• Have to do chemo again? TNBC

    Asked by barbaraanne on Friday, May 31, 2013

    Have to do chemo again? TNBC

    I am a triple negative breast cancer patient. I was originally diagnosed at Stage 1 (1cm) & clean lymph nodes. I completed 4 rounds of chemo in Feb 2013, I am in the process of finishing my radiation, 5 more sessions which will be my boost treatments. However, 12 sessions into my rad, an MRI showed enlarged lymph node. The surgeon removed 14 nodes, 1 was positive. So I continued the rad as soon as my drain came out. I spoke w/the Rad Onc, and he believes the Hematology Onc, wants me to do chemo again, probably 4 rounds. Has this happened to anyone else??? I'm really upset, I am just recovering from the chemo & the radiation is draining the XXX outta me (more tired then w/chemo). I will speak to the Hem/Onc, but I will get a 2nd opinion for piece of mind. My chemo meds were Docetaxel (Taxotere) & cyclophosphamide, obviously they will try a different concoction.. All answers appreciated....

    13 Answers from the Community

    13 answers
    • SueRae1's Avatar

      Hugs - Getting a 2nd opinion is always a good idea. A 2nd pair of eyes and experience on your history and treatment can only help your oncology team put together the best treatment plan for you.

      over 3 years ago
    • Journey's Avatar

      Hi Barbaraanne,
      I have not had breast cancer, nor have I had radiation therapy, but I did have chemo and I know how tired I was. It has to be a big disapointment to find out you need more chemo when you are almost finished with your treatment. The medical oncologist may give you something with less side effects than what you have had in the past. I would still do what ever I could, to have the best odds. Talk to your oncologist.

      over 3 years ago
    • virginiab's Avatar

      How disappointing to hear this! A second opinion is certainly a good idea. My thoughts will be with you!

      over 3 years ago
    • JennyMiller's Avatar

      I can only imagine your sense of discouragement. Second opinions are always a good idea -- to confirm and give you peace of mind -- or to make a change, etc. As you know, chemo is not a picnic but it is doable and it is a powerful weapon in your battle against this evil and elusive enemy. Stay strong and go with the treatment plan that they prescribe for you. Soon, it will all be behind you and you will know that you gave it your best. Good Luck!!!

      over 3 years ago
    • CAS1's Avatar

      Adjuvant chemo which is Chemo after initial treatment can either be the same chemo you had or a switch therapy. This is a new approach for many cancers and has proven very helpful in reducing return. Often times the adjuvant is not as brutal as the original chemo.

      That's how it was for me. I had three rounds adjuvant after my surgery. We wanted to make sure we got any loose cells.

      I suspect they are hoping to mop up and possible cells in the system after removing the Lymph node. Yes get a second opinion but I would suspect you will get the same suggestion.

      Cells got into your Lymph..Yes it was taken out but there might be loose cells floating around and based upon your tumors profile, not the stage they want to give you the best treatment possible to make sure they get any loose cells. Its really a reasonable treatment plan.

      over 3 years ago
    • Berley's Avatar
      Berley (Best Answer!)

      I agree a 2nd opinion is always a good option. It can give peace of mind or possibly other treatments options. I am also TNBC. I was diagnosed 2 years ago June 2011. 2.5cm tumor, Stage2, grade 3, Proliferative index was >90% and 0.1cm from inferior margin. 2 nodes checked were NED. High risk for reoccurrence. I chose a double mastectomy and chemo. I was in a Clinical trial which consisted of 4 treatments of A/C, adriamycin/cytoxan, a session every 2 weeks. Followed by 12 weeks of Taxol, a session every week. No radiation. I have had no pet scans or MRI's, just bloodwork and exam every 3months.
      I have read and been told that with TNBC Chemo is the main treatment used. There is a website for TNBC. www.tnbcfoundation.org that might also be helpful with information about others with this type of cancer and what treatments they chose.

      over 3 years ago
    • Nonnie917's Avatar

      I'm sorry I can't help you because I didn't have to go through that, but I wish you the best of luck and hope you come through this with flying colors.

      over 3 years ago
    • Gabba's Avatar

      I am sorry to hear what you are facing...get your second opinion...I am sure you will make the right decision and I pray that you will do well...keep us posted. Good luck and God bless!

      over 3 years ago
    • DianaL's Avatar

      So sorry to hear your news. Definitely get a second opinion. I agree with CAS1 you will probably get the same news. TNBC can be aggressive and chemo is usually the main treatment. Bless you and lots of hugs coming your way!

      over 3 years ago
    • Pdale's Avatar

      I certainly feel for you. Like you, I had a small tumor, 1.5 cms., but as we know, TNBC is highly aggressive regardless of the s

      over 3 years ago
    • Pdale's Avatar

      I certainly feel for u. I also had a small tomorrow, 1.5 cms. But as we how TNBC is highly Aggressive regardless of the size. My chemo cocktail was TAC (Taxotere,Adriamycin, and Cytoxan). Nasty stuff bit in June, I will be 7 years out from diagnosis. Good luck to you and fight the good fight.

      over 3 years ago
    • Ladykarla's Avatar

      I would definitely get a second opinion. Do they know if the node is positive? Can they do a biopsy? If it is positive, I would hit it fast and hit it hard. Honey, I know it would be a b---h to do some more chemo, but you have the advantage of knowing what it is like and how to prepare for it. If you need rides to treatment because you are so tired the American Cancer Society will provide them for free no income limit. They, too, have programs to help you through this. You have all us us here praying for you. You have our support. You CAN do this. Keep us posted.

      over 3 years ago
    • barbaraanne's Avatar

      Thank you all for your responses they have been very helpful and encouraging...I am finishing up my radiation this week - Thurs, (5 boosts) very intense, but not bad. I meet w/the Oncologist next week. I will share his plan w/all. Once again thanks and God bless all of us:)

      over 3 years ago

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