• Have you joined a local support group? What was your experience? Do you prefer the local support group or online support?

    Asked by LisaR on Thursday, May 23, 2013

    Have you joined a local support group? What was your experience? Do you prefer the local support group or online support?

    5 Answers from the Community

    5 answers
    • abrub's Avatar

      When I was first diagnosed, I joined a support group at Gilda's Club. While I appreciated being with people who could understand what I was going through, because I had such a rare cancer (Appendix Cancer), with an unconventional treatment (Intraperitoneal Chemo) there was no one for me to really share with. Most of the others in the group were breast cancer or lymphoma/leukemia. Thus, I felt like the "odd bird." In on-line support groups without geographic boundaries, if you have a rare cancer you are more likely to find someone in a similar situation.

      Both types of groups have their pluses and minuses.

      over 7 years ago
    • GypsyJule's Avatar

      I joined a local support group and my experience has been good so far. Our group is very small, and most of the other women are breast cancer survivors, and like abrub, I was diagnosed with a rare cancer (MMMT), so at times I feel like the odd one as well. There are many positives with the group. One of my favorite things about the group is that I can express my feelings and fears without reservation, and to people who, much like WhatNexters, can relate to what I'm going through and give me good advice. Hopefully I am able to be supportive and helpful to new members as well. Honestly, I like both online and local groups. Our local group meets once a month, but I can come here anytime and find answers to calm my fears, or become more educated.

      over 7 years ago
    • abrub's Avatar

      I should add that I took away some fantastic information from the local support group. It was there (and not in my dr's office) that I learned about the all-important Emla cream to numb the port for chemo (it worked on my belly port as well as my chest port). I learned some general "tricks of the trade" there, and yes, was free to express my fears, etc. However, I also got my share of strange looks when describing some of the things I was going through, and sometimes had the feeling that the others wanted to get back to the experiences that they could relate to.

      That being said, for the first couple of months, there was another "odd bird" - a guy with peritoneal mesothelioma - who had gone through a similar IP chemo as me, and truly did understand me on more levels. Mark gave me lots of strength, but unfortunately was killed by his meso a few months after we met. I remain friends with his wife.

      over 7 years ago
    • CAS1's Avatar

      I prefer on line. I have met tow women my age with similar background genetic lung cancer and we have become great friends.

      over 7 years ago
    • Kathy's Avatar

      I really appreciate your question and reading your answers. I do love online especially during the chemo times when there is barely any strength. It's a different kind of feeling because you don't actually meet them in person. I am contemplating joining a once a month local support group. I'm kind of on the fence. I guess it wouldn't hurt to give it a try. I also see a social worker one on one and that has been most helpful.

      over 7 years ago

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