• Has anyone ever had a hard time with an oncologist that the only way to deal with it was to find another one

    Asked by Nyctimes on Wednesday, August 29, 2018

    Has anyone ever had a hard time with an oncologist that the only way to deal with it was to find another one

    7 Answers from the Community

    7 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      I was very fortunate to have been referred to a good gynoclogist onchologist for my cancer treatments, but I have had this experience with a gp. Once diagnosed with cancer,my gp ( who was new to me ) ,proceeded to give me an approximate expiration date. That is when I got up and walked out of his office five years ago. Along with education and experience,your doctor should be able to communicate well with you.and both of you should have a meeting of the minds concerning you medical care moving forward. if possible , get a second or third opinion before settling on your primary onchologist. You have to be your own best advocate for your medical care, so if things do not gel, do as you did and walk.

      about 1 year ago
    • GregP_WN's Avatar
      GregP_WN

      I've not had to change oncologists, but I did change my PCP. Another doctor I had to block the door so he couldn't leave until he answered questions that we had. Some of them are only here to collect the check, they need to be fired.

      about 1 year ago
    • po18guy's Avatar
      po18guy

      At the start of this, in my naiveté, I went to a local oncologist (for a suspected blood cancer). I had been told by an independent biopsy surgeon to "run for your life" if I ever heard the word "wait" from a doctor. Well, the local oncologist did a full production procedure room bone marrow biopsy (padding his retirement?) when the procedure can be done in-clinic. Anyway, the local pathology lab found no malignancy. Doctor wanted to "wait" and see what happened. Wait? We ran.

      DW had made an appointment at Fred Hutch/SCCA and we consulted there with a hematologist in his 30s with an encyclopedic knowledge of lymphoma. He ordered more sophisticated testing on the biopsy sample and, as it turned out, it was a rare and aggressive T-Cell Lymphoma. That same hematologist had, just the year before, decided to specialize in those rare T-Cell Lymphomas. One month ago, we toasted 10 years together.

      Rather glad I ran for my life.

      about 1 year ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Not me, but I would in a heartbeat if I needed to. In a way, I did this after chemotherapy quit working for me. My then-oncologist wanted me to go to a particular place to try to get into a clinical trial. I think I would have still gone to him and undergone the trial there ... I don't really know. Anyway, that place did not sense the urgency I felt to get the ball moving right away and didn't bother to contact me or anything else until after I had decided I was going to enter a trial at a facility that felt the same urgency I felt to get treatment started.

      Once they learned that I was going elsewhere, they were all about trying to get me in a trial at their facility. But, I had already committed elsewhere and I have never been sorry about that.

      I was going to continue going to my first oncologist ... along with the oncologist overseeing the trial I was in at a different hospital ... but I only did that once. I "fired" the first oncologist, not because I didn't really like him, but because I really didn't like the staff at that facility. When his nurse refused to complete paperwork to help me get disability, I canceled all appointments with them and dedicated myself to the hospital where I was in the trial Again, I've never been sorry for that decision either :)

      It is YOUR life. No one cares about you as much as you do. And, no one will look after you as well as you can look after you. If you do not feel comfortable with your current doctor, ditch him or her.

      about 1 year ago
    • Molly72's Avatar
      Molly72

      I fired the entire hospital system in my area, and went with the other one. There were two in my region.
      What a difference, kind nurses, competent doctors, a caring staff, and a clean hospital even with better food!
      As LWC said above, YOU are in charge of your life, you are best judge of who takes care of you.
      If you do not like or trust them---- find a new and better one.

      about 1 year ago
    • GeeKay's Avatar
      GeeKay

      I have learned that I need to be my own advocate and have paid out of pocket and out of health care network for consultations. That has added years to my life. I also am quite insistent and verbal when I want something.

      Doctors are human and have their limits in their knowledge base, creativity capacity and curiosity about research--- just as we all do. The incredible surgeon that did my CRS with Hipec surgery did a study with other doctors to investigate the knowledge base of gastroenterologists, surgeons and oncologists in the Washington DC area. The study was small BUT the results showed that the respondents did not have enough knowledge about the procedure to recommend it to patients. Kind of shocking!

      When you feel someone is not the right fit for you for whatever the reason--- move on. We only get one life on earth and we must surround ourselves with people who can do the most good.

      about 1 year ago
    • GeeKay's Avatar
      GeeKay

      I have learned that I need to be my own advocate and have paid out of pocket and out of health care network for consultations. That has added years to my life. I also am quite insistent and verbal when I want something.

      Doctors are human and have their limits in their knowledge base, creativity capacity and curiosity about research--- just as we all do. The incredible surgeon that did my CRS with Hipec surgery did a study with other doctors to investigate the knowledge base of gastroenterologists, surgeons and oncologists in the Washington DC area. The study was small BUT the results showed that the respondents did not have enough knowledge about the procedure to recommend it to patients. Kind of shocking!

      When you feel someone is not the right fit for you for whatever the reason--- move on. We only get one life on earth and we must surround ourselves with people who can do the most good.

      about 1 year ago

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