• Have you had any eye issues as a side effect?

    Asked by GregP_WN on Thursday, April 20, 2017

    Have you had any eye issues as a side effect?

    Just curious if anyone has had any eye issues that you could pin on chemo or radiation. Issues of any kind like decreasing clarity, blurred vision, eye pain or even total loss of sight?

    19 Answers from the Community

    19 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I haven't had vision issues, but I did go to my optometrist prior to starting chemo and once during (that was my normal yearly appt). I've been told I WILL develop narrow angle glaucoma (not a matter of if, just a matter of when), but that was diagnosed prior to the cancer. So my doc keeps a close eye on that, and I have his cell # loaded in my cell, just in case... I was prepared if anything happened during treatment.

      5 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      My vision has changed, but I don't know of chemo or immunotherapy has anything to do with it. Might be normal aging.

      5 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Thankfully, I have not. I have worn glasses since the second grade. At my recent eye exam, my eye doctor said my eyes really looked healthy, then he added, your a ways away from cataracts yet. Gee Whizz!

      5 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Lucky you, Lynne-I-Am. My eye doctor said she sees tell-tale signs of a cataract in my left eye, but said it was way too small to do anything about yet.

      5 months ago
    • Coconut's Avatar
      Coconut

      Decreasing eyesight is definitely related to my chemo treatment because I didn't have eye problems before, despite my excessive reading habit.

      5 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      You know LiveWithCancer, I have always been a big baby when it comes to eye drops. Perhaps this stems from numerous visits to the eye doctor when I was kid. I remember the waiting room was darkened and they had a huge fish tank in it. They would come out and give me the eye drops prior to my appointment. They stung. I remember the fish getting a blurry. My eye doctor considers my exams a success when he can get one drop into my eyes. I really do try to keep them open. My husband had cataract surgery and he had to have numerous eye drops before the surgery, when they examined his eyes, and afterwards. I opt to be put to sleep. My husband is already dreading when the day comes that he will be putting eye drops into my eyes. Perhaps that day is closer than I think, and my optometrist was afraid to tell me.

      5 months ago
    • pammyjo's Avatar
      pammyjo

      Yes, I have eye problems. The Dr's tell me that it's probably related to my age and not to chemo. I don't believe them. I had no problems before chemo. 6 months after finishing, I have vitreous detachment in both eyes, chronic dry eyes, cateracts and macular degeneration. True, I would probably have gotten all of those eventually; but all of them at the same time? Six months after chemo? Pretty big coincidence if you ask me!

      5 months ago
    • PaulineJ's Avatar
      PaulineJ

      I believe it's related to both old age and chemo.I was fine for a while after cataract surgeries, not needing glasses hardly for reading,but got back to needing glasses, more so now for reading.

      5 months ago
    • geekling's Avatar
      geekling

      There were so many fires to be put out after treatment (some continuing to this day) that I didnt actually have a chance to think anout vision.

      On a positive note, my vision has improved! I started doing some 'outlandish' exercises and that is the result. I tried these exercises as a kid but couldnt get through them. Those pinhole sunglasses help a lot, it seems.

      5 months ago
    • KB2013's Avatar
      KB2013

      Yes, after my first line of chemotherapy I developed triple vision so bad it was dangerous to drive. The oncologist reluctantly suggested chemo was the cause after I'd visited an eye doctor for an exam for cataracts and he could find no physical defect. Still don't understand it and now on occasion it mysteriously recurs.

      5 months ago
    • PaulineJ's Avatar
      PaulineJ

      KB2013 I'm with you.I don't understand when I'm with all kinds of symtoms and my test come out normal.3 more apps>GI doctor,Eye doctor in May and one in June with my primary doctor.Plus Dental in May for surgeries I had .And pain dept.in Mass Gen for all the pain and sick feelings I'm getting after the last dental surgery in the begining of April.Cat Scan was normal for bladder,kidney and liver a couple of weeks ago from having blood in my urine and green stools in March and April so far.Every year I get blood in my urine and green stools once in a while .I just don't get it.

      5 months ago
    • KB2013's Avatar
      KB2013

      Pauline, my doctor told me green isn't a sign anything is wrong and could be bile or certain vegetables. Blood in urine can e sign of bladder cancer or kidney stones.

      5 months ago
    • PaulineJ's Avatar
      PaulineJ

      They don't tell me anything.I get apps and test.Then they tell me the test is normal.They must think I'm crazy or something.But I know how I feel since 1998 ( use to have a couple of hours a day relief) and I do see blood in my urine a few times a year? And green stools quit often.I have a big problem with my colon since 1998>long story.But got worst as years went by .I mostly have mostly water.And sometimes inflamation? And go at least 10-20 times a day.like every 5 minutes most of the time,especially in the morning,It's very frustrating.Just explaining....no need to respond.

      5 months ago
    • sarasmash's Avatar
      sarasmash

      YESSSS. The few days after chemo I have extremely blurry vision. It's crazy! I don't know if it's my nausea patches causing it or if it's the chemo but it is not fun!

      5 months ago
    • cllinda's Avatar
      cllinda

      I had double vision during chemo. I couldn't read, and then could only watch a little bit of tv before I would get a headache. It was a rough time.
      And when I went on just Herceptin, I would get it on Wednesday, and by the weekend, I had a headache so bad I would be crying.
      This chemo stuff sucks. But I did get through it all, and in October, it will be my 5 year cancerversary. I'm just happy that I made it through, and then could be here for my amazing 20 month old granddaughter. She just gives me such joy.

      5 months ago
    • Nanzee's Avatar
      Nanzee

      I suddenly had my cataracts worsen. I had slight ones before chemo/radiation but nothing that needed surgery. Saw optometrist after all was finished, and he referred me immediately. Good thing, as I was having trouble with freeway signs, etc. Maybe just age-related, but who knows?

      5 months ago
    • BoiseB's Avatar
      BoiseB

      I went to the eye doctor last Thursday ( will be getting rid of my other cataract next week). The eye Dr. says there was some damage to my optic nerve. He doesn't know whether it was due to Chemo itself or to the terrible reaction I had to the anti-nausea meds. The anti-nausea meds landed me in the ER with the worst headache ever and bleary vision. It got better but has not completely gone away.

      5 months ago
    • Whitey61's Avatar
      Whitey61

      Yes, months after finishing Chemo Cisplatin, my left eye started causing distorted blurry vision, opthalmologist diagnosis is ERM... Epiretinal Membrane, early form of Maculer Degeneration, could have been coming on anyway, flashes and floaters before cancer diagnosis, but certainly axasterbated by treatments in my opinion.

      5 months ago
    • Paperpusher's Avatar
      Paperpusher

      When my husband finally went for an eye exam post treatment, the doctor found a spot in his eye that she wanted a vitreous specialist to see. We went the next day( I have a specialist so I had a quick way in), he diagnosed him with a CHRPE which is a freckle in the eye. He said it could have been there since childhood and that no one was looking for it until he was diagnosed with cancer. He said there was a slim chance of it turning into melanoma so he will be watched every year.

      5 months ago

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