• G.I.S.T. possible surgery

    Asked by ironmikey on Monday, May 20, 2019

    G.I.S.T. possible surgery

    I feel like things just got seriuos because this is the first C.T. scan I got that showed growth in the tumor and I have to meet with the surgeon on thursday 5/23/2019. Its really worrying me because I have no control and I dont know what hes going to say. I guess i'm hoping he can cut out the bad part and I'll be able to continue treatment with gleevic. I'm a worry wart by nature so I need to change my whole way of thinking!!!

    64 Answers from the Community

    64 answers
    • ironmikey's Avatar
      ironmikey

      I'm being a baby when
      I read what others are going threw. I admire all of you and I wish the best fior everyone especially thoose who have helped respond to my posts

      4 months ago
    • carm's Avatar
      carm

      Mikey, have you ever heard the old adage, "Everything you want is on the other side of fear." I understand your concerns and apprehensions. Any one going under the knife is scared. But on the other side of that surgery is a life longing for you to resume living it. We are all here for you. I'm sure you will do well. Trust and believe...you are so much stronger than you realize.

      4 months ago
    • Carool's Avatar
      Carool

      ironmikey, you are not being a baby. We each have an individual body and feel individual pain, and comparisons are odious. And cancers are sometimes (often) very scary. And most of the time, none of us have control.

      As carm said, we are here for you, as much as we can be on an Internet support site (the BEST one!). I wish you everything good when you see your oncologist. Please keep us posted.

      4 months ago
    • ironmikey's Avatar
      ironmikey

      Thanks carool and
      carm. I'll let you all know what happens soon.
      Mikey

      4 months ago
    • JaneA's Avatar
      JaneA

      Sometimes, it is a very good thing when our oncologists send us to a surgeon. Surgery is very scary. I had a very complex surgery 4 years ago that was characterized as "potentially curative." I have been NED ever since.

      I was scared and anxious, but the closer to the surgery date that I got, the less fear I had because I began to realize that getting that cancer out was the answer. Best wishes for the the surgical consult - let us know what they suggest.

      4 months ago
    • Bug's Avatar
      Bug

      You aren't being a baby at all. And no one wants to have surgery. Hang in there. Good luck on Thursday. Let us know how it goes. We'll be with you spirit.

      4 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey,
      t would be nice if he can remove the tumor and continue you on Gleevec. Since you won't know for two days, try to plan something to do tomorrow to take your mind off of it. Visit a friend or someone in the hospital, or work on a project at your home, even if it's baking cookies or lasagna. Go to webmd.com and read up on Anxiety. A cancer diagnosis means you are often waiting to find out something.

      Things you don't know can make you worry, so to prevent that happening again AFTER you see the doctor, make a list of your questions. After the doctor tells you everything, check your list to be sure he answered your questions. An example is If he recommends surgery, ask if you need someone with you after the hospitalization and for how long. Also tell your surgeon if you are still feeling anxious. Don't be shy, and you should feel better after talking to him.

      When I'm worried, I tell myself that if everybody else can "do it," I can, too---and it's true! Remember worrying doesn't change the outcome, so it's just wasting your time. . . .

      4 months ago
    • beachbum5817's Avatar
      beachbum5817

      Good luck tomorrow. I will be thinking of you and praying for good results. Keep us posted on how it went. Take care.

      4 months ago
    • ironmikey's Avatar
      ironmikey

      surgery scheduled for june 23rd. The surgeon said he feels he can remove some tumor asfely but that by no means is he geeting all of my dsease and that it;s not a 100% nessacary surgery. this confused me. The oncologist however feels that ther are many good reasons to do it. 1- it may remove the spot that has stopped responding to The 400mg Gleevic dose and possibly alleviate the need for a higher dose.
      2- stop some of the pain
      3- Paients that have had lager unresponsive pieces of tumor removed seam to respond better and and for longer periods of Gleevic in the future
      To me it seams worth it so I elected to do the surgery....... What do You all think?

      4 months ago
    • ironmikey's Avatar
      ironmikey

      any else suprised that he kinda left it up to me?

      4 months ago
    • beachbum5817's Avatar
      beachbum5817

      I am not totally surprised that they are leaving it up to you. We all have a choice as to what treatment we want to receive. There have been some people on this site that have chosen to forgo treatment and let nature takes it's course. I would go with the surgery just like you are doing. I plan on doing anything that is suggested for as long as I am able to handle it all. Do you have a surgery date? I hope and pray that it will give you relief. Take care.

      4 months ago
    • ironmikey's Avatar
      ironmikey

      Hey beachbum, Yea my surgery date is june 23rd. And I definitely want to do anything that will remove some cancer too! And if that piece is the one that stopped responding to the gleevic then I feel like if it comes out then I can stay on my same dose of gleevic for a longer time to keep the disease at bay. Thanks,
      Surgeon says he doesn;t really know exactly what he can do untill he gets in there. He wished I could get my scan at their facility but I have do go where my insurance allows....
      very frustrating because I should be able to get the best scan possible but thats insurance for you. He didnt say it was bad but he just asked where I got my scan and kind of shock his head. They never come out and talk bad on other facilities from what I've seen

      4 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Hey, Ironmikey,
      Yes, I agree that you should go ahead and have the surgery.

      I'm puzzled about what you said about the scan. If your insurance allows you to see the doctor at his location, why wouldn't they allow a scan at the his facility? Can't you have a scan before the surgery to assist the surgeon with the surgery, especially if the previous scan was of a bad quality? It wouldn't be a repeat by that time. It would be to check the progression. Best wishes.

      4 months ago
    • ironmikey's Avatar
      ironmikey

      Bar barainBham, I'm going to ask if they will do a new scan at the time of the surgery. That would make sense right? They can lump anything to do with the surgery together in a "package deal" is how it was explained , Like the pre-admission testing etc... as far as charging my insurance is charged. The surgeon is supposed to call me on wednes day after they have whats called "Tumor board" meeting. Thats where the oncologists and surgeons and all involved with the surgery meet..

      4 months ago
    • ironmikey's Avatar
      ironmikey

      I guess I'll try to eat as "Clean" as I can from now untill the day before surgery.I was told that could be helpfull. I guess alot of fruits and vegatables would be 'i good choice right? They gave me a list of what to do leading up to the procedure with th"clear liquids" and what not... Surgeon is supposed to call me on wednesday after the "Tumor Board meeting" I need to write down some of the questions i keep thinking of. Any other suggestions from you guys will be appreciated. Thanks again,, Mikey

      4 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey, by all means do whatever your doctor said to do. I was never told to eat a certain way by any of my doctors, although I've asked.

      The only exception to that is when I was in the hospital AFTER surgery to remove the GIST from my stomach. I couldn't have anything but water for about 3-4 days because stomach had to heal. When I was able to eat, they said it was important to chew everything 20 times. I was in the hospital for six days, and then stayed with my parents for another week.

      4 months ago
    • ironmikey's Avatar
      ironmikey

      Hey guys,
      Just got home from the hospital, They removed the one portion of the gist tumor that was showing growth.
      I guess it was sucsessful exept i wound up bleeding internally and had to have two blood transfusions. Also the surgeon had to tell me that unfortunately the other parts of tumor are actually worse than what the scans have been showing. that was very upsseting for me. they told me to go back on gleevec and I'm home healkng up from the giant 8" insicion. I just bthought I'd let everyone know what happened since i havent posted since before surgery. wound up spending 7 days in the hospital. I hate to be gross but I still havent past a bowell movement that didnt have blood in it but the doctors are aware and they say its normal and its now just old blood and that it should stop. obviously in the beginning it was because of internal bleeding. but they say my blood test show that I'm starting to produce my own hemoglobin or whatever was low.

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey, I'm so glad to get an update! Glad to know you're recovering and the worst is over. I'm curious why they didn't take out the rest of the tumor (which they said was worse than scans show).

      It's VERY important to take the Gleevec since you've still got some tumor left. Have they said they've treated other GIST patients? There are two other drugs for GIST, or they can increase your Gleevec.

      Best wishes! Glad the surgery is over!

      3 months ago
    • beachbum5817's Avatar
      beachbum5817

      @ironmikey, I am glad to hear that you are out of the hospital and back at home. That alone will help you to feel better. Take care.

      3 months ago
    • Bug's Avatar
      Bug

      I second beachbum! Thanks for the update.

      3 months ago
    • Carool's Avatar
      Carool (Best Answer!)

      Mikey, I third beachbum and second Bug and send my best wishes for a speedy recovery and full speed ahead on getting rid of whatever cancer remains.

      3 months ago
    • ironmikey's Avatar
      ironmikey

      they didnt remove the rest of the tumor sites becase it is very widespread and not possible to get to all of it. they told me the entire thing was inoperable until this particular section grew and concerned the doctors because it was pushing against my bowel. I PRAY they could just cut the whole thing out but I'm told its just simply not possible!
      anyhow Thanks, Everyone who responded.......
      Best wishes,
      Mikey

      3 months ago
    • ironmikey's Avatar
      ironmikey

      BarbarianBham,
      Yes... They do treat other GI
      ST patients at Fox Chase Cancer Center where I went. I live in the philadelohia area and fox chase was my second opinion treatment option. Do you know of a fdacility that may be s better optioin?

      /Thanks , Mikey

      3 months ago
    • ironmikey's Avatar
      ironmikey

      Did any one else ever have surgery for bowel resection in order to remove a piece of gist tumor and the surgeon told them that your other disease sections "look worse from inside then they did on the scan" It really sucked to hear that. espicially while I was laying there in pain and the doctor sounded so nonchalant.... Him and is three "Cohort's" I wanted to get out of the bed and bang their heads together! Sorry but thats just how I felt. I think the news could have been delivered a little differently. Oh well at least I got the message loud and clear... And thats the future dosent look good. I wonder when I'ts time to start cashing in annuities and start doing things
      I dont want to miss? I may be jumping the gun but I just don';t know how to react to all this. And I really don't have much support. I'm 44 years old and single without many friends and my only sister lives across the country... sorry to whine but at least I got it of my chest....
      Thanks, Mikey :(

      3 months ago
    • ironmikey's Avatar
      ironmikey

      is anyone around to text? I feel like kinda texting to some one... If not I'll be ok , but I'm just wondering,,,
      Thanks, Mikey

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I know... I need to find some other friends..... I just feel alone, I'ts ridiculous, I need to make a change. I'm alone and in my head all the time. I almost wish I was back in the hospital and thats sad!! trust me I wanted to leave when it was time to go and and I stARted walking early and doing everything to show I was doing good and ready to go home...... n even though I was bleeding internally after surgery and needed two blood transfusions... I'm "O-
      by the way wich is supposed to be the most valuable doner... I'm rambling but my point is I didn't try to make reasons to stay in the hospital but now that I'm home I'm feeling alone and this is when I think depressing stuff/. Ogh well bye everyone. If anyone wants to chat that would be cool.... thanks, Mikey

      3 months ago
    • ironmikey's Avatar
      ironmikey

      Nothings gonna change by me just sitting here. I mean I guess the inscision has to heal and I have to inject the blood thinners for like 28 days and get healed from surgery... But after that something has to change! I wish I could meet someone cool to talk to but I still ap[preciate all of you guys who comment back occasionaly so
      Thanks Mikey

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I guess I'm unfortunately young to have stage 4 cancer judging from those who have been nice enough to reply to my posts

      3 months ago
    • ironmikey's Avatar
      ironmikey

      guess I need to find a site that gets looked at more than once every 23 hours. I'm kinda at a rough spot rite now and coul;d use some company!!!!

      3 months ago
    • ironmikey's Avatar
      ironmikey

      Its rare to get response one from this site in anything less than a day"24 hrs." or so... oh thanks, Mikey
      ///////////im just needing to find some kind of support

      3 months ago
    • ironmikey's Avatar
      ironmikey

      need to find out how to make my life worthwhile. because I dont have the money for some miracle cure to G.I.S.T. not with how much of it I have and in the liver as mine is. Any and all suggest will be welcomed... Thanks, Mikey

      3 months ago
    • Bug's Avatar
      Bug

      Hi, Mikey. Hang in there big guy. It sounds like some more information would be helpful. Knowledge is power. Maybe you can make a list of questions for your doctor and contact him on Monday. And then I hope you can try to think about resting and healing over the weekend. Maybe there are some good movies or interesting magazines you can take a look at - anything to try to get your mind on something else for a while. My situation was very different and I don’t pretend to know at all how are you are feeling. My onc did recommend a counselor who specializes in cancer issues. She’s really great. She really “gets it”. Maybe you can ask your onc or one of the other docs for a recommendation. My counselor is affiliated with my medical group, too, so she is free. Keep breathing. We are *all* pulling for you.

      3 months ago
    • Carool's Avatar
      Carool

      Hi, Mikey. I so agree with Bug here. And I so agree that your doctor needs lessons in bedside manner (does anyone still use that term?).

      I’m a young elder, but I love texting and emailing, so if you want to text me here it is (so as to not have the number blocked I’ve included a few letters): 1-718-AAa-909-B2177.

      3 months ago
    • Carool's Avatar
      Carool

      Also, check out r/Cancer, which seems to have young posters. I’ll never recommend this site over WN, but you might like it - but please also stay with WN!

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I liked the "social worker that I can talk to but the {Psychiatrist That came to talk to me while I was in the hospital was about to make my blood preassure go of the charts. She just had a way of making me argumentative and had to keep reminding me how long it took to get her degrees and what Degrees she had.... witch in my opinion A good psych dr. shouldnt have to keep stating to validate themselves. I suppose
      I was argumentative with her because I didn't much care for her and so the whole feeling in the room was stessful

      3 months ago
    • beachbum5817's Avatar
      beachbum5817

      Good morning, Mikey. I am sorry that you had such a rough evening. Like Bug said, try to step back a moment. I know it isn't easy, but you need some time. If you weren't happy with the counselor that Fox Chase sent to you, call around. I see you live in Plymouth Meeting, and I know that there are many choices in your area. I live in Pottstown. I am sure if you called Einstein Hospital or Phoenixville Hospital, they could give you suggestions on who to call. If they don't, there are other hospitals in the city, like U of Penn. Would you be open to support groups? There must be one for your type of cancer. You are young to be going through all of this, and it breaks my heart that you have to go through it alone. That is something that I can't imagine. Maybe your uneasiness is caused by the let down of leaving the hospital and having people to chat with you and help you with things. I know we all want to be out of the hospital as quickly as we can, but it does offer a sense of security. We are here for you and pulling for you. I'm not a night owl, but there are people here from all over the world. I do check the site several times a day, and I will keep an eye out for your posts. I hope today will be a better day for you. Take care.

      3 months ago
    • ironmikey's Avatar
      ironmikey

      beqachbum Thanks for understaning. I'd really like to be able to go out for a lunch with someone who I could talk to about. I've put out word to my few friends but there mostly all tied up with their families on a nice weekend like this so I don't know what I'll do.

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I have a female that I met on a dating site whom I've not yet met in person but we've spoke briefly on phone and she is mostly aware of my situation. She lives almost one hour away but I'd like to ask her if we could meet in person. We have exchanged pictures as well. What do you think beachbum5817 m??

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I just want to feel normal for the day....

      3 months ago
    • ironmikey's Avatar
      ironmikey

      iF WE COULD JUST GET ME IN TOUCH WITH SOME PEOPLE NEAR my age that have a sort of similar diagnosis wich is stage Iv G.I.S.T. ... It would be a start in the right direction:)

      3 months ago
    • Bug's Avatar
      Bug

      Mikey, the American Cancer Society has a program called Reach to Recovery. They match up people going through breast cancer with people who have already gone through breast cancer so that they can talk to someone who has "been there". They try to match up by diagnosis and age. Now, as I said, it's for breast cancer but you could call them and see if they have something similar for folks with other types of cancer. They are there 24/7. Their toll free number is:

      800
      227
      2345

      It's worth a shot. I hope they can help. Hang in there. You can do this.

      3 months ago
    • Bug's Avatar
      Bug

      Also, go to the People page here on WhatNext. You can search for people using various filters like cancer type, stage, etc. I did a quick search and found some people with GIST.

      3 months ago
    • beachbum5817's Avatar
      beachbum5817

      Mikey, I think you should ask that young lady, that you have met on a dating site, to meet you for lunch. It may just be what you need to help to boost your spirits. As my mother always said, Nothing ventured, nothing gained. Hopefully, she will be willing to meet you half-way. After I sent my response this morning, like Bug, I thought of the American Cancer Society. They definitely should be able to give you helpful information. All of of us here, are wishing the best for you.

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I liked it myself:)

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      IronMikey, I live in Alabama, so, no, I don't know anything about hospitals where you are, except to recommend they be on the National Cancer Institute designated Comprehensive Cancer Center List. Here's the list by state with phone numbers::
      https://www.cancer.gov/research/nci-role/cancer-centers/find

      I've read that ablation is a way to treat GIST in the liver. You might ask your doctor if you are a candidate for that. Also tell them you are interested in clinical trials, since they may allow you to take medicine not available to the general public. Getting a second or third opinion is always an option for Stage IV cancer, especially since GIST is rare.

      You should also ask your doctor's office about support groups for stomach cancer. A support group is a perfect way to meet people who understand your situation. I noticed you said you prayed, so you could also get involved at a large church to meet nice people. Large churches usually have groups that meet for fun, in addition to Sunday school and church. If you know how to "search" for a site, look up Life Raft Group for GIST patients, and I think you'll find a website for GIST patients. I'm not a member, but you might enjoy it.

      You could also consider moving to where your sister lives.

      Stay positive and enjoy living. Prepare for the worst and hope for the best. Best wishes.

      3 months ago
    • Carool's Avatar
      Carool

      Mikey, I’d definitely ask that young woman to meet you. I’d also let your friends know you’d really like to see them soon, even if it’s for only a brief time. Even if they’re very busy, they might take a break and see you. If they decline right now, maybe you can make plans for next month, etc.

      Hugs -

      3 months ago
    • Carool's Avatar
      Carool

      Bug, I think it’s funny how we must subvert the WN censor when we want to give out numbers that would otherwise be redacted! I like how you stacked the number (very urban!).

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      GIST is very rare, which is why support groups are few and far between, and also why doctors who've treated GIST are not just anywhere. Probably the closest thing to a support group would be stomach cancer (adenocarcinoma), which is a different type with different chemo traetment.

      The other patients on this website aren't on it any more (that I know of).

      3 months ago
    • ironmikey's Avatar
      ironmikey

      BarbarainBham,
      Are you saying that as far as you know there are no other patients with G.I.S.T. on this website?
      I also want to add that itb looks like we both take Gleevec. Im curious as tom what your dose is. I also have to inject with Lovenox since the surgery. I think for 28 days or so. supposedly the doctors at Fox Chase have some experience with G.I.S.T. but lately ive been wondering about getting what would be a third opinion. Any suggestions?

      3 months ago
    • ironmikey's Avatar
      ironmikey

      I just want answers. I dont want to sound like I'm giving up but I'm Sooo Doooone with this. I cant get answers and I
      m the type who needs answers so I have to get use to waiting all though I've been going through that since my diagnosis almost a year ago... I just wonder what the outcome is like? Will this be my cause of death? will it be painfull? how long will it take? Can they just put me out of my misery without it being a sin? I have many uncertaintees. I'm scared and feel helpless. Shopuld I withdrawl all my money and travel anbd buy the harley davidson I've always wanted and just start putting in miles on the road and staying at hotels while I still feel heALTHY!???? trhat wouyld make me happy I think but what if I spendx money that I migfht need for a future trhat I may or may not have??? all thoughts are welcome
      Thanks, Mikey

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey,
      Up above I replied to your question about suggestions for other opinions and sent you a link to a list of all the NCI-designated Comprehensive Cancer Centers with their phone numbers, which everyone here recommends because they do research for NIH and have cutting edge doctors and research. You also might be offered treatments not available to the general public.

      When you say you are "the type who needs answers," what answers are you referring to? Did you remember to discuss your anxiety with your doctor(s) and ask for medicine? Your doctor is the best person to ask about your future and the other questions about "putting you out of your misery." I would say to enjoy your life while you are healthy, but don't spend all your money because you may not die soon. Immunotherapy is a miracle maker, and I hope it will be available soon for GIST patients.

      I take 400 mg of Gleevec per day, but I'm bothered with nausea, so can't take more. I'm glad you tolerate Gleevec so well.

      After you talk to your doctor about your "questions" and anxiety, get busy volunteering at a hospital or with veterans some way to take your mind off of yourself. There are other problems worse than GIST, so we need to be thankful we don't have worse things. You were going to see a counselor, too. I think you need to be more active with other people to distract yourself from your health. (Worrying never changes the outcome of anything.) If you don't want to make new friends, move back home where your friends are. Best wishes.

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      There was one other GIST patient on one of your questions about GIST, but you two are the only ones I know of on this site.

      One of your doctors considered another type of chemo besides Gleevec, and if that was your doctor, you need to lose him----traditional chemo doesn't work on GIST. If that was the other person's doctor, sorry I mentioned it.

      3 months ago
    • Carool's Avatar
      Carool

      Mikey, I agree with Barbarainbam. Your doctor is the one who might be able to answer some of your questions. However, he can only estimate the direction your illness will take. On this site are people who’ve been told they’d be dead in six months (or three), and here they are, still alive. A friend of a friend was just diagnosed with CML, a very rare form of leukemia that used to be fatal. Now there is a treatment that has enabled patients to look forward to living for many years.

      So, who knows? Yes, certain diseases have poor prognoses, no doubt about that. It’s good to plan. I’ll do the same, when the time comes and assuming I have time to plan. But you should first talk with your doctor and get a second and third opinion, if you can. Sending good wishes -

      3 months ago
    • ironmikey's Avatar
      ironmikey

      Tnhanks carool and BarBarianBham> I got a little ahead of myself and I love how /you two knew how to deal with me in a way that actually helped instead of freaking me out more..... not two many people could have done that so once again thank you. I love to know you guys arethere to help out because it really does help alot! Let me try and lay down know and maybe I'll have some better ideas in the A.M. I'm going to p[ray on it and I would love if you guys do the same but tjat your private businesws .. so thanks again Mikey

      3 months ago
    • beachbum5817's Avatar
      beachbum5817

      Mikey, I am praying for you everyday. Hopefully you will feel better about your situation after a good night's sleep. I agree with Barbara and Carol that you should call your doctor about getting a prescription for some anxiety medicine. If you are in pain, tell the doctor that you need something for that, too. You don't need to suffer. If you are up to it, maybe you could go to a park or the mall and just walk for awhile. You will be around others and getting some excercise, as well. That always helps me when I am feeling alone and isolated. Take care.

      2 months ago
    • ironmikey's Avatar
      ironmikey

      I went to the local mall and walked around and bought a new t-shirt.... It was kinda nice... maybe I can think of an old friend to visit with... I cant believe how things changed. I used to have lots of friends that would be coming to see me right now but not theese day; not now when I really need them :(

      2 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey, if you are lonely, you may need to reach out yourself and go to a large church with activities. You could also consider calling a group of people to go out to eat to "catch up," or even have them to your house to eat and play cards, or whatever else you like to do! Poker is kind of a "manly" game!

      Did you read my post further up with the link to other doctors? I also mentioned I've read that ablation is a way to treat GIST in the liver. Has anyone mentioned that to you? It's just a procedure, so would be worth looking into.

      Make a list of your questions and ask your doctor(s). GIST grows fast, so I wouldn't delay getting those other opinions. Even a month is very important with GIST, especially if the Gleevec isn't working well.

      Best wishes. Update us.

      2 months ago
    • ironmikey's Avatar
      ironmikey

      gleevec is working on the majority of my gist.

      2 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Unfortunately sometimes our healthy friends are too busy OR they are afraid they don't know what to say if you talk about cancer. If you get one to agree to get together, I would talk about cancer only minimally. They don't usually understand.

      I suggest you call your doctor's office about your anxiety as soon as you can.

      2 months ago
    • ironmikey's Avatar
      ironmikey

      BarbarainBham, If I go to my church how do I go about telling people that I have cancer and that I'm trying to find a nice way to spend time with others? right now I'm limited because I just had the bowel resection surgery but I'm not good at starting up conversations and I must admit that im kind of picky when it comes to hanging out with people. I'm really bad at starting conversations with people I don't know....and I always have been. I've had bad experiences in the past with trying to meet new people...

      2 months ago
    • ironmikey's Avatar
      ironmikey

      In a way I almost feel like I don't fit in with alot of people. especially the ones at my church. And I don't thinkm
      I need to mfind a new church because the one I attend is very laid back and also close to my house

      2 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      If you have trouble talking to new people, maybe you should consider moving back where your sister and/or friends are, since you aren't working. (Work is another major place for making friends, which is why I suggested you should volunteer at a hospital every week.)

      Ironmikey, I'd like to help you, but you need to call a counselor who can chat with you for an appointment on Monday. Please don't put it off any more. Best wishes.

      2 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      P.S. I recommend you don't make a point of telling people you meet you have cancer. It'll come up naturally in conversation, and you can say you have some health problems and (?) don't work any more, or (?) don't get out as much as you used to. Most people don't ask what, but you could BRIEFLY mention you just had surgery to have a tumor removed and are just starting to get out again.

      If you were going to a counselor, you could also discuss that. I suggest you don't overthink it, and just let it be natural, but BRIEF. Don't unload on people when you've just met them. Brief conversations about problems are always best, because nobody wants to spend time with somebody who's depressing, right?

      Minimize discussion of cancer if you want to have fun.

      2 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Ironmikey, please update us on whether you called for an appointment with a counselor, preferably one with cancer patient experience. Your doctor's office can recommend one, or may have one in their office or clinic that can help.

      2 months ago

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