• DJS's Avatar

    Gilda's Club Dropout

    Asked by DJS on Friday, August 2, 2013

    Gilda's Club Dropout

    I'm really upset about my experience with the NYC Gilda's Club. Has anyone else experienced this?

    The first visit is just a tour and a rough idea of what's available. The second visit is an interview with a social worker...I hated it. It was like another interview at a doctor's office: my meds, permission slips to contact my medical team, etc. I went there to get away from the feeling of just being a patient; this just reenforced it. I hope my husband is able to get something there -- a support group, yoga, etc. -- but for me, I'll probably never go back. I'm more than just a Cancer Patient, and they reduced me to just that. I'm more than a list of meds and treatments -- why do they need that? I came home and just cried.

    14 Answers from the Community

    14 answers
    • Julie99's Avatar

      DJS, near me there is an affiliate of Gilda's Club, cancer community support. I loved this site and the support I felt here and was looking for as much support as I could get when I was first diagnosed. Just after my surgery I made it to that interview, which was a bit odd and yes, felt like just another doctor appointment.
      I tried the support group for about 2 months, but was also a drop out and for some reason have felt guilty about it. In addition to the therapist and myself, the group had 6 others in that weekly group. One was in her early 20's. All the others have children that age or older, one of which was divorced, but the rest married. I'm 38, no children, living with my boyfriend. It was very hard for me to relate with the issues they have in their lives and them with me. It just wasn't a good fit.
      The cancer center I am treated at has a breast cancer support group I have been to and they are amazing. They also offer exercise & yoga classes. But, overall, I have found more support on this site than anywhere else.
      You are not alone in how you felt. Hopefully on this site, you are able to find the support that you are looking for.

      over 6 years ago
    • ddkk3's Avatar

      I agree with Gwendolyn. I read cam's response to mean that you don't need Gilda's club and you can stick with What Next (reading AND writing on here).

      over 6 years ago
    • DJS's Avatar

      I've gotten so many messages on cam32505's response to my question! Thanks everyone for caring about me.

      I was extremely tender when I wrote my question, and I now believe that cam's response was actually well intended, but read differently to me at that time. I always warn my girlfriends to watch out when writing emails -- the voice you hear when you write it may not be the voice they hear when they read it. This is a classic example of this.

      Cam32505 -- I apologize for what I now believe was an overreaction to your response. I was teary, tender, and felt like I was the world's target that day, and that's how I read your words. You're right -- this is a great group of people. Thanks for taking the time to read and respond to my posting.

      over 6 years ago

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