• Has anybody kept their ports in "just in case". I can't decide whether i want to take it out or not as I have just finished treatment.

    Asked by sheryl1986 on Friday, February 8, 2013

    Has anybody kept their ports in "just in case". I can't decide whether i want to take it out or not as I have just finished treatment.

    13 Answers from the Community

    13 answers
    • GregP_WN's Avatar

      Ha!! We were just talking about this a week or so ago. I had said I think I hold some sort of a record. I kept mine for 15 years after I was done with treatment. My first one quit working, so it was taken out of the left side, another was put in the right side. I was told if it quit I was out of sites to use unless they went to my groin area, I didn't want any part of that. So I kept saying, no, I'll just keep it a while longer, "just in case" each time a doctor wanted to take it out.

      I finally let it out a few years ago. Then I was diagnosed about 3 years later for my 3rd time. Luckily, no chemo this time.

      over 3 years ago
    • Kathy's Avatar

      My doctor wants me to keep it in for a year.

      over 3 years ago
    • Kathy's Avatar

      And - oh - congratulations on finishing treatment!! I finished about 1-1/2 months ago and it's a great feeling.

      over 3 years ago
    • nancyjac's Avatar

      I finished active treatment a few months ago but I still have mine and will keep it as long as it doesn't cause me any problems. I still have to have blood drawn every 3 months and it is much more convenient and less painful to use my port to do that.

      over 3 years ago
    • JRUSH's Avatar

      I was told after 2 clean scans the port can come out. That's my plan (to take it out). I have slight discomfort from having it.

      over 3 years ago
    • Nancebeth's Avatar

      My onc wants me to keep it for a year. Congrats on finishing treatment.

      over 3 years ago
    • Peroll's Avatar

      Congratulations on finishing treatment. I couldn't wait to get rid of the port from my first cheno regimine and had it out as soon as the Oncologist would lrt me. I had trpouble looking at it and did not want to touch it. Onve my cancer came back I have learned to live with my little friend and I can even touch it now without getting the creeps. Since you arer stage II there should be no reason to keep it unless you like it a lot. As greg sais there is always the other side if you need ot later. Good Luck

      over 3 years ago
    • JennyMiller's Avatar

      I got my port out a month after I finished chemo. I was so aware of its presence that it was a relief to have it gone -- also it was another hurdle that I completed -- a milestone in my journey -- and it gave me a sense of freedom. Of course, I gave some thought about possibly needing it sometime in the future -- but I decided to have a positive attitude --- and if that time were to come, I will deal with it then. I wish you the best!!

      over 3 years ago
    • leepenn's Avatar

      I had my mastectomy after chemo, and I requested that it be removed at that time. So, that was one less procedure I would need - a separate procedure for removing the port... Anyway, I had a love hate relationship with that thing. It definitely made chemo easier, but I could feel it all the time... It was not comfortable... It never hurt me or anything like that, but I did not like the sensation of it pulling at my neck whenever I turned my head. I love not having it.

      I think the one year recommendation is common. But, I figure that if I end up needing another one, then I can get one.

      My prognosis is good, so this decision seemed easy to me.
      So, ask your health care team for their opinions and recommendations and go from there.

      GOOD LUCK!
      I hope the rest of your treatment goes smoothly and with a minimum of side effects!

      over 3 years ago
    • geekling's Avatar

      Things must have radically changed.

      11 years ago, the port wouldn't stay in.

      The first one fell out sometime midtreatment. The second on disappeared, on its own, very quickly after my having finished the chemotherapy portion of treatment. I did not ask for another "just in case".

      I guess they don't fall out on their own any more so much, yes?

      Congrats on having successfully completed treatment. Another change. By the time I'd finished treatment for the same cancer you had, I was too exhausted to think and stand.

      over 3 years ago
    • sheryl1986's Avatar

      Thanks for all the kind words. My port doesn't bother me. In fact if i could keep it forever I would as it makes it easier to draw from it than my veins. I have a reputation of having poor veins from kidney disease!! Oh well! Maybe I will try to beat GregP and keep mine in for 15 and half years! ;)

      over 3 years ago
    • Jodi's Avatar

      I TOOK IT OUT!!! I am think up top and my port stuck out like a funny looking bottle top. It was bothersome to me. I took it out 4 months after I stopped treatment. My doctor said protocol is to leave it in for a year but then when I made the choice to take it out he said "That was a good choice. I just had to tell you that because that is the recommendation but it was good that you removed it" ..... so though I cannot give you any medical advice, for me and my peace of mind, I had it removed. If I need it again then I will get it put in again on the opposite side.

      over 3 years ago
    • LuckyGirl's Avatar

      I'm keeping my port as long as I have to have scans multiple times a year... Getting the contrast solution via port was sooo much easier than the first time, when they put it through my hand. My hand was sore for weeks afterwards, and my port area didn't hurt for a minute. I think it is a wonderful invention, and I barely think of it unless someone hugs me really hard. I noticed that the bump will show when I wear a bathing suit, but whatever!

      over 1 year ago

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