• Gleason score 9 met to bones and lymph nodes what can I expect was told Feb

    Asked by Jackjr on Friday, April 19, 2019

    Gleason score 9 met to bones and lymph nodes what can I expect was told Feb

    Have pain in my shoulders and hips get dizzy often don't Know what to do I'm lost

    5 Answers from the Community

    5 answers
    • po18guy's Avatar
      po18guy

      Sorry to hear this. If you are not already being seen at one, I strongly urge you to go to a National Cancer Institute designated comprehensive cancer center (in the US). They employ the best and brightest, have the latest technology and perform crucial research into more effective and less toxic treatment. Find the nearest center here: https://www.cancer.gov/research/nci-role/cancer-centers/find

      3 months ago
    • antoine's Avatar
      antoine

      Sorry to hear this
      I have the same pain in the exact same places but my cancer has not entered the bones...Is this similar? If so I have been taking Gavapentin (But I suggest you ask you doctor first)

      3 months ago
    • Scoofer's Avatar
      Scoofer

      I’m so sorry to hear of your recent diagnosis. You must be in a state of shock dealing with all this new information. I also was diagnosed with Gleason 9 prostate cancer at age 54 back in 2015, however, it is not in my lymph nodes, but all throughout my bones. Po18guy’s advice seems very helpful. I have found good information on the standard of care for prostate cancer at the National Comprehensive Cancer Network at nccn.org, I think it is.

      3 months ago
    • Ross' Avatar
      Ross

      My hope for you is that you have medical advisers that you trust and are able to follow their game plan for you. As you are experiencing, cancer effects us physically and mentally. It is a process that saps our strength and attitude. Many of us have been where you are now. And many, many of us are survivors, thankfully.
      Best to you as you seek treatment and help. A survivor, Ross

      3 months ago
    • Jim917's Avatar
      Jim917

      I had a Gleason 9(stage IV) in 2011 and I'm still active and involved in the world in 2019. I'm also 62yo. I suggest you remain positive and make sure you are comfortable with your medical team.

      3 months ago

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