• Has your cancer journey gone as you expected it would go?

    Asked by PhillieG on Tuesday, August 30, 2011

    Has your cancer journey gone as you expected it would go?

    Did it go better than expected or worse than you expected?
    Did you stay on chemo (if you chose chemo) longer than first expected or were you able to finish sooner or was it just as you thought it would be.

    15 Answers from the Community

    15 answers
    • LauraJo's Avatar
      LauraJo

      My surgeon & oncologists told me that if everything went according to plan, this would just be a "bad year." Due to blood clot issues from my medi-port, it was actually a bad 13 months, but other than that, everything went pretty much according to plan. Side effects from the chemo & radiation were short-lived, and manageable, other than the continuing neuropathy in my feet.

      over 1 year ago
    • catherinemarr's Avatar
      catherinemarr

      My journey has been a nightmare,,,due to complications from surgury,,peritonitis,two months in hoospital,june-aug 2012,,,still not recovered may never recover muscle strength,,,but the good news is,nodes and polpys were all clean...just monitoring now

      over 1 year ago
    • CHRISTINA71's Avatar
      CHRISTINA71

      Reading this has been helpful to try and explain where we are in my husband's journey. He found out at the age of 35 and has been fighting this terrible disease since 2009. This year has been the hardest. Originally we were told that he would do 5 wks of radiation, get an ileostomy, 5 weeks of chemo and would be done. We were even told at one point he was cancer free.... come to find out there were some nodes affected and one was not taken out but the surgeon said "they were not happy with how it looked" but could not remove it (not sure why) well that node has been an issue and the cancer has metastisized (there are lesions on the liver and lungs) he has done just about every chemo out there but none is removing that tumor. His ileostomy surgery was a nightmare... He was in the hospital for 30 days during Thanksgiving and Christmas. The reversal went well and we thought all was well but his dr just kept saying he did not like that one lymph node.. he did chemo for almost 2 years while the tumor just kept growing.. We switched doctors and has been doing more of the same. This October he had a blood clot in his right leg and was unable to walk until December and was recovering from that when the tumor grew and is now pinching a nerve causing him to not be able to walk again. My husband is one of the strongest people i know, he worked through chemo, radiation and as soon as he was recovered from the ileostomy he went back to work, he was always tinkering around the house... it pains me to see him in so much pain and alot of times i feel so helpless but i keep the faith. I have read several reports and quite honestly i dont care much what the doctors say i know its not in his or our hands. I just pray for the strength to help him through this. This has most definitely not been what we thought it would be actually like most people we never thought we would be going through this.. but here we are..I hope this new chemo works and he will be able to get some relief from his pain.

      about 1 year ago

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