• Has anyone ever heard of or dealt with fibroid dysplasia?

    Asked by Barbara on Sunday, July 1, 2012

    Has anyone ever heard of or dealt with fibroid dysplasia?

    It is a rare compliction of radiation. I have a very sore 'lump' on my right jaw which no doctors have had any ideas about what to dCancer. Rarely, an affected area of bone can become cancerous. This rare complication usually only affects people who have had prior radiation therapyo.

    4 Answers from the Community

    4 answers
    • nancyjac's Avatar
      nancyjac

      Do you mean fibrous dysplasia? Fibrous dysplasia causes abnormal growth or swelling of bone. Fibrous dysplasia is not a form of cancer and does not increase a person’s susceptibility to cancer. This disorder is usually diagnosed in childhood or early adulthood and can affect one or several bones and to my knowledge is not caused by radiation. If you are referring to something else, I'm not familiar with that.

      about 5 years ago
    • Barbara's Avatar
      Barbara

      Thanks, Nancy. I do mean 'fibrous dysplagia' The information I finally found says it mainly occurs in childhood but is also a rare complication of radiation and occurs mainly in persons 60 years of age or older. This 'lump' started after the completion of radiation on September 14, 2011. It was accompanied by lymphadema bujt was verhy sore and so we waited 'until it wasn'sore to work on getting rid of the lymphadema. The soreness amd the lymphadema have never gone away but the lump has gotten bigger. I have been advised to ;perhaps have an ray of that area of the jaw to see if this fiberoid mass has attached itself to the bone. Will see what other info I can find. If you find anything else, let me know.

      about 5 years ago
    • nancyjac's Avatar
      nancyjac

      Barbara,

      Did you have any surgery? If so, another thing you might want to look into is if it might be a seroma, which is a fluid pocket that can occur due to either surgery or radiation or even an injury, like a fall. I had them after my mastectomy and plastic surgery that was needed to close the wound. It was diagnosed with a sonagram and drained by needle aspiration, but has since refilled.

      about 5 years ago
    • Barbara's Avatar
      Barbara

      The seroma is certainly a possibility. I actually had two surgeries to remove the tumor under my tongue.............the one done in November of 2010, was done through my mouth, the second one done in May of 2011 when the tumor returned in the same spot, was done from the outside of my throat on the right side under my jaw and resulted in two large scars. This time I had to have 30 treatments of radiation and that's where some of the trouble began.....loss of hearing in my right ear, damage to the thyroid gland, real damage to the swallowing technique ( part of that had been done in the first surgery when I had 1/3 of my tongue removed.) I did have major lymphadema under my right jaw which made me look like a turkey! That has been pretty well taken care of with massage treatments. You mentioned a sonagram . Haven 't heard of that yet so I might suggest that to my speech pathologist. Thanks for the suggestion! Hope you are doing okay now.

      about 5 years ago

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