• Has anyone had triple doses of Herceptin once every three weeks?

    Asked by sndlee on Saturday, January 19, 2013

    Has anyone had triple doses of Herceptin once every three weeks?

    Dr has gone from every week to every 3 since cocktails ended. Am very afraid of this! Also starting radiation soon.

    11 Answers from the Community

    11 answers
    • nancyjac's Avatar
      nancyjac

      Yes, I also went from weekly to every 3 weeks. for the remaining 8 months of treatment, including while I was in daily radiation. Other than the infusions taking about an hour instead of 1/2 hour, there was no difference.

      about 4 years ago
    • sndlee's Avatar
      sndlee

      Thank you Nancyjac. Any heart damage?

      about 4 years ago
    • nancyjac's Avatar
      nancyjac

      No heart damage. I had a MUGA scan before I started herceptin, another one at about the 6 month point, and a final one after my last infusion. There was no significant change in any of them.

      about 4 years ago
    • gogolf's Avatar
      gogolf

      I am not sure if I get a triple dose but I have been having Herceptin for 3 1/2 years every three weeks and have no problems. Sometimes I am a little tired and maybe a little nausau sometimes but it is easy to handle. I love Herceptin, it is the reason I am alive so I consider it one of my best friends. I am able to golf and enjoy an almost normal life. Good Luck

      about 4 years ago
    • SMeridith's Avatar
      SMeridith

      I had an echo cardiogram every nine weeks while taking Herceptin. I was scheduled to have the Herceptin every three weeks for twelve months. After eight months I did have heart issues....ejection fraction. My oncologist and cardiologist both agreed to stop the treatments as it could cause permanent damage. It has been six months since the treatments stopped and my heart function is finally back in the normal range, although it is not back where it was originally. I have been on major doses of heart meds to improve the problem. I was just able to cut the meds in half this week and will go back in three months for another echo. It has been scary to have to stop the chemo but also scary to have the heart issues. Just praying a lot and keeping the faith that my wonderful doctors know what is best. My cancer was HER2 but I did not have radiation.
      Good luck to you on this journey

      about 4 years ago
    • SMeridith's Avatar
      SMeridith

      I had an echo cardiogram every nine weeks while taking Herceptin. I was scheduled to have the Herceptin every three weeks for twelve months. After eight months I did have heart issues....ejection fraction. My oncologist and cardiologist both agreed to stop the treatments as it could cause permanent damage. It has been six months since the treatments stopped and my heart function is finally back in the normal range, although it is not back where it was originally. I have been on major doses of heart meds to improve the problem. I was just able to cut the meds in half this week and will go back in three months for another echo. It has been scary to have to stop the chemo but also scary to have the heart issues. Just praying a lot and keeping the faith that my wonderful doctors know what is best. My cancer was HER2 but I did not have radiation.
      Good luck to you on this journey

      about 4 years ago
    • gwendolyn's Avatar
      gwendolyn

      I think that is a typical regimen: Herceptin with chemo every week then dropping off to just Hercptin (in a larger dose) every three weeks.

      My echocardiogram showed a reduction in heart function (Ejection Fraction) before I went on the tri-weekly Herceptin-only regimen. It's not clear if this was from the Adriamycin (a heart toxic chemo drug) or the weekly Herceptin. My onc and cardiologist started monitoring things more closely with monthly echocardiograms. Any further drop and the Herceptin would be discontinued. My last two echocardiograms show no further degradation of heart function and I've been on the tri-weekly Herceptin for over two months. I have no other side effects from Herceptin. I am also getting radiation.

      about 4 years ago
    • Lindy's Avatar
      Lindy

      I had carboplatin, taxotere, herceptin every three weeks, continued with herceptin to finish the year. Did not have any heart tests till I participated in a trial and they required the test. All OK. My only issue with herceptin was it made my nails as weak as potato chips.

      about 4 years ago
    • sndlee's Avatar
      sndlee

      Thank you everyone for your answers, they are very helpful.

      about 4 years ago
    • mcowett's Avatar
      mcowett

      My Dr. has me on this treatment as well. The thought is that the dose will not harm or cause an additional side effects, and cutting down the time I spend at the cancer center will be helpful. Truly I would much rather go once every 3 weeks than weekly. It is better for my mental state.

      about 4 years ago
    • Yallpaint's Avatar
      Yallpaint

      Yep. Once every 3 weeks is normal. Yes, its a little scary not to go to the doctor so often but you get used to it quickly. Radiation isn't a walk in the park, but it's easier than chemo. Drink lots of water and keep your muscles moving so they don't get "sticky".

      about 4 years ago

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