Jeana... I had a 39lb. ovarian tumor.... It had spread to my intestine (but oncologist had had a coloscopy done and knew it hadn't invaded the intestine) it had also spread to my euretha... They said I was a Stage IV. I said I wanted to fight. I was 62... You're a strong 'kid'! I was sent to a gynicologic oncologist surgeon, new specialty. He did the surgery... My tumor was the size of a soccer ball and 39 pounds.... I looked nine months pregnant. (At 62 that's not a good look)/ Now tell them you want to fight. I had the debulking surgery... fought off a MRSA infection, and then had a PET CT Scann....prior to starting Chemo.... The scan showed that he had gotten all the cancer. During surgery the doctor had placed an I/P (interperatineal) port in my abdomin attaching it to a rib) This type of chemo infusion dumped a liter of liquid containing chemo drug directly into my abdomin. I had six 28 day cycles.. Day 1 - I/V infusion into a vein. Days 2 and 8 I/P into my abdomin.... then nothing through the 28th day.... then start over.... for six cycles. My hair started to grow back and he told me of the results of a recent study that showed that the recurrence rate of ovarian cancer droppped rapidly when the woman did the first six cycles, like I did and then went on to do one infusion a month for the next 12 months. Looking ahead at that time seemed forever... Looking back from six and half years survival.... cancer free.... it was nothin... The side effects I could deal with. Being Vane.... I thank PaulaYoung.com for all the wigs I bought and wore.... still do actually as my hair came back but not thick enough on the crown of my head to 'wear'. But hey.... My hair looks great... fingers and feet numb...little bit of pain in feet... I'M ALIVE, I'M CANCER FREE!... I have held and hugged my grandchildren... AND have held and hugged two Great Grandchildren... Jeana... You can do this dear, you're WOMAN Hear Yourself ROAR..... We are surviving this cancer in numbers too big to ignopre... ((((Hugs))))
Ovarian and Fallopian Tube Cancer Questions
Has Anyone Had An Ovarian Tumor 30cm Or Larger?
Asked by Jeana1975 on Sunday, August 5, 2012
Has Anyone Had An Ovarian Tumor 30cm Or Larger?
I ave been diagnosed with Ovarian Cancer. I've yet to meet with my new Gynecologist/Oncologist this coming Tuesday. Based upon my research, a very large tumor indicates a late stage cancer. I want to know, from anyone who may have experienced this themselves, if it is late stage and does a massive tumor like this mean the cancer has spread? My Gynecologist told me that the CT Scan could not locate my right ovary (which is where all my pelvic pain is generating). I look like I'm 8 months pregnant. She also said that I have elevated amounts of cancer cells in my uterus and rectum. Does this mean that the cancer has spread to my digestive system? If so, I'm wondering if the outlook is grim. Some of my friends, who are cancer survivors, are appaulled that I wasn't admitted the day they found the tumor for emergency surgery. Instead, I have to wait until Tuesday to meet with the Oncologist. Does this waiting mean that I'm beyond help? I'm terrified.
5 Answers from the Community
Thank you Carol, so much, for sharing your story. Now I really have hope that I can beat this! I will be brave, I promise you that! I will face this with courage. I lost my Mom to Cancer two years and some months ago, and my Dad is a Prostate Cancer survivor. I have an Aunt and Uncle on Mom's side who both are battling Colon Cancer. Dad is scared, and he's worried no matter how brave a face he wears, I can see the tears well in his eyes when we talk. I can't leave him too, so I need to fight this and I need to win not only for my sake, but for his. I hope it's okay if I 'lean' on your wisdom as I enter my own battlefield come next week. I may need your advice from time to time after my surgery. Thank you! Thank you! THANK YOOOOOU! *hugs back* I needed to hear this in the worst way, and I'm so much more confident that I can face this. If you can, I can...and you look good for having survived such a huge challenge. I'm honored to meet you, You can't know how much you've helped, and I can't express my gratitude enough. Fear turned into courage! I'm ready to fight!!
Jeana: I was diagnosed with Stage IIIC ovarian cancer in February. I finally got the nerve to read my path report a few weeks ago, and after reading of at least 5 tumors they removed, I lost track. I found out that the surgery was reported as "suboptimal" because one tumor was/is on my abdominal aorta, and I was told that if they removed it, I would have bled out at surgery, so I know that at least one tumor was left in me for the chemo to deal with.
I had been told I had about a 75% chance of remission by my gyn/onc surgeon and I have clung to that, rather than my normal, "Oh, no! That means I have a 25% chance of dying!" I determined early on to be positive and cheerful, and I have been doing very well. I am getting my 7th chemo dose this Friday, and I have one more after that at the end of the month. I was recently told that I will need another 12 months of chemo, and while I am disappointed to hear that, I am also relieved that the docs are continuing to do whatever they feel will help me to beat this.
I understand your fear. Sometimes I feel that, too. But I use "stop thinking" (which is like mentally holding up a "Stop" sign, and helps me to not get lost in that fear) and to focus on "right now". My surgeon, who sees me at each chemo cycle, has told me that I am doing better than they expected, and that my positive attitude is largely responsible for this. You have to understand, this surgeon (like so many other surgeons) basically says "Yes" "No" and "Next Question" - in other words, he is a no-nonsense, not many words kind of doctor. For him to say so much to me is HUGE! AND, he almost cracked a smile when he said it!! That encouragement meant a lot, coming from him!
I do not know my future (of course. None of us do.) but I am determined to keep my positive attitude and fight this with all that is in me. Oh, and by the way, by nature, I am NOT a positive person. Cancer has changed my outlook, my attitude, and my demeanor. I have bad days, but I am determined to give this all that I have, to increase my chances of survival and a better quality of life. And, what do you know, it is working!
I am determined to live a happier and more peaceful life, whether I have 6 months or 40 years left to live! (And I expect it to be the latter!). Even my children (I have three grown children) tell me they cannot believe the change in me, and that I am the most positive person they know, now! It is a huge life change, and I am keeping it!!
So, do all that you can to be positive, hopeful and believe in a good outcome. Please feel free to talk to me. I am new to this site, but I have a lot of wonderful things I hope to share with people here. I have never experienced so much love and support from those around me - friends, family, and even strangers - as I have since I got cancer. I am filled with hope and love!
I understand and validate your fear Jeana. I had the same fears and questions last fall when I was diagnosed with stage 3C endometrial cancer.
I have finished chemo and radiation but on a PET scan 2 weeks ago they noted a suspicious area in my descending colon. I will be seeing a
colo-rectal surgeon next week. The waiting is physically uncomfortable because of my abdominal bloating and pain. I am quite anxious about this situation and coping the best I can. Be sure to keep open communication with your medical team.......it's a big part of the healing process in my opnion.
Try to be strong and don't let the bad days beat you up. We all have them; it is normal.