• Has anyone opted for clinical trials upon first diagnosis, or recurrence? What about alternative medicines?

    Asked by skimommi on Wednesday, September 19, 2012

    Has anyone opted for clinical trials upon first diagnosis, or recurrence? What about alternative medicines?

    I will follow my doctor's recommendations for surgery, opting for bilat followed by chemo and possibly radiation, then reconstruction. I'm highly curious about alternative medicine that aides in the side effects, and/or aides to deter recurrence.

    10 Answers from the Community

    10 answers
    • Tracy's Avatar

      I had experimental treatment in the 1970's for thyroid cancer. I wasn't told at the time but I was not expected to live past 18. They gave me radioactive iodine treatment (the records were destroyed so we don't know the dosage) this is now standard treatment. Because of being experimental I am now having side affects from the treatments then. BUT I made it well past 18 ;)
      I have know people who had good luck with alternate medicine to help with side affects, acupuncture was very helpful for one friend with chemo.

      about 4 years ago
    • lynn1950's Avatar

      Hi, I did not have alternative medicine, but I did have complementary treatment that included yoga, meditation, therapy, relaxation, and acupuncture. I think all helped in my recovery except the acupuncture. The relaxation and meditation included listening CDs. They not only helped me relax, they also helped me sleep!

      about 4 years ago
    • Ydnar2xer's Avatar

      I was asked if I wanted to participate in a clinical trial where radiation would be used a second time on me, as I had had it earlier in 2003 w/my first breast cancer. My answer was a resounding "NO WAY!" I had been told you can only have rads 1x (because of the potential build up in your body) and figured I wasn't at the end of my options yet, as I will be doing chemo this time, which I hadn't done last time. Also, my husband is a nuclear engineer and I think he'd choke me if I'd said "YES!" My choice was immediately validated when I told my onc I'd turned down the "opportunity" and he said to me, "Good for you!"

      I am NOT against trying less invasive therapies such as massage, yoga, and accupuncture. I just don't want to glow in the dark!

      about 4 years ago
    • savingrace's Avatar

      I did alternative medicine a year before my surgery. (I had a mastectomy) I continued it during my Chomo and went through it with no problems. Got sick one time, and that was my fault because I didn't eat anything before my treatment. All in all the alternative medicine, a lot of pills, helped me tremendously.

      about 4 years ago
    • hikerchick's Avatar

      You can research Essiac tea on-line to see if it's something you would want to try. I had bilat mast a year and a half ago and have been drinking it ever since. It's a detox tea, and I know it has helped me with sinus conditions and colds, too. It is thought to have anti-cancer properties, both for prevention and recovery.

      From my personal experience, if I were you, I would really look into the complications of reconstruction before deciding it's a good thing for you. It's not automatically a good thing for everyone, as the doctors would have us believe. I wear prosthesese and am so very glad I did not opt for reconstruction and all the additional toll that would have on my body. Best of luck with all your decisions.

      about 4 years ago
    • attypatty's Avatar

      Dear skimommi:
      I am in a clinical trial where one arm was randomized to receive BOTH Herceptin and Arimidex (or other hormonal therapy drug) and one arm receives only hormonal therapy. My cancer was ER positive and PR positive and equivocal on HER2. So there is a large clinical trial to see if breast cancer patients in this category do any better with both courses of treatment as opposed to just the hormonal therapy. I am in the arm NOT receiving Herceptin. It is not a blind study, but there is no evidence to date that Herceptin helps unless you are definitely HER2 positive. Some of the benefits of being part of the clinical trial is that you do get more attention and testing. And there is that intangible benefit of knowing it will help the next generation of survivors survive longer and better. So,
      Fight On,

      about 4 years ago
    • MarnieC's Avatar

      Hi skimommi - I can't say yes to the clinical trials but I did use a lot of complementary medicine when going through surgery and chemotherapy and actually used alternative medicine rather than go through radiation. On my site (http://MarnieClark.com) I share exactly what I did and I'm happy to help you through it all too. Ask me anything you like! If I don't have an answer, I will refer to the experts and get you one. Let me know how I can help.

      about 4 years ago
    • karen1956's Avatar

      I participated in a clinical trial as part of my chemo treatment protocol.... It was ramdomization between 3 different chemo regimes....standard of care was the same for all options.....I see you are in Brighton...where are you receiving your treatment? I'm in Denver....

      about 4 years ago
    • StacyM's Avatar

      Like hikerchick, I have been drinking Essiac tea since chemotherapy was suggested to me. It was recommended by a friend who went through cancer treatments after being told his prognosis was not good (he is now 8 yrs cancer free). I really believe it helped with the side effects; I was on a 'harsher than normal' chemo regimen and had very few side effects. My doctor was amazed! I had asked him about Essiac and he said I could use it if I wanted to--I don't know if he knew I actually was because he never asked. My husband would bring it to me in a thermos while I hospitalized for chemo treatments so I got my daily doses. I have been done with treatments since June and continue to drink it daily.

      about 4 years ago
    • polgara's Avatar

      didn't do clinical trials but yes to alternative medicine. siberian ginsing to help side effects, tumeric to fight cancer and lots of veggies and juicing.

      about 4 years ago

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