• Get hopice care or not

    Asked by Raycea on Friday, May 3, 2013

    Get hopice care or not

    My mother has stage IV Bladder Cancer that has spread to her lungs. She is not getting treatment and has no pain. She is tierd all the time and spends most of her time in bed. She is slightly unsteady on her feet and has blood in her urine most of the time. Should we concider geting Hospice Care? If not at what point should this be considered?

    4 Answers from the Community

    4 answers
    • Tracy's Avatar

      This is a tough time for you. I went through hospice with my father a couple of years ago and they are wonderful! I would highly recommend contacting them as soon as you can so that you can have the connection open. They will let you know when they will be needed. Things can change very fast and having the person available to call makes the difference between a loving comfortable passing and a panicked emergency. This is a great question, thank you for asking. Tracy

      over 3 years ago
    • carm's Avatar

      Hello, I am an oncology nurse and I also work in end of life care. The only way to get hospice is with a written order from the doctor. If you are considering hospice care, her oncologist will have to sign the order and sometimes they are not easy to secure. Best of luck and if you have any questions you know where to find me, Carm RN.

      over 3 years ago
    • FreeBird's Avatar
      FreeBird (Best Answer!)

      All you need is an order from her doctor. This is done when someone in her similar circumstances might have about six months or less to live. That doesn't mean she has only that much time, but they go by expectations based on other people. If she is not receiving treatment, I highly recommend hospice care to make her as comfortable as possible. My dad has been under hospice care since January, and it has been fantastic under the circumstances. All the medications related to the cancer symptoms are covered 100% through medicare, and they have delivered them right to the door as needed. Starting early gives you time to become familiar with the people and the whole process. It also gives them time to become familiar with her situation.

      What happens here is a nurse visits twice a week. A doctor visits about every two weeks and spends more time than they would in an office. A social worker visits about every three weeks. In my dad's case, oxygen equipment is provided. They offered an aid if he needs help bathing in the event I'm not here or can't handle it. They have volunteers who can also help if you need something. It really is a great option for someone who is not receiving treatment. If something goes wrong that we can't handle with what they leave here at the house, I call and they come right out. There's a little box of drugs in the fridge for emergencies. I have no doubt that doing this has kept dad out of the emergency room and hospital at least once. If you can do it, do it. There is also the option to change your mind at any time if she wants to receive treatment again.

      over 3 years ago
    • KarenN@StF's Avatar

      Now. Hospice care is wonderful not only for the patient, but for the families as well. The support and guidance they provide can really impact the quality of life for each member of the entire family. The Hospice nurse will be able to share what is happening as your mom's physical condition changes and help everyone cope with their feelings and concerns. It can really bring everyone closer. Good Luck and prayers for you!

      over 3 years ago

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