• has anyone been diagnosed with Neuroendocrine tumor of Liver as primary site? No one has been able to find any other location.

    Asked by susie54 on Friday, April 13, 2012

    has anyone been diagnosed with Neuroendocrine tumor of Liver as primary site? No one has been able to find any other location.

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    3 Answers from the Community

    • saltermd's Avatar
      saltermd

      I am not aware of a primary liver neuroendocrine cancer. These are almost always metastatic, but in some cases the source of the initial cancer is never identified (occult). I would question the original diagnosis...

      over 5 years ago
    • waynej's Avatar
      waynej

      I had a neuroendocrine tumor on my pancreas, which was removed with a whipple in oct.2011, in all my research I did not find where the liver was a primary site, mine has mestasized to my liver but the pancreas was the primary.

      over 5 years ago
    • edbellinger's Avatar
      edbellinger

      I have survived 9 years and started treatment last November. Treatment became available within the past year.

      over 5 years ago

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