• Getting through the side effect days.

    Asked by nancyjac on Sunday, February 12, 2012

    Getting through the side effect days.

    I've now had 4 full chemo treatments (everything 3 weeks) and have somewhat of a scheduled down time routine for the days the side effects are usually the worst. I'm interested in hearing from others about how they schedule/cope with the bad days from both a practical and emotional standpoint.

    5 Answers from the Community

    5 answers
    • Charlieb's Avatar

      I am on round 3 of chemo. I take dexamethasone every Monday, so, usually, Tues - Thurs are bad for me.
      I have talked with everyone around me and they understand I have some real bad days. In addition, I do some work at the VA Hospital and volunteer at a museum. I never "schedule" around the bad days, I just tell people I am having a bad dad and take it easy. Chemo is more important then going out to a movie or even working. I used to fight my bad days when I had something to do, now I just give in. The best way to cope, I found, is to keep busy on my good days and take it easy on my bad days. Keep saying "chemo sucks".

      over 8 years ago
    • CarolLHRN's Avatar

      I just finished round 2 of chemo so I'm still figuring out the schedule. I opted to have my chemo on Wednesdays because I heard days 3 and 4 are the worst so I have them on the weekends.

      I have been struggling finding a balance between getting enough rest and taking care of me and doing things I enjoy and are good for me like exercising and eating well. It's hard for me when I can't exercise because my stomach is sour or I opt for Ritz crackers for a snack instead of raw veggies or fruit because I just can't imagine eating those things.

      I find you have to be kind to yourself. Being judgmental or harsh to yourself doesn't help any. My surgeon told me when I first started this journey to just Ride the Wave. As much as I wanted to kick him in the shins when he told me this the first time, I get it now. My good friends know there will be days when I am ready to go and need to get of the house and days when I just want to lay on the couch and not move. They are there for me either way.

      I know about the emotional part of it. I had planned to do something I was really looking forward to yesterday but I just didn't feel well and I had to cancel. I was really, really disappointed but I know if I went I wouldn't have enjoyed myself either. On those days, I keep my eye on the prize of my finish date for chemo and all the things I'll be able to enjoy again. And I know that when I can get back to things I enjoy, I will enjoy them even more.

      Hang in there and take good care of yourself. Try not to be hard on yourself (it's hard, I know). You will get through this and be even better for it when it's all over!

      over 8 years ago
    • Chris' Avatar

      My treatments were always on Tuesday - oh the side effects - such a roller coaster ride. Normally on Sundays I started to feel a little more like me and Mondays - were the best days. Then I would start all over again.

      What helped me was that I could work from home - it gave me a goal each day. I might be up from midnight to 10 in the morning lol and I tried to miss only two days a week of work in the office - sometimes that did not work - but I stayed focused.

      over 8 years ago
    • RebeccaLynn25's Avatar

      Reading all of your answers it's crazy how it affects everyone differently. Because I have Sundays and Mondays off work, I have chemo on Friday and I'll be nauseous for a few days. Sometimes I'll be nauseous for two, or maybe three days. By Monday, I usually start to feel better, and I'll feel good until Wednesday. I know when I touch my skin and it hurts, I'm starting to get sick or feel bad. It trickles down my body. Thursday is normally my worst day. Sometimes I'll feel better on Friday, or during the weekend. On the week after chemo, I'll cut my hours at work on the day after chemo and the next Thursday and Friday to only work 4 hours, and if I feel up to it, I'll stay and work more hours. Then I gradually start feeling better and having more energy.

      over 8 years ago
    • Irishsurvivor's Avatar

      Had my chemo on Thurs,felt yucky 4-5 days after. Before chemo I'ld get 5-6 DVD movies to veg out with on bad days. Didn't make plans to do things on yucky days,except talk on the phone if up to it. On bad days coped by frequently reminding myself this is just a phase,I will get through this & chemo is a bridge to a healthier life. I'ld ask my husband to put this in perspective for me,when I just couldn't myself & he was so helpful! My mom, 2 sisters, & brother in town where focused on 1 our other sisters in town with IBC at the same time I had my cancer,so I felt very alone & abandoned. I reached out to 2 of my sisters out of town,I could call them anytime,cry on their shoulders,& got great support from them. Be kind to yourself,you can get through this,the bad days will end & in time you will be on the other side of the bridge with chemo in the rear view mirror, & a healthier,happy life will be yours!
      Warm hugs to you!

      over 8 years ago

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