, I just hate it when it happens. I want to get on with it. Beat this thing. But, I suppose we have to deal with it. I wish everyone was better at communicating when a delay is likely.

      almost 4 years ago
    • leepenn's Avatar

      OH MY GOSH - I hear you. Out of my sixteen (12 taxol with carboplatin every fourth and daily experimental drug followed by 4 AC), I had three delays. Two were due to the infection fighters and one was due to low platelets. It was soooo frustrating. Without those delays, I would have been finished with chemo before spring classes started up again. Instead, I had my last (and roughest) infusion during the second week of classes! Blergh! Teaching while feeling the way I did after that last cycle was tough tough tough.... But, here I am. I made it.

      The bottom line is that you DON'T want chemo if your body is not strong enough for it. They want your platelets at or above 75, I believe... And if your infection fighters go too low... well, that can spell a huge disaster!

      BUT - it's already so hard, isn't it? We lose so much control over our lives - even the most insignificant daily tasks can become an ordeal... The simple act of planning ahead for work or family is completely wrecked!

      But, we make it. We complain and rant and XXX and moan... But, we make it.

      I'm so sorry for your delays!

      almost 4 years ago
    • IKickedIt's Avatar

      I hated it, too. It was like chemo was my lifeline, I was addicted to it - I had to get it! My oncologist was wonderful, however. He told me that he didn't care how long it took me to get to the finish line, as long as I got there. He told me that several times, the first few were when my numbers were down. He explained over and over again that my body had to be strong enough to handle the treatments. Then, his words had different meaning when I wanted to quit - I had enough, I was physically and emotionally worn down. He told me, fine, I think we need to take a couple of weeks off, but you have to get to the finish line. My numbers were fine, but he was looking after my emotional well-being. Sure enough, a week later, I bounced back and begged him to let me begin again!

      So, you will get there! Hang in there.

      almost 4 years ago
    • gwendolyn's Avatar

      Sounds really frustrating. Chemo seems to go on forever when it's on schedule, never mind with repeated delays. Do whatever you can to get enough rest and eat healthy, but it's not as if your blood counts are in your control. Rant away anytime. We can take it.

      almost 4 years ago
    • packerbacker's Avatar

      I missed several chemo treatments due to either low platelets, white cell count, or anemia. It is very frustrating. But, they are looking out for us. Like Greg said, they have to stop the treatments when the chemo starts to kill more than the cancer. If I had gotten the treatments, I probably would have ended up in the hospital due to the low counts! It is for our safety that they hold the treatments. Maybe they need to adjust the doses of your meds. Share your concerns with your doc, they can explain why it's safer to hold treatments. I wish you luck with the rest of your treatments.

      almost 4 years ago
    • karen1956's Avatar


      almost 4 years ago
    • polgara's Avatar

      It is the worse feeling when your onc says he's giving you a week off. I just wanted to scream I want this done and over with. But I have learned that you cant rush these thibgs. I too have had upper resp. that I needed antobiotic for and it is still hanging on. Hang in there we all feel your frustration. Hugs to you.

      almost 4 years ago
    • nobrand's Avatar

      Whatever kind of cytopenia could be had, showed up every time I was scheduled to have more chemo. I've had a lot of push backs, and at first they scared me.. but after a while they just became par for the course. Obviously, my body needs a little more time than the original plan indicated.

      It's a quasi-secret that I enjoy these delayed infusions and hope for them by now. Even though I have adopted this chemo pirate style...I can still understand the frustration from the delays.. rant away SueRae

      almost 4 years ago
    • carolchristao's Avatar

      @SueRae1 you can count on us whenever you need. I understand your frustration. But as other friends have stated before, the infusions are to treat you, so if it's needed to miss some more days or weeks, what is important to keep in mind is that is for your good.

      almost 4 years ago
    • Loafer's Avatar

      Sue - Feel free to rant away - get it off your chest - you are entitled to given your delays! You have been here for all of us and that's what this family is all about. Caring, sharing, and supporting each other. Hang in there and hugs to you!

      almost 4 years ago

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