• G.I.S.T. possible surgery

    Asked by ironmikey on Monday, May 20, 2019

    G.I.S.T. possible surgery

    I feel like things just got seriuos because this is the first C.T. scan I got that showed growth in the tumor and I have to meet with the surgeon on thursday 5/23/2019. Its really worrying me because I have no control and I dont know what hes going to say. I guess i'm hoping he can cut out the bad part and I'll be able to continue treatment with gleevic. I'm a worry wart by nature so I need to change my whole way of thinking!!!

    16 Answers from the Community

    16 answers
    • ironmikey's Avatar
      ironmikey

      I'm being a baby when
      I read what others are going threw. I admire all of you and I wish the best fior everyone especially thoose who have helped respond to my posts

      about 1 month ago
    • carm's Avatar
      carm

      Mikey, have you ever heard the old adage, "Everything you want is on the other side of fear." I understand your concerns and apprehensions. Any one going under the knife is scared. But on the other side of that surgery is a life longing for you to resume living it. We are all here for you. I'm sure you will do well. Trust and believe...you are so much stronger than you realize.

      about 1 month ago
    • Carool's Avatar
      Carool

      ironmikey, you are not being a baby. We each have an individual body and feel individual pain, and comparisons are odious. And cancers are sometimes (often) very scary. And most of the time, none of us have control.

      As carm said, we are here for you, as much as we can be on an Internet support site (the BEST one!). I wish you everything good when you see your oncologist. Please keep us posted.

      about 1 month ago
    • ironmikey's Avatar
      ironmikey

      Thanks carool and
      carm. I'll let you all know what happens soon.
      Mikey

      about 1 month ago
    • JaneA's Avatar
      JaneA

      Sometimes, it is a very good thing when our oncologists send us to a surgeon. Surgery is very scary. I had a very complex surgery 4 years ago that was characterized as "potentially curative." I have been NED ever since.

      I was scared and anxious, but the closer to the surgery date that I got, the less fear I had because I began to realize that getting that cancer out was the answer. Best wishes for the the surgical consult - let us know what they suggest.

      about 1 month ago
    • Bug's Avatar
      Bug (Best Answer!)

      You aren't being a baby at all. And no one wants to have surgery. Hang in there. Good luck on Thursday. Let us know how it goes. We'll be with you spirit.

      30 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey,
      t would be nice if he can remove the tumor and continue you on Gleevec. Since you won't know for two days, try to plan something to do tomorrow to take your mind off of it. Visit a friend or someone in the hospital, or work on a project at your home, even if it's baking cookies or lasagna. Go to webmd.com and read up on Anxiety. A cancer diagnosis means you are often waiting to find out something.

      Things you don't know can make you worry, so to prevent that happening again AFTER you see the doctor, make a list of your questions. After the doctor tells you everything, check your list to be sure he answered your questions. An example is If he recommends surgery, ask if you need someone with you after the hospitalization and for how long. Also tell your surgeon if you are still feeling anxious. Don't be shy, and you should feel better after talking to him.

      When I'm worried, I tell myself that if everybody else can "do it," I can, too---and it's true! Remember worrying doesn't change the outcome, so it's just wasting your time. . . .

      30 days ago
    • beachbum5817's Avatar
      beachbum5817

      Good luck tomorrow. I will be thinking of you and praying for good results. Keep us posted on how it went. Take care.

      29 days ago
    • ironmikey's Avatar
      ironmikey

      surgery scheduled for june 23rd. The surgeon said he feels he can remove some tumor asfely but that by no means is he geeting all of my dsease and that it;s not a 100% nessacary surgery. this confused me. The oncologist however feels that ther are many good reasons to do it. 1- it may remove the spot that has stopped responding to The 400mg Gleevic dose and possibly alleviate the need for a higher dose.
      2- stop some of the pain
      3- Paients that have had lager unresponsive pieces of tumor removed seam to respond better and and for longer periods of Gleevic in the future
      To me it seams worth it so I elected to do the surgery....... What do You all think?

      27 days ago
    • ironmikey's Avatar
      ironmikey

      any else suprised that he kinda left it up to me?

      27 days ago
    • beachbum5817's Avatar
      beachbum5817

      I am not totally surprised that they are leaving it up to you. We all have a choice as to what treatment we want to receive. There have been some people on this site that have chosen to forgo treatment and let nature takes it's course. I would go with the surgery just like you are doing. I plan on doing anything that is suggested for as long as I am able to handle it all. Do you have a surgery date? I hope and pray that it will give you relief. Take care.

      26 days ago
    • ironmikey's Avatar
      ironmikey

      Hey beachbum, Yea my surgery date is june 23rd. And I definitely want to do anything that will remove some cancer too! And if that piece is the one that stopped responding to the gleevic then I feel like if it comes out then I can stay on my same dose of gleevic for a longer time to keep the disease at bay. Thanks,
      Surgeon says he doesn;t really know exactly what he can do untill he gets in there. He wished I could get my scan at their facility but I have do go where my insurance allows....
      very frustrating because I should be able to get the best scan possible but thats insurance for you. He didnt say it was bad but he just asked where I got my scan and kind of shock his head. They never come out and talk bad on other facilities from what I've seen

      26 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Hey, Ironmikey,
      Yes, I agree that you should go ahead and have the surgery.

      I'm puzzled about what you said about the scan. If your insurance allows you to see the doctor at his location, why wouldn't they allow a scan at the his facility? Can't you have a scan before the surgery to assist the surgeon with the surgery, especially if the previous scan was of a bad quality? It wouldn't be a repeat by that time. It would be to check the progression. Best wishes.

      25 days ago
    • ironmikey's Avatar
      ironmikey

      Bar barainBham, I'm going to ask if they will do a new scan at the time of the surgery. That would make sense right? They can lump anything to do with the surgery together in a "package deal" is how it was explained , Like the pre-admission testing etc... as far as charging my insurance is charged. The surgeon is supposed to call me on wednes day after they have whats called "Tumor board" meeting. Thats where the oncologists and surgeons and all involved with the surgery meet..

      25 days ago
    • ironmikey's Avatar
      ironmikey

      I guess I'll try to eat as "Clean" as I can from now untill the day before surgery.I was told that could be helpfull. I guess alot of fruits and vegatables would be 'i good choice right? They gave me a list of what to do leading up to the procedure with th"clear liquids" and what not... Surgeon is supposed to call me on wednesday after the "Tumor Board meeting" I need to write down some of the questions i keep thinking of. Any other suggestions from you guys will be appreciated. Thanks again,, Mikey

      24 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey, by all means do whatever your doctor said to do. I was never told to eat a certain way by any of my doctors, although I've asked.

      The only exception to that is when I was in the hospital AFTER surgery to remove the GIST from my stomach. I couldn't have anything but water for about 3-4 days because stomach had to heal. When I was able to eat, they said it was important to chew everything 20 times. I was in the hospital for six days, and then stayed with my parents for another week.

      24 days ago

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