Thanks everyone, I am staying with nexavar. I let my hands heal and am starting at a lower dose, per onc instructions. And mspinkladybug I have been using aquaphor since I still have a ton of it around from my Rad treatments, and as long as I am vigilant about applying it, it seems to help.

I took Gleevac about 2 months ago. I was only able to take it for 5 days. I could not handle it(the chemo I did was easier than that pill). I had a consant headache, my whole body was swelling up from fluid, and I was consantly throwing up I couldnt even hold down water.

Branden don't know what exactly the tumor is you have but my husband has a desmoid tumor and was on nexavar but do to the hand and foot and getting extremely nauseous he went off of it have to go back to oncologist to see what else we can do.
I have found a great site on facebook its the DTRF (desmoid tumor research foundation) the ppl talk alot about all treatments
and you can ask them what they have experienced!!! hope it helps you with questions!!