• Going in tomorrow for 6 month PET scan. Does everyone have this roller-coaster feeling when these tests are due?

    Asked by Topazcat on Sunday, January 13, 2013

    Going in tomorrow for 6 month PET scan. Does everyone have this roller-coaster feeling when these tests are due?

    This is my 3rd PET scan following diagnosis for IBC 2 years ago. I had 16 weekly chemo treatments, then bilateral mastectomy, followed by 36 radiation treatments. Also had 22 nodes removed under left arm - 18 were cancerous. About 3 weeks before the PET scans I start getting anxious. I know the stats on IBC and can't help wondering if this is the time I will find out that it is back. Is this normal?

    15 Answers from the Community

    15 answers
    • GregP_WN's Avatar
      GregP_WN

      I can't say about your particular type of cancer, but for me, I get nervous every time. I am done with my every 6 month scans, now just wait for something to show up in a scope of the throat and that's the same, nervous until I hear them say "everything looks great"!

      almost 4 years ago
    • nancyjac's Avatar
      nancyjac

      I also had IBC. Quite honestly I have already spent more time being tested and treated than I care to. I'm sure not going to spend even more time worrying about what ifs.

      almost 4 years ago
    • karen1956's Avatar
      karen1956

      My onc does not do any routine scans....so I don't have to worry about "scanxiety"...but I do start feeling anxious before my 6 month onc visit.....onc does history, physical and tumor markers and yes, worry about whether I'll con't to be NED....its not as bad as it was in the early years as onc mails lab results so when I don't get a call day after appt, then I'm pretty sure that I'm okay for another 6 months!!!!

      almost 4 years ago
    • Dick_K's Avatar
      Dick_K

      I too have scans scheduled for tomorrow and I can definitely understand your anxiousness. While my particular situation is different, there are similarities. I have been getting scans every six weeks since February 2010; PET/CT scans for about 18 months and CT scans since then. I am very far out on the right of the bell curve for the effective time period for the medicine I am on and every six weeks wonder what the scans and blood work will bring. My anxiety started yesterday and will continue until Wednesday morning when I will have blood work and get the scan results. Here’s hoping we both continue beating the odds.

      almost 4 years ago
    • SueRae1's Avatar
      SueRae1

      Oh yes. I commented to the techs before my last set of scans MRI, Bone and CT (right before Thanksgiving), "you would think that with so much experience, these tests would get easier, but they don't, they get worse" and she replied, that it was the way most cancer patients felt.

      almost 4 years ago
    • IKickedIt's Avatar
      IKickedIt

      I thought they'd get easier, but so far, no such luck. I found that the actual test wasn't as difficult, but waiting for the results was awful. I was just so terrified and waited impatiently for the phone call from the doctor. Good luck.

      almost 4 years ago
    • Lirasgirl33's Avatar
      Lirasgirl33 (Best Answer!)

      Yes, it's normal. I think that the thought of a recurrence will always be in the back of our mind. It's ok to have those thoughts but try your hardest to reman positive. What good would it do to drive yourself to have a panic/anxiety attack over it? When I have to deal with scans and results the worry is there but then I remind myself to think positive thoughts, pray and hope for the best, and that I will deal with the results when it's time to deal with them. Until then I keep myself busy and try not to focus on it. What's the point?

      almost 4 years ago
    • Gena's Avatar
      Gena

      I have IBC and get CT scans every 3 months. I stress myself out waiting for the results. Once I get them, good or bad, I relax just knowing what I am dealing with. I tell myself that stressing about it doesn't change the outcome. Putting God in charge is what gets me through.

      almost 4 years ago
    • Gena's Avatar
      Gena

      I have IBC and get CT scans every 3 months. I stress myself out waiting for the results. Once I get them, good or bad, I relax just knowing what I am dealing with. I tell myself that stressing about it doesn't change the outcome. Putting God in charge is what gets me through.

      almost 4 years ago
    • Kathy's Avatar
      Kathy

      I just finished chemo three weeks ago for recurrent ovarian cancer. I'm going for a catscan this Fri. I'm just kinda dreading it. I am pretty confident all is fine for now but the further out I get its gonna make me nervous. Good luck to you and all of us. I keep yelling myself to live and stay in the moment. Be happy today all is good and save Fri for Fri. Easier said then done. It's at times like these I so appreciate this group because we can relate to one another.

      almost 4 years ago
    • Kathy's Avatar
      Kathy

      I keep *telling myself. But maybe I should yell it to myself!!!

      almost 4 years ago
    • SusanK's Avatar
      SusanK

      I just got back from bloodwork and chest xray; onc appointment on Thursday. I am trying not to fret but I can't help thinking about "it" occasionally throughout the day. I think everyone who has been through a bout with cancer feels this same anxiety.

      almost 4 years ago
    • MsScribe's Avatar
      MsScribe

      I'm on 6 monthly CT scans since my NHL diagnosis 18 mths ago. I have a 50% chance or recurrence so,yes, I get "scanitity". Does it help that i am nervous until the results are in - no. The fact is if it comes back I will treat it again. life will go on.

      I feel less anxious nowadays because I had my colorectal surgeon go through the entire scan with me one day and show me every little ting they were watching and explain both my "hot spots." that was very educational, helpful and consequently eased my anxiety.

      I do not go to scans alone - I tried that once and I was more nervous and more worried. I take along my long suffering husband and we make a fun day out of it. We have lunch out and we shop. By giving myself a treat that day I think it makes the whole thing less forbidding.

      But I am always glad to hear from my doc the following day. (She's very good about calling.)
      Then it's 6 more months.....

      almost 4 years ago
    • Terry15's Avatar
      Terry15

      Blood work today, chemo (#5 R-chop for NHL) tomorrow and 2nd PET Scan this Saturday. Sure I am scared, excited, fearful of results. Have hope and have to stay busy w/o dwelling on possibilities. Tough to wait but use the time to do other stuff and rely on friends.
      Writing this reminded me not to dwell on the negative. Too easy to fall into that hole.

      almost 4 years ago
    • Lindy's Avatar
      Lindy

      I think so, sure is true for me. My cancer support group calls it the elephant in the room. It stays small for the most part but when we are nearing an exam, test, scan it grows bigger and bigger. Sometimes it even has sparkly lights. Good wishes for your upcoming scan.

      almost 4 years ago

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