• Has anyone experienced recurrence of cervical cancer after a radical hysterectomy?

    Asked by Breezy on Wednesday, August 15, 2012

    Has anyone experienced recurrence of cervical cancer after a radical hysterectomy?

    I am having a coloposcopy tomorrow to see if my cervical cancer is back? Maybe it wasn't really all gone? I am 6 month post opt and second pap test came back abnormal and still HPV postive. I'm scared and would like to hear if anyone has experienced recurrence and how it was handled.

    8 Answers from the Community

    8 answers
    • Carol-Charlie's Avatar
      Carol-Charlie

      May I suggest that you let God know how scared you are. Ask him to take your hand ang guide you through this.. let Him know you'll follow Him where he leads you. I'm not exagerating one bit... My fear left me the instant I reached out my hand to Him. He's led me through Stage IV Ovarian Cancer... Through major surgery to remove a 39lb tumore.. then the doctor scraped it off of my intestines and euretha.... Two years of chemo.... That was almost 7 years ago... I'm still here and still cancer free. Breezy, a positive attitude will really help... stress takes a lot out of a body and can actually cause some illnesses.... Put your faith in God and in your Oncologist. Do what they ask you to do... follow their plan.... Put a smile on your face (I also used makeup and wigs) Me bald is not a pretty sight. Actually see yourself completely well. Visualize yourself hearing the word survivor... I know you're strong and you're young... Just do it.

      I write poetry... I wrote this when I was diagnosed, but prior to meeting with the Oncologist.

      I know!!
      ©2006 by Carol Notermann

      I know that I’m not in control… But Thank God that He is!
      I know that I’ve no need to plan, for the best plan is His.

      I know that I am not alone. Friends walk the path with me.
      I know that yes, I must be strong, find out what waits for me.

      I know that as in "Footprints" there's only one set in the sand.
      and I know that I am clinging, very tightly to His hand.

      Today, I'll see what doctors -- can do to help me stay
      here with all my loved ones, cherishing each day

      over 4 years ago
    • joey's Avatar
      joey

      Hi,
      I'm sorry to hear about your plight. I had cervical cancer in 1974 (carcinoma in-situ) and it was eradicated with a simple conization (after I'd been told I'd need a hysterectomy). They were confident they had removed the entire lesion and because of being of child bearing age, decided to leave the uterus intact. At that time, there was no knowledge about HPV. Now, 38 years later after my routine pap, I am told I have vaginal/vulvar neoplasia which is a precancerous condition due to HPV. This time it was treated radically with laser because the Dr. said it would be more difficult to treat if it went to full blown cancer. The dilemma is knowing that other cancers are caused by the HPV and you never know when it'll "rear its' ugly head." Unfortunately, HPV cannot be cured and it can cause problems later in life. And this also scares me, not knowing if, when or where it'll show itself again. I truly understand your fear and talking to someone about it and getting answers, staying informed and knowing you have a good medical team on your side will hopefully help you through this struggle. My best wishes to you.

      over 4 years ago
    • Breezy's Avatar
      Breezy

      Thank you both Carol-Charlie and Joey for your comments and sharing with me. It is very helpful to hear from others and I am trying to stay positive. I know with leaving this in the hands of God and my Onc team I will be ok. It's those moments of fear that get me every once in a while. It's been such a rollercoaster ride dealing with everything. I wish you both the best :) Wendi (Breezy)

      over 4 years ago
    • carm's Avatar
      carm

      Breezy, Hello I am an oncology/end of life nurse that specializes in gyne cancers. Is it possible for you to have recurrence after a radical hysterectomy? Yes it is. You have one of the few cancers driven by a virus, and a virus is very intelligent. As you can see from people who have chicken pox at the age of seven and then get recurrence in the form of shingles at age 70, a virus knows where to hide out and wait. You had the surgery but that does not mean you are no longer HPV positive, the hysterectomy wiped out the pre-cancerous cells that the HPV gave you at that time. You have to stay on top of the virus as I am sure your doctor is doing. If the cancer has returned, then your gyne onc can do a few things. You can get a Leep procedure if your diagnosis needs verification. There is chemo, radiation external or tandem Ovoid radiation. There is also the option of another type of surgery, but that does not sound like you will need that. The main thing is to remember that virus driven cancers will always try to outwit the treatments you try to destroy them with. They are highly intelligent, you have to attack them on multiple fronts. Best of luck to you, Carm.

      over 4 years ago
    • Breezy's Avatar
      Breezy

      Hi Carm,
      Thank you for your reply. I had never thought about my cancer being virus driven by the HPV, but it sheds a whole new light on the way I am thinking about it now. It totally makes sense and I will always have to be one step ahead of the game with HPV lurking around. I can't wait for the biopsy results to come back because I really thought it was too soon to see any kind of cell change or recuurence at this point (6 mo. post opt) Reason being that everything says that its such a slow growing cancer. :) Wendi

      over 4 years ago
    • carm's Avatar
      carm

      Breezy, you are most welcome. Most cancers are slow growing with the exception brain tumors. Viruses have a way of going to places where blood flow is decreased. Look at HIV patients like Magic Johnson, diagnosed in the 90s but never converted to AIDS, why? These viruses leave the bloodstream leave vital organs and hang out in nerve endings. They are patient. They meet other viruses and bacterium and exchange DNA. They pick up resistance from others. You have to cast a wider net. This is where alternative medicine can be useful. Meet with a Naturopath and let them tell you how to boost your immune system. Prescribe meds that will over oxygenate your cells. Normal cells will process excess oxygen easily but cancer cells can't, too much oxygen suffocates them. A naturopath can be very useful to you. NEVER give this disease anymore power than it has biologically. It's in your body, not in your head so never let it define you. Ignore the stigma associated with cervical cancer and more than anything...LIVE YOUR LIFE- NOT YOUR DISEASE! You will do fine if you keep your head in the ring. If it comes back and takes a swing at you, then swing back and smack back while you still feel the sting. Always maintain control. It is a guest in your house. Your house, your rules! You are a woman of teal now, they don't fight like girls, they fight like women with dignity and control. You will do fine and I am always here as are others here on this site. Best to you and always remember that old African proverb, "If you want to go fast, go alone. If you want to go far, go together!"

      over 4 years ago
    • Devon's Avatar
      Devon

      Hey Breezy! I was just wondering how things were going?! I had surgery to remove my cervical cancer and this has always been a worry of mine. Just wanted to keep in touch =)

      over 4 years ago
    • Breezy's Avatar
      Breezy

      Hi Devon! I am doing well and I am 8 months out from my initial surgery to treat my cancer. Having the HPV keeps that thought of recurrence always in my mind. I don't let it effect me every day but it is something in the back of my mind. I am scheduled for another surgery on 10/12 to remove a hard lymph node and a mass that I have had on my left side since last April 4/12. It was first seen on my PET scan that we did in April and the mass measured 8.6 cm. My doctor want to wait and see if it changed any over this time so I have had a CT scan and an Ultrasound to watch it. It's still the same size and they say its filled with fluid so I should not worry, but after everything else...you know I worry. LOL! So my Oncologist has agreed it's time to remove them and see what pathology says about it.

      How are you doing? I hope all is good :) Take care!

      over 4 years ago

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