• LMM's Avatar

    Has anyone heard of a tumor board? My oncologist told me today that they are still Not sure of a plan for me.

    Asked by LMM on Friday, January 11, 2013

    Has anyone heard of a tumor board? My oncologist told me today that they are still
    Not sure of a plan for me.

    He stated this tumor board has to determine if the tumor which is about 1 or 2 cm is in the anal area or the rectum. Each is a different type of cancerous cell and each requires a different treatment plan/chemo/radiation/surgery. He said pet scan revealed that lymph nodes appear to be abnormal how bad is that? He wouldn't give me a definite answer until results from colonoscopy and ultra sound are done (those are scheduled for tomorrow). I meet with oncologist on Jan 24 once more pieces to this puzzle become available. So in the meanwhile it is more waiting. I have been waiting since Dec19th for a plan. has anyone else had to wait this long?

    8 Answers from the Community

    8 answers
    • GregP_WN's Avatar

      Yes, I was treated at VAnderbilt Medical Center, a fairly large facility. They have a tumor board, it is a group of Dr's that discuss the cases and put their heads together on the best treatment plan. I like the idea, more than one person is making decisions on the best way to save our life. I went into have surgery in Dec. it was Feb before they finally had a decision on whether or not to have radiation, or surgery alone.

      So be patient, they have your best interest at heart, and will make a good decision for you.

      I know, it's hard to wait.

      over 5 years ago
    • Harry's Avatar

      Yeah, there's one for the hospital system I use (several Detroit area hospitals). It operates like Greg described. I think most large hospitals (hospital systems) have them.

      over 5 years ago
    • nancyjac's Avatar

      Yes, anywhere from 1-3 months is typical for initial testing, diagnosis, and plan development. A tumor or cancer board is just another name for a consultation among specialists which can include medical oncologists, radiation oncologists, surgeons, immunologists, radiologists, pathologists, etc. who review all the tests and diagnostic results and provide input from the standpoint of their specialty. Abnormal lymph nodes could mean that the cancer has metastasized into or through your lymph system, which would be a big factor in developing a treatment plan.

      over 5 years ago
    • karen1956's Avatar

      Yes....my pathology was taken to the tumor board of the hospital that did the pathology report.....my oncologist could not get the tissue slides for my appt (I got in a couple days after calling) as the tissue slides were being presented to the tumor board....I don't think not having it made a difference for my onc as he had the written report....and he knew the docs...BUt I think we different cancers (other than BC) it might be more important.....Good luck to you...

      over 5 years ago
    • carm's Avatar

      LMM, Now what a great question and let me say that if you are curious as to how a tumor board functions, let me direct you to orlive.com. This is a website that is free to join and has virtual tumor boards every month. I always attend them and you can view a few in their archives. You really learn so much about treatment options and the etiology of these tumors. It is a great source of education and will help you understand what drives these tumors. Check it out along with the surgeries that are performed live on the site and radiation therapy also. If you attend live, you can ask the surgeon or the rad onc questions and they will answer you during the procedure live for all to hear. You are a part of the discussion. Check it out, I love attending the tumor boards. Good luck, Carm.

      over 5 years ago
    • carolchristao's Avatar

      The oncologist and the mastologist who are taking care of me keep seating together to discuss what's happening. I guess it's because the tumor enlarged after the chemo and it was supposed to shrink. One time the oncologist called another oncologist too. The oncs were very afraid that chemo wasn't working and they suggested an emergency surgery. The mastologist insisted that it could be some good news behind all that, and a PET-CT showed that he was right.
      I guess we are all used to have "simple" health issues, as a sore throat. It's a diagnose no doctor needs help. But with cancer is different. It seems to me (I have no medical background, I'm a journalist) that every case is a case. Maybe @carm could confirm my opinion. Every case seems to be different so when they seat together it's not because we have a death sentence, but because we need the best treatment available and that can require more than one doctor.

      over 5 years ago
    • liznparadise's Avatar

      Yes, the tumor board consists of the radiology oncologist, medical oncologist, surgeon, etc. to look at all test results to determine course of treatment. Originally the gastroenterologist had told me that I had colon cancer when I awoke from the colonoscopy, but the pathology from the biopsy showed it to be anal cancer which is treated differently than colon cancer. The waiting is tough. Hang in there and trust that all of the best minds are figuring out the best course of treatment for you.

      over 5 years ago
    • warrior3's Avatar

      Yes, my hospital (Cleveland Clinic) goes through a tumor board, as well. I think it's actually a good idea to help determine the best course of treatment. Mine was anal cancer, which is a squamous cell cancer, as opposed to rectal cancer which is an adenocarcinoma; they do respond to different treatments so it's important to know what you're dealing with.
      The waiting is so difficult when you just want to get started and get that cancer out of there, I know. I wish you the best, good luck.

      over 5 years ago

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