• Fun stuff and Xeloda hand/foot tips

    Asked by CMilkovich on Wednesday, September 26, 2012

    Fun stuff and Xeloda hand/foot tips

    Ok, I got asked the prognosis question again the other evening. I choose not to address this. I answered that I just live every day to the fullest. My recent CA 27-29 scan showed a decrease of 50 pts. I am at 238 so I know this treatment (Faslodex, Taxol, and Xeloda) is working and hopefully we have the right one. Tell me about fun, happy stuff you are are doing. We fish, Western PA and Ohio. Check us out on facebook. I still work full time and choose to love every day. Xeloda tips are highly appreciated. Currently trying aloe and "anykind" cream. Benedryl helping a little, doc decreasing it by one next round. God bless us all with a world full of promise and love.

    4 Answers from the Community

    4 answers
    • teddyfuzz's Avatar

      My least favorite thing that people say is "you're so brave". Why, because I rescued that child from a burning building? Saved a kitten stranded up in a tree? Ohhhhh, you mean because I got cancer and now have to go to a bunch of doctors appointments. Yeah, sure...that makes me brave. The only thing that keeps me from punching them in the face is knowing that they are just trying to be kind. Every day is a gift and it sounds like you are living life the way it was meant to be lived! I love the profile pic - enjoy your fishing! oh, and lots of hugs to you!!

      about 4 years ago
    • BuckeyeShelby's Avatar

      I was a sarcastic (expletive deleted) prior to diagnosis. I work on being just the same now. I'm holding onto my sense of humor. I've always said that I'm comic relief. I made it through 2 surgeries (1 where they found the cancer and the other to get rid of it) doing my darndest to make the nurses & patient techs laugh. I've only been back to work a few days, and very few people so far know what's going on. Since I'm starting chemo tomorrow and the hair will soon start falling, I've been letting the word start leaking, but even those who have heard seem so surprised that I'm still my usual silly self. I guess we all just gotta stay true to ourselves and however we have fun. I hope treatment goes well for you.

      about 4 years ago
    • Carol-Charlie's Avatar

      Hi... "Milky"...(Sorry, my name is Carol, and I didn't want to call you Mrs. Milkovich, too long and impersonal) (my last name is much longer though) ANYWAY.... What to tell them ............ Iwas diagnosed with Stage IV Ovarian Cancer... Right after surgery, groggy from the anesthetic, I asked my oncologist how long I had, as he'd told me that He'd removed a 39 lb tumor, plus everything that had metastized to my intestine and eureatha.. His answer was six month.... That was in February of 2006. Prior to starting chemo... PET CT Scan showed... HE'D REMOVED ALL MY CANCER. We went through with every bit of chemo he had suggested prior to the PET results(almost two years) to be sure we had killed every one little tiny cell that may have slipped off and run off to grow elsewhere. I'm still here and I'm still cancer free... I'd answer "I have a friend (my Tom and do love to fish, up here in MN...and I was born and raised in Bay Village Ohio)... anyway... tell them you have a friend who was told she had late stage Ovarian Cancer and given six months... Tell them that I'm still fishing (we love Walleye and Northerns) and when we're lucky a Muskie will fight like crazy... jumping and.... ) Sorry I got carried away. Tell them you like me are doing what the doctor tells you, loving every day and looking forward with greast anticipation to the rest of your life... Only God knows the number of our days.... is another great reply if they are so thick headed as to persist... (((Hugs))) dear... I have a 48 year old son in Illinois. I put my hand in God's when diagnosed... I asked him to lead me to where he wanted me to be... I'm still following his lead. God Bless You!

      about 4 years ago
    • Richardc's Avatar

      My surgeon wouldn't give me a prognosis. I only completed 75% of radiation and chemo before the wheels fell off. I had the doctor in charge of rehab issue his prognosis - patient is terminal and will never return to work. Three months later, I returned to work. That was 3 1/2 years ago. We found it better to focus on the positives and the things we can do, rather than the what if's or negatives. I did find a "new normal" in my life. The fun things my wife and I used to enjoy together and have discovered we can still do are go golfing, we usually walk 9 holes 2 rounds on the weekends.
      Yes, we made a list and since my treatments have visited Ireland and Alaska. We try to savor every moment and focus on the future. Just one day at a time. If anything, we have adopted the them of celebrate hope.

      In response to Teddyfuzz, - I was not the brave one. It was my wife and caregiver who had to endure far more than I did.

      I don't tell people what my prognosis is. I just tell them I'm doing great!

      about 4 years ago

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