• Has anyone expericed repeated unexplainable infections/pain after a complete right axcillary lymth node dissection?

    Asked by Mindy91 on Saturday, June 30, 2012

    Has anyone expericed repeated unexplainable infections/pain after a complete right axcillary lymth node dissection?

    Doctors have surgical drained area, aspirated the area twice, hospitalized three times for IV antibiotics, sent to physical therapy twice each time I had to stop because I develop an infection, currently finished 4 weeks of outpatient IV antibiotics. Referrd to infectious disease doctor: failed first oral antibiotic, and put me on a different oral antibiotic for the next two years. Referred to a pain management physician: taking oral anti-inflamatory drugs and have had 4 anti-inflamatory injections. My oncologist now wants to refer me to a neurologist to see if they can identify if my pain is from nerve damage. All my doctors are stumped and don't know why I keep having reoccuring infections and uncontrolable pain. Several peopele including my family physician thinks I should go to Mayo for a second opinion. Before I talk with my oncologist I was curious if anyone has gone through complications like this and did any treatments work?

    5 Answers from the Community

    5 answers
    • Rose's Avatar

      No, I haven't, not yet anyway. I had my surgery on 6/12/12. So far so good. I'm sorry that your going through all of those complications. As if having cancer and going through those treatments weren't enough. My rookie thoughts are that since you immune system is down, it's making you susceptible to infections and you need to boost up your immune system. After each of my chemo treatments I was given Filgrastim 480 MCG/8-0.8ML Inj., eight syringes to boost up my white blood cell production. It stimulates the bone marrow to produce white blood cells. I hope your situation gets resolved.

      over 4 years ago
    • arashkya's Avatar

      I had a large area of my lymph nodes removed from just under my right arm. I can't say that I had the pain and horrible experience that you're having... but I do still have some pain.

      The best way for me to describe it would be.... like touching a life wire. Whenever any sort of pressure it applied to it, I feel the 'twinge'. I know that it's nerve damage, and it's stayed the same for 4 years since the surgery.

      Perhaps the best way to help the doctors figure out what it is.. find a way to describe the pain in the most 'dumb' way possible. Something that a little 6 year old could understand. Then try to find out when that pain happens. Does it happen on it's own, or only when touched or prodded? Things like that help.

      Good luck!!

      about 4 years ago
    • Susan_Steel's Avatar

      So this is going to sound crazy but did you check the count on all equipment used? Nothing was left in or underneath skin surface. My guess is theSN was done invasively but I just have to ask bkz crazier things have happened. I'm assuming you we're scanned again for any chance of disease progression from another node in body.

      almost 4 years ago
    • Susan_Steel's Avatar

      Oops that is what I get for typing in a rush. I meant to say that I assume SN was done non-ivasivley.

      almost 4 years ago
    • Dean1's Avatar

      I had my lymths out 18 months ago and I have now got a infection under my arm its like a little spot and is painful my armpit feels really heavy did you have the same feeling in yours thanks and good luck

      almost 4 years ago

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