• Has Anybody Like ME NOT taken Chemo and Radiation?

    Asked by barryboomer on Wednesday, July 16, 2014

    Has Anybody Like ME NOT taken Chemo and Radiation?

    IF SO....did you have intense negative Push Back from Family, Friends and Docs?
    How did you cope and how are you doing.

    30 Answers from the Community

    30 answers
    • CAS1's Avatar
      CAS1

      Chemo and radiation and surgery saved my life..Not doing it cost Steve Jobs his.

      I took alot of chemo and radiation and I am now almost 90& back to normal.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      Glad for you CAS1...Way to go.
      I am NOT saying what I'm doing is for anybody but ME....Just wondering if there is anybody else on this site that is forgoing the Treatments.
      I Hope you live a long and Fruitful LIFE.......!!!!!!!!!!!!!!!!!!!

      over 6 years ago
    • LaurieCP's Avatar
      LaurieCP

      Hi barryboomer,

      I opted for chemo/radiation and I've regretted it ever since. It wasn't too bad during the treatment but a year and a half post treatment I am really unsatisfied with my quality of life. If I lived in Oregon I would opt for the right to die. My cancer never went into remission and I've made it very clear to my family I'm not having anymore treatment. They've been incredibly understanding and totally get that QUALITY of life beats QUANTITY of life for me. They don't want me to suffer anymore than I want to.

      As a cancer patient I found I was judged for using Western medicine, and if I had chosen to forgo it I would have been judged for that, too. People are going to think what they will, and some will be very vocal and even condemning. In the end, you do whatever the heck you think is best for you.

      Much respect, love, and peace,
      Laurie

      over 6 years ago
    • amontoya's Avatar
      amontoya

      I know people who have opted out in the end but I don't know anyone who didn't use it as the first line of defense.

      over 6 years ago
    • CAS1's Avatar
      CAS1

      The NIH / NCI and MSK the BEST cancer Hospital in the WORLD both have sections devoted to alternative medicines..That means they are investing millions of dollars into reserch to understand alternative methods and their interactions with conventional treatments.

      I have posted these sites on numerous occasions

      Should anyone be all poorly informaed as is suggested simply direct them to both sites especially since for the NIH is tax payer funded. Simply direct them to the sites for an education.

      The fact is that conventional treatments SAVE lives. What someone chooses to do with that gift of life is up to them. Indeed.

      over 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      Are they driving you crazy?
      My friend Dobbie choose not to go through chemo again when her breast cancer came back, maybe because she was elderly with other health problems. But I do have to say that she regretted it, however by the time she regretted not having treatment it was far too late to do much and she lost her life.
      And that's the problem if you choose not to try treatments, you can't really change your mind later on because you have lost too much ground....the cancer might have progressed too far to fight successfully by the the time you change your mind.
      So I would say, get scans and blood work frequently for close monitoring.
      And if what you are doing is working- tell your friends and family so and hopefully they will back off! But if the cancer is progressing...that is a different issue and maybe you should give either chemo or radiation a try? You do get through the treatments and recover, and hey I am dancing professionally again and I am 55 years old with stage IV breast cancer and I'm on chemo pills! I'm also a thyroid and uterine cancer survivor as well. I've done it all, radiation, intravenous chemos, chemo pills, surgeries, hormone blockers, and a zillion other medications and supplements to boot. I think that we can get through anything and recover if we set our mind to it!
      But again, it sounds like you take really good care of yourself and if what you are doing is working- more power to you! Let everybody know and hopefully they will back off!
      Just make sure that you are at least stable with close monitoring! Good luck and best wishes!

      over 6 years ago
    • Asanayogini's Avatar
      Asanayogini

      I was not totally on board with chemo, rad stuff but I did it any way. Just waiting to see the results. Finished 3 weeks ago. Now need a scan in three weeks.

      over 6 years ago
    • CAS1's Avatar
      CAS1

      Sing it Lily Madeline..sing it.

      over 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      p.s. Your friends and family love you and they are just worried that they might loose you. It probably seems like they are being obnoxious and pushy, but it might only because they love you so much. Try to think about that, and again if what you are doing is working, be confident! Tell them so! And hopefully that will ease their fears and then they will back off.....

      over 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      Hi Barryboomer, Listen I'm on chemo and I have to get all dressed up like a rock star and 'dressed to kill' because I am invited to a theatre opening tonight, it's for a show about a band that I performed with back in the 70s! And everybody probably expects me to look like I did when I was a teenager, yikes! And I'm on chemo and gosh darn it all, I'm going to pull it off somehow! I'm just saying, if you ever do decide to do chemo it won't keep you from singing and writing- I'm sure of that because you have too much spirit!

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      It's been 10 months and NO Symptoms yet and most of my visible nodes are the same size but a few larger. I feel great and living my life. THERE ARE Many People who have NOT Done chemo and radiation and are doing great.....I swore if I ever got cancer I wouldn't but it's hard to say never. I'm 69 tomorrow and feel 20 BUT What the Heck......we all get something and die. I've contacted Hospice already and they have my information and when or IF the time comes I'm going there for the Morphine and by then Florida will have Legal Medical Pot WITH the THC...that's how I'M going out and UP...... I believe that the Treatments Ruin the immune system and other parts of our body SO Much that in MOST Cases even after the Killing it's too late for the immune system to keep the cancer at bay. It never really is gone just small amounts and as I said before....They don't need sex as the cells just divide and the process starts all over again. Hugs to ALL!!!! Check out my Song "AFRAID TO GO TO THE DOCTOR" on barrydbutler channel on youtube. Still writing songs after all these years and crap.

      over 6 years ago
    • Carool's Avatar
      Carool

      Barryboomer, enjoy the rest of your 68th year, and happy and HEALTHY mirthday tomorrow!

      over 6 years ago
    • Gumpus61's Avatar
      Gumpus61

      Gutsy move Boomer.........best wishes

      over 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      Have a wonderful, fun, and HAPPY BIRTHDAY tomorrow! Here is to many, many more!!! :-)

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      THANKS....After the Pet Scan showed it in 5 different places still in the lymph system I really didn't think I'd last till my Birthday....now I'm shooting for Christmas....God ONLY gives us so much time and we don't know when we wind up in The Departure Lounge....lol

      over 6 years ago
    • KLC's Avatar
      KLC

      Happy Birthday Barry ! I told you about my vendors wife a couple of times right? She's still going strong - she had chemo for lymphoma and it didn't respond. They tried another form and it didn't respond. She went all natural over 10 years ago. Dr's were baffled when she tested cancer free. Let's hope the same for you. From your postings it sounds like you're doing almost everything right. Let's all hope you celebrate many, many more birthdays before ending up in the departure lounge : )

      over 6 years ago
    • Schlegel's Avatar
      Schlegel

      I had a friend with follicular lymphoma who chose to treat his cancer with diet (a lot of juicing) and some other more natural treatments. By the time he accepted chemo, it was too late. He is now part of the grass and trees in Wake Forest as he chose a green burial. Barry, have you considered other treatments such as targeted therapies or immunotherapy. These are not chemo and only affect cancer cells, not normal cells, so there are significantly less side effects.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      Hey Schlegel....NO....If I die it's my time...getting old anyway and I don't want to get sick from any treatments. Treatments seem to only work for a time with My Kind of Cancer SO....I believe My chances are just as good this way. I Feel Great. Nobody ever promised us Eternal Life HERE.....lo...When it's over it's over. I'm 69 today and if I don't make it to 70 it's ok.....I love GOD who gave me 69 Great Years and I'm ok with that. My statement and query to GOD every night is Heal Me, Use Me or Take me. I'll take my chances in the Next life....this ain't the greatest. The entire world seems to be on fire and at war.....UGH!!! Just about HAD IT.....lol
      BUT thanks for you concern......I really appreciate it.!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

      over 6 years ago
    • Schlegel's Avatar
      Schlegel

      Happy Birthday, Barry!!!

      over 6 years ago
    • CAS1's Avatar
      CAS1

      Well the fact is that 5% of all people told there was no more that could be done for them walk out of major cancer centers each year and are alive 5 years later with no treatment.

      5% of several million people is alot of people..

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      Nobody really knows what the heck to do.
      MOST are scared and don't know anything and do what the Docs say...what else?
      Not easy going the opposite direction with SO much pressure from family and friends AND other Doctors.
      For my kind of cancers everybody seems to get the CHOP......
      You can't get the targeted immune therapies until all else fail....

      over 6 years ago
    • CAS1's Avatar
      CAS1

      I know several people who took chop and are cured Barry..

      I just posted my photo to a number of freinds and everyone cannot beleive how good I look and that I look 10 years younger than my age. And I have taken way worse than CHOP and I took HIGH Radiation..then surgery and then more chemo.

      I made it..and I feel really good now..I can almost run again and I lost a great deal of lung capacity..

      Barry. I ask you to think long and hard about what you are doing. Chemo and Radiation saved my life. I put myself in a trance..and took it all..And here I am..so far one of the lucky ones.

      I give all the glory to God. I thank him everyday for my life and how I can make someone else feel good. All the glory to him. He put the tools in the hands of the Doctors.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      I give all Glory to GOD also.
      I'm doing fine.....NO I've made my decision and I'm comfortable and I expect to be FINE....and Healthy. IF NOT.....so.....Got to die of something.....I'm ready to go if The Lord Calls. I don't BELEIVE HE wants me to put Poison in my Veins and Be nuked like in a Microwave.
      MY Decision....Have an older wife 74 and I have no children and that's it.
      THANKS for all concern. I'm NOT the only one doing this with good outcomes....they just aren't on this SITE...BUT I love this site and all the people. God Bless.....and Hugs to ALL.
      Be Brave and Stay on Course.
      B

      over 6 years ago
    • Schlegel's Avatar
      Schlegel

      Barry, I support your choice even though it is not the same choice I would make. I'm 69 too and I think there will come a time when I do make the same choice.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      Hey Schlegel....Thanks for the support....I need it.
      I've always been a Maverick so why should this time be any different.
      I'm doing the best I can and scared most of the time...JUST not sick from chemo, radiation and the cancer. Glad for feeling good today and I just finished recording a new song.
      I've written about 35 songs in the past 10 months and IF I was suffering from treatments NONE of them probably would have been written. That's who I am and God's been sending me songs since 1967.....Love him for it and it as enriched my life. I hope a few of my songs have done the same for others. I believe IF we WAIT to do what I'm doing till all the treatments stop working ( and that usually happens eventually ) it will be too late to revive my immune system.

      over 6 years ago
    • doebuns' Avatar
      doebuns

      Hey Barry! Finally saw my oncologist this week after bone marrow biopsy and pet scan (can't wait to see those bills). She wants to start me on RCHOP next week and I'm looking for alternatives. After insurance, I'll be out about $5000 just for the diagnosis. That is disgusting to me. Will post any answers I can find.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      RCHOP is supposed to be pretty tough.
      Whatever you decide.....GOOD LUCK !!

      over 6 years ago
    • ibdragon2's Avatar
      ibdragon2

      I am doing kind of a combo package right now of chemo and IV vitamin C therapy. There are many docs out there who think the IV vit C therapy is mumbo jumbo but after three cycles of R-CHOP and the Vit C therapy once or twice a week, my PET scan came back clean. When I was diagnosed, the PET lit up like a Christmas tree. My onco wanted me to do two more after the clean PET but I agreed to only one and to continue the Vit C therapy for a least two more months. For Lymphoma the IV Vit C therapy has been demonstrated to be extremely effective and without any horrible side effects!!!

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      I wish I could get IV C but I live in a small town in central Florida and I can't find that anyplace....PLUS it's more money that I can afford. $100,000 they will pay for Poison but nothing for something like this....ugh

      over 6 years ago
    • DJS's Avatar
      DJS

      R-CHOP was fine. I'm not saying I'd choose it for my next vacation, but it was nowhere near the sad, sickness-filled existence I anticipated, and I actually was able to make it a very positive, fun experience. My last chemo session was in December, and I think I've enjoyed every day since then at least twice as much as I did every day that came before.

      As for the financial cost, well, we're dealing with that. I like living long enough to complain about it.

      We all have to make our own choices. Barry, I am really happy for you that you are so at peace with the road you've chosen. For those of us who take a chance on treating our cancer, the road can get bumpy -- my life's road has always had potholes -- but I'm enjoying a nice, long ride. To each their own.

      about 6 years ago

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