• have you ever Challenged your Doc on your chemo regimen?

    Asked by cranburymom on Saturday, February 18, 2012

    have you ever Challenged your Doc on your chemo regimen?

    I am having much harder time from side-effects. Nurses told me because of my size (5'3" 102 lb). But I think it is also because I am Japanese. After some investigation, my husband found a peer-reviewed article, and they recommended the dose reduction. And I am ready to bring this up to my ONC.
    Wonder how many of you have had done this? Any success?

    4 Answers from the Community

    4 answers
    • leepenn's Avatar
      leepenn

      YES YES and an even stronger YES!!!!!

      My blood counts went real low on the taxol/carboplatin/experimental drug... and they did reduce the dosing on the carboplatin... They want to keep that dose as high as possible, but they also take side effects and blood counts into account.

      It's an odd balance, right? Kill off the cancer without killing off the patient or making her toooooo miserable....

      So YES - tell your team about every single side effect you're having... And email that article (or at least its citation) to your oncologist. My oncologists and I have sent articles back and forth a few times....

      The dose is calculated based on "body surface area" as well as lab results from your blood work. Body surface area takes into account your weight and your height, and it's commonly employed for dosing. It's not a perfect system... and can lead to both over dosing and under dosing. So, discussing dosage with your team is ABSOLUTELY WHAT YOU SHOULD DO!!!!!

      about 2 years ago
    • jamrck's Avatar
      jamrck

      Yes, you should feel comfortable asking your oncologist any questions you may have and make sure you understand the response, even if that means asking more questions.

      about 2 years ago
    • GregP_WN's Avatar
      GregP_WN

      I say it's my body, and ulitimately my choice, but I have to trust that they know more about it than I do, but I do wonder sometimes. I don't mind being a pain in the a**, I think they do this stuff so often they get immune to thinking they can't make a mistake, but I have caught them about to do something that was not how it should go before. Don't be afraid to question them.

      about 2 years ago

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