• Have you gotten WRONG Diagnosis? We did. Buyer Beware!

    Asked by kos56 on Tuesday, April 2, 2013

    Have you gotten WRONG Diagnosis? We did. Buyer Beware!

    I want to report what happened to us so it won't happen to you. Since my husband had a horrid reaction chemo given to him 3/7 by the satellite office of UCLA --he ended up in local hospital for 4 days vomiting uncontrollably- we got a second opinion at the Norris Cancer Center at USC with their lung oncologist, Dr. Barbara Gitlitz. Her oncological radiologist "could not call" the nodes on his adrenal glands so she ordered another scan.Miraculously Dr. G. said the nodes on Dan's adrenal glands were adenomas; there was no sign of metastasis. No need for chemo. "How can 2 radiologists look at the same image and get two opposite opinions?" I asked. Dr. G. "No comment," she said. I followed up: "Why were these nodules not there 4 months ago and yet are there now?" "No comment," she said. I sent the USC CT report to UCLA oncologist who ordered a biopsy of adrenal gland. It is POSITIVE. Dr. G. was WRONG. Will be filing complaints & getting 3rd opinion at Cedar Sinai on Friday.

    6 Answers from the Community

    6 answers
    • CrazyHarry's Avatar

      Well, this messed up my night. I also have something on my Adrenal gland. My oncologist told me not to worry.

      I hope that all is well with your husband and he does will with his treatment.

      over 3 years ago
    • kos56's Avatar

      CrazyHarry, insist on a biopsy. You will be sedated, it's no big deal. Find out for sure that it is nothing.

      You have to have the correct diagnosis to get the right treatment. If your doctor refuses, tell him my story. If he still refuses, get another doctor asap. Good luck and thanks for your good wishes.

      over 3 years ago
    • SueRae1's Avatar

      OMG! hugs to you and you hugs. I have a friend who is in remission from lung cancer for over a year. Her doctor's kept on telling her that the chronic cough she had was -an allergic reaction, bronchitis, etc. When they finally got it right it had taken over part of of lobe. Thank G-d she finally got a 2nd opinion at a world class cancer center.

      over 3 years ago
    • Clyde's Avatar

      This points up a common problem that we tend to over look. Doctors are humans not robots. We have to allow for them to make mistakes just as we make mistakes even if that sucks a big one. That's why second (and sometimes third) opinions are so important even when we have full confidence in the first diagnosis (cancer can also be a tricky one to pin down). Also why it is important that we act as our own advocate rather than just accept the treatment offered.

      I understand your anger at this situation and I would no doubt feel the same. Just feel thankful that you are finding the correct answers now in the process.

      over 3 years ago
    • po18guy's Avatar

      I had both a lymph node excised as well as a bone marrow aspiration. The pathologist saw "abnormal cells", but no cancer. Fine. I was getting worse quickly, so DW made an appointment at Fred Hutchinson. Turns out that I actually did have a malignancy. It was an unclassifiable sub-type of a rare and aggressive T-Cell Lymphoma, and I had about 12 weeks left if it did not respond to treatment. Except that there was no standard treatment for it. Anyway, after a succession of miracles, I am at the 5 year mark. So, a second opinion in every case, I say.

      over 3 years ago
    • kos56's Avatar

      po18guy, thank you for sharing your story, and God bless you and your DW.

      over 3 years ago

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