• Has anyone experienced being told by oncologist their tumor is not operable due to the location. Have alternative treatm

    Asked by Naturegirl on Thursday, January 19, 2012

    Has anyone experienced being told by oncologist their tumor is not operable due to the location. Have alternative treatm

    13 Answers from the Community

    13 answers
    • TomLand's Avatar

      Not personally but in my experience in looking at options have read about and met with Docs. I learned my tumors are not located near critical areas as you mention, which is good for me. I also learned that if I had that challenge, I would quickly investigate proton therapy. It is a type of radiation treatment that can be focused extremely accurately and used to attack tumors in exactly those type locations. I have met with Dr. Okunieff, the Director of Radiation Oncology at Shands Medical Center, University of Florida. They have such a device in their arsenal, it is still a fairly rare form of treatment but something you should check into immediately. Online research by you should be able to pinpoint the location available closest to you. Use 'proton therapy' 'cyber knife' 'radiation oncology' etc. for search terms. Good luck.

      almost 5 years ago
    • GregP_WN's Avatar

      Not for me, but my mother was diagnosed with a lung tumor, and they told us it could not be operated on due to the size and intertwined amongst veins and such, and that chemo would not help. They said she would last 6 months with treatment or without, she chose to not have treatment and lasted 8 months.

      almost 5 years ago
    • Keephopealive's Avatar

      yes, my tumors are too small to operate or even biopsy...so it was just chemo but it wasn't working so now on arimidex and healthy diet and wait and see....depressed this morning..tired of it all.

      almost 5 years ago
    • RuthAnne's Avatar

      Yes. My main lung tumor was "perilously close" to my aorta. They couldn't biopsy it nor could they remove it. My only option was chemotherapy which, fortunately, shrunk the tumor considerably.

      almost 5 years ago
    • MamasLibrary's Avatar

      Yes. I had 3to tumors, 2 inoperable. The pet scan just showed that chemotherapy completely destroyed both. Now going through radiation for insurance.

      almost 5 years ago
    • Liyhann's Avatar

      Yes. I have colon cancer that has metastasized to the liver. The tumors are small, but diffuse in the liver. They were able to biopsy the tumors in the liver and it, too, is colon cancer. I am on chemo - been through the first round. Cancer enzymes came down quite a bit, but still active. I am meeting with a doctor at Johns Hopkins to see what might be the next best course. We are expecting him to suggest continued chemotherapy, but are hoping for an experimental study as well. Hope insurance pays for it......

      almost 5 years ago
    • kkimt's Avatar
      kkimt (Best Answer!)

      Hi there... I was given the same news..please don't give up..One of my Dr.'s performed the surgery on my inoperable lung cancer. I have been cancer free for over a year. Please check into Dr. Stephen Yang at Johns Hopkins. A note..mine was inoperable stage III on the upper right lobe and on my pulmonary artery. I wish you the best and will pray that you have good results. God bless:)

      almost 5 years ago
    • Mitchqc's Avatar

      My husband was told that with his glioblastoma. It is in the hypothalamus which is grand central station for the brain. He is going through chemo and radiation now.

      almost 5 years ago
    • Beverly's Avatar

      Yes, my abd tumor had grown around my aorta, IVC, and both ureters. Chemo only just had my 9th round and tumor has shrunk from 13.7 cm x 8.6 cm SUVmax 15.2 to 3.3 cm x 4.3 cm with SUV in range of 1.5. I'm going to whip this thing. Thank you God.

      almost 5 years ago
    • ejonespw's Avatar

      I was stage four non Hodgkins diffuse large b cell in liver pancreas lymph nods and Lungs said it was inoperable location number of and stage I believe r chop chemo has shrinking them considerably will get another pep scan to see after next treatment

      almost 5 years ago
    • Naturegirl's Avatar

      Thanks everyone for your answers, it is encouraging. I collected all my records and sent them over to Sloane Kattering hospital in New York. Just waiting to hear back to see if they will see me.

      over 4 years ago
    • Tendertrak's Avatar

      When anyone says that to you, you must do more research on your type of cancer, its location and see what you can find. Cancer Societies of America seem to offer great hope for those who have been given a difficult choice.

      about 4 years ago
    • wvgal68's Avatar

      I was told by my local oncologist that my tumor was inoperable, because of the involvement of the surgery to resection. Then, I went to Memorial Sloan Kettering, and was told it could be done. The did the surgery, exactly as my local said it needed done. If I hadn't gone, I wouldn't be here today.

      about 4 years ago

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