• Has anyone been referred to a pain specialist for severe back problems and had an MRI which showed a possible connection to past cancer?

    Asked by ArizonaCarolyn on Thursday, September 3, 2020

    Has anyone been referred to a pain specialist for severe back problems and had an MRI which showed a possible connection to past cancer?

    Even if you are seeing a pain specialist for other reasons (LIKE PAIN) I would be interested in hearing about your experiences. He told me I have the worst back problems he has ever seen. I don't feel comfortable having him do a procedure which I would go under general anesthesia for and would do in his office. I did not have the MRI with contrast dye that he wanted me to have but 5 weeks ago I did have an MRI without dye. It looks very clear to me. I have mixed feelings about the possibility I may have made him angry and he won't want to see me again. I had to follow my gut feelings about the dye with my kidney disease. When a doctor orders a test or whatever for you and you don't have it done, has anybody had a doctor get mad or even fire you as a patient or maybe even better you fired the doctor? He IS the only one to prescribe anything for my severe pain. I
    have a compression fracture in my L5 lumbar and disc problems but the fracture is reason for pain. Thank you.

    7 Answers from the Community

    7 answers
    • Bengal's Avatar
      Bengal

      Doctor works for you. You do not work for doctor. You have every right to make these decisions and a "good" doctor should respect that. I have found if I can have a conversation with doctor over issues of concern we can usually come to a point of agreement. I wanted to get off medication. I explained to doctor my reasons why. I am off the medication.

      25 days ago
    • GregP_WN's Avatar
      GregP_WN

      Wow, you have a lot going on. Sorry for your position you find yourself in. As Bengal said, You are the one in charge. The doctor may not want to do something that you suggest based on safety, required, not necessary, etc. Ask lots of questions. WHY? is one of the best questions we can ask our doctors. Make them tell you why they think that's the best thing we could do. Get back to us and provide all the information you can. lots of people hear ae happy to help.

      25 days ago
    • Teachertina's Avatar
      Teachertina

      I fired a doctor who strung me along for 6 months giving me antibiotics for pain I was having in my side, didn’t do much testing, no scans, until I insisted on getting a CT scan. He ordered one for the next morning. That’s when a grapefruit sized tumor was found in a kidney! Surgery a couple of weeks later saved my life. I got my records from him and left his practice, talked to a lawyer, but could not do anything because I lived. I did file a complaint though! I’ve had 2 recurrences of the cancer since then, which may have been prevented had it been caught sooner. If you don’t feel good about a doctor, find a better one!!

      25 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I never have contrast when I have my CT scans because I developed a very deadly allergy to the contrast. The radiologist complains about it sometimes, but when my oncologist and I have looked at the scans, they look plain enough to me. I'm willing to take the chance of the radiologist and then my oncologist later missing something than the chance of an allergic reaction putting me into shock.

      Some years ago, I had a tumor on my collarbone begin to grow. My oncologist and I differed on what we thought the next treatment plan should be. He wanted me to wait around on another clinical trial that was forthcoming and I wanted to have it radiated away. I went with what I wanted. I have to say that it took a bit of time before my doctor and I had as easy a time with one another as we had had before I decided to do what I wanted, but we are now as easy as ever with one another. He knows I'm not blind lamb who will do just what he says without having my own opinion and, in the end, he SHOULD respect that, even if he doesn't.

      It is your life and in the end, all decisions are yours!!! If that doctor won't accept that, then fire him for another who has more respect for you.

      25 days ago
    • JaneA's Avatar
      JaneA

      Even though my kidney function is normal, I always have to have my blood work done before a scan to check my renal function because I always have to have contrast. I'm sorry that you're experiencing this.

      23 days ago
    • BoiseB's Avatar
      BoiseB

      I have had multiple spine images, before, during, and after cancer. The last one I had was last week. Most of the imaging was done because of falls or other accidents. The the Dr. who ordered the MRI actually sent the MRI to my oncologist who suggested that they both should get a second opinion. It was determined that the anomaly was not cancer. Several doctors working together helped with my pain problem. Please get a second opinion you need a Dr. who is willing to work with your other Dr.s and one who is open to other opinions.

      23 days ago
    • andreacha's Avatar
      andreacha (Best Answer!)

      ArizonaCarolyn - I'm sorry to hear of your problems but I do know of your pain if you indeed have a compression fracture. I have had two - each at opposite ends of my spine. I was in my Oncologist's office one day and was in so much pain and didn't know why. He asked that if he could arrange for an emergency MRI would I go. I agreed. He was able to set it up. It also was without contrast because of my kidney cancer. It was a full scan, neck to bottom. As the Tech, who I knew well, helped me off of the table he handed me a brochure that said Kyphoplasty. He explained what it was and I immediately went back to the Oncologist - in tears. We talked and he explained the procedure to me. It is not done in an office but in a surgery suite at the hospital. It is performed by Interventional Radiologists. These are Radiologists who have completed the advanced training for repairing the fracture. The simple way to describe it is, as you said, done with sedation. Normally takes 30 minutes for each repair. I'm told that a needle type syringe in inserted into the spine (larger than normal size) and all of the loose bone is removed (suctioned out) from the area. That same area is then filled in and repaired with a cement using a similar instrument. You are in recovery for 3 hours flat on your back while the cement sets. It's considered an out-patient procedure. I suffered some complications due to my particular health and had to stay in the hospital the second time but this is not the norm. I learned that all it could take is a ever so slight twist in our actions at any time, bending over incorrectly, etc. The older we are and not on medication for our bones we are more susceptible to fractures. I've learned never to stretch up to reach something. I always have long rubber ended tongs to help me. And I had to learn that I should never reach down into my large tub washer. (2nd fracture). Have a set of tongs there now too. Speak to your Primary or Oncologist to send in orders for the procedure. You will have so much relief. Let us know how you do.

      23 days ago

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