• Has anyone ever been told they have cervical cancer and then told they had a normal pap?? please help :(

    Asked by Dani on Saturday, August 11, 2012

    Has anyone ever been told they have cervical cancer and then told they had a normal pap?? please help :(

    12 Answers from the Community

    12 answers
    • Cheryl2's Avatar

      That's a hard one. Have you had another pap for second opinion? (not fun, I know)

      about 4 years ago
    • SandiD's Avatar

      Did they ever do a biopsy to be sure? If it were me I would see another doctor for a second opinion. Good luck to you!

      about 4 years ago
    • nancyjac's Avatar

      Both pap smears and biopsies are examined by a pathologist, not your doctor, so seeing another doctor isn't going to change anything. False negative pap smears aren't all that uncommon. If your were diagnosed based on a cervical biopsy, that would be the more reliable result.

      about 4 years ago
    • Dani's Avatar

      I go in Wednesday and then they send me for a biopsy. All of my pap smears in the last six years have been bad and last year during a colposcopy they found the cells. I am really scared about the biopsy because of the past results. The doctors seem to think it is very likely cancer. I am experiencing tons of pressure. Has anyone had symptoms like back pain, constant pain and pressure in pelvis, bleeding easily, and feeling completely down and fatigued? It is getting to be a lot to deal with.

      about 4 years ago
    • carm's Avatar

      Hi Dani, I am a nurse who specializes in oncology/ end of life care. It does happen where a patient has gotten cervical cancer with normal paps but when you get a pap, do you ask for a copy of the results? Most women don't and then without the results in your hand, normal becomes a word subject to many interpretations. It could have said ASCUS. which is atypical squamous cells of unknown significance and there are other things such as this that would raise suspicions if YOU saw it but if not, how can you know? Get a copy and read it. You might be surprised that what is described as normal might be suspicious after all. Good luck, Carm.

      about 4 years ago
    • Dani's Avatar

      Thank you so much Carm. I will look into it for sure. That is what happened to me last year. I had cells they wouldn't have seen without the colposcopy so I get sent out tomorrow to do a biopsy. I will know more then. Thank you so much for your help and I will let you know what happens. Xoxo Dani

      about 4 years ago
    • carm's Avatar

      Dani, glad I could help and when you get that report, this should help you to understand:

      ASCUS (Atypical Cells of Undetermined Significance)
      This definition signifies that your cervix contains atypical squamous cells that the pathologist is not 100% sure is due to a benign process.
      Recommendation...3 follow-up options:
      1-Repeat Pap Smear in 4-6 months
      2-Perform an HPV test ("reflective HPV test" automatically with ASCUS diagnosis)
      3-Undergo Colposcopy
      ASCUS-H (Atypical Cells of Undetermined Significance-Cannot Exclude High-Grade Intraepithelial Lesion)
      Further catagorized as "ASCUS favor HSIL" or "ASCUS, cannot rule out HSIL."
      These diagnoses tell the clinician that the pathologist is very concerned that the atypical cells she is seeing may be coming from HSIL. In fact, a large percentage of women with this diagnosis will prove to have an HSIL, somewhere around 40%.
      Recommendation-Colposcopy and biopsy of any worrisome areas. HPV is not recommended in this instance because we know that the vast majority (over 80%) of women with ASCUS, favor HSIL pap results will have a positive HPV test.
      SIL (Squamous Intraepithelial Lesion)
      A diagnosis of either LSIL (L=Low-grade) or HSIL (H=High grade) on a pap smear indicates that the cells present on the pap smear have come from a precancerous lesion, either low-grade or high-grade.
      Recommendation-Colposcopy and biopsy of the cervix. The difference between cervical biopsy and pap smear is that a pap samples cells on the surface of the cervix. A biopsy is a "mini-excision" of a tiny portion of intact tissue that allows the pathologist to see a cross section of the entire depth of the cervical lining. A definitive diagnosis cannot be made until a biopsy has confirmed the pap smear diagnosis.
      LSIS (Low-Grade Squamous Intraepithelial Lesion)
      For LSIL diagnoses, the 2007 ASCCP guidelines for most women recommend cervical colposcopy followed by a biopsy of any visible lesions. There is a sensible rationale behind recommendation. We know that a significant number of women with LSIL on their pap smears will later prove by biopsy to have an HSIL, the most worrisome lesion for persistence and cervical cancer. As an interesting note, it seems that just the act of cutting into the cervix seems to speed up the disappearance of an LSIL. It is thought that the trauma to the cervix may stimulate a womans immune system to rid itself of the lesion at a faster rate!
      Post menopausal women are unique in that they can sometimes have abnormal pap smears that look very much like dysplasia but reflect non-HPV related changes called "Postmenopausal Atypia" for which they don't need treatment. This atypia may disappear on subsequent pap smears.
      HSIL (High-Grade Squamous Intraepithelial Lesion)
      Recommendation-confirmation by colposcopy, tissue biopsy, followed by removal of loop procedure (Loop Electrosurgical Excision Procedure-LEEP). HSIL diagnosed on the cervical biopsy tissue can be divided into two levels of severity: Moderate dysplasia and Severe dysplasia. "Watchful Waiting" recommended for moderate dysplasia in adolescent females, excision with severe dysplasia.
      AGUS (Atypical Glandular Cells of Undetermined Significance)
      "Atypical glandular cells, not otherwise specified" can be either endocervical or endometrial cells.
      Recommendation for endometrial cells-Endometrial biopsy
      Reccomendation for endocervical cells-Endocervical curettage, sometimes biopsy. If from endocervix, then the concern is that you have adenocarcinoma in situ (AIS). Two types of diagnosis-AGUS, or AGUS, favor neoplastic.
      AIS (Adenocarcinoma in Situ)
      This diagnosis signifies a definite endocervical precancerous lesion related to HPV infection.
      Recommendation-Loop Procedure or Cone Biopsy (Cold Knife Cone).
      Squamous Cell Carcinoma and Adenocarcinoma
      Invasive cancers no longer restricted to the cervical surface lining cells but have invaded into the underlying tissue. By invading, these tumors now have the ability to metastasize elsewhere in the body.
      Inflammation of the Cervix.

      Good luck, Carm

      about 4 years ago
    • Dani's Avatar

      I went in today and they told me if the tests go as they think they will then I will be in surgery in the next two months. All of that has come back positive yet they never sent a biopsy in or did a leep or loop procedure. I really can't wait to get my treatment going. I can't believe that this has been going on for six years! I did look over it and its HSIL. I am so upset at my old doctor and I feel so greatful to have my new one. Thanks for all the advice you have NO idea how much you have helped me! I hope to hear from you soon! Xoxo Dani

      about 4 years ago
    • beauty's Avatar

      i was told that i had a normal pap smear, but a few weeks after my report, i was having alot of pain and had a urine test where there was blood in the urine. i was told to go to this dr who was a onologist. i thought why am i here, i dont have cancer. i was told i did have cancer and i just kept denying the fact until i had more tests. i really was so mad at my regular obgyn. when he did the test of inserting his fingers and feeling along with the instrument they insert, he would of know something wasn't right...ugh!!!!

      about 4 years ago
    • Devon's Avatar

      How's everything going now Dani? I was diagnosed when I was 25 and went through several pap smears, and procedures before it lead to surgery.

      about 4 years ago
    • weezyschannel's Avatar

      I have been told I had a normal pap but then had stage IIB adenocarcinoma!! yes! It was a roller coaster. I was told nothing was wrong with me and I was bothering them,went to another doc who said I had cancer, went for another opinion and said I had endometriosis, went back to the doc that said I had cancer and told him what they said, and he said NO! You have cancer...(turns out he was right)

      about 4 years ago
    • weezyschannel's Avatar

      Oh boy..I have been told I had a normal pap and had cervical cancer..then I was told I had endometriosis and not cervical cancer, then was told , no you have stage IIB CC..had IIB as it ended up. You can read my whole story if you wish at aboutcervicalcancer.com or read my journal. I went through quite a process.. It took 6 months for diagnosis

      about 4 years ago

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