• having a bad and sad afternoon - survivors w/ breast cancer in nodes let me hear from you!

    Asked by HearMeRoar on Thursday, February 7, 2013

    having a bad and sad afternoon - survivors w/ breast cancer in nodes let me hear from you!

    okay i just got negative again - not sure why. roller coaster alert :) if you had bc in your nodes and you are thriving tell me your story, pllllleaaaaase!! how many nodes, what stage and what was your treatment?

    17 Answers from the Community

    17 answers
    • BuckeyeShelby's Avatar

      Can't help you w/specifics, as I have uterine cancer, but I am sending hugs! I hope some folks jump in and give you the info/support you need. I hope it gets better!

      over 5 years ago
    • Bug's Avatar

      Hang in there, HearMeRoar. It *is* a roller coaster of emotions - remember that. And the roller coaster *will* go back up again. There's a big hug coming your way.

      over 5 years ago
    • cris' Avatar

      Sending ((((((HUGS)))) to you, we all have our ups and downs, please hang in there. Remember there is a light at the end of the tunnel...

      over 5 years ago
    • Debbie's Avatar

      I had cancer cells in 2 of 4 lymph nodes. So after a gazillion tests, lumpectomy then 4 months of chemo then 30 radiation treatments. It's been a rough ride and I still need to see the oncologist to find out what my future holds. BUT this morning I had my follow-up appointment with the breast surgeon. She did a mammogram and said everything looks BEAUTIFUL! Just hang in there, keep positive and KNOW you can do this.

      over 5 years ago
    • Giraffe's Avatar

      Have involvement in 3 nodes. I fact a tumor in one node the Dr. was not expecting. Only had one Chemo treatment so far with 5 more to do. After this it will be radiation and then 5 more years of meds. I will tell you the emotional roller coaster is there all the time. There has got to be hope. There is support here and in your own support system. When I was down I cried and then journaled. It helped me pick myself back up. Ask question, knowledge is power. Take control of what ever you can. Do something nice for yourself, it is bound to help! Hugs

      over 5 years ago
    • SueRae1's Avatar

      sending you hugs and healing vibes. We all have our off days, and that's ok, We here to lend a virtual hand and shoulder. I have stage 1V TNBC & Advanced Kidney cancer - both are responding well to treatment. I was diagnosed with the Kidney cancer almost 4 years ago, I had stage 1 TBNC breast cancer in 2010, and stage IV last May. I'm still here and thriving. There are so many new treatments available and more in the pipeline.

      over 5 years ago
    • Beebop's Avatar

      Hi there, sorry you are having a sad day. I was stage 2b with mets to the nodes. I am almost a year out from treatment. It hasn't been easy, but I made it and you will too!

      over 5 years ago
    • karen1956's Avatar
      karen1956 (Best Answer!)

      I am a 7 years survivor (Dx 02/03/2006)...whole right breast full of cancer and lots of positive nodes....bila, chemo, rads, ooph and AI's......I was Dx stage 3A..... Sometimes its one day at a time...and sometimes its just put one foot in front of the other....It does get better...sending cyber hugs to you :)

      over 5 years ago
    • JennyMiller's Avatar

      I have been on that Roller Coaster -- the worst time was between diagnosis and surgery -- a very "dark" and emotional time. I would get the butterflies in the tummy when the realization would hit me again -- and then when I heard success stories, the butterflies would subside. I had 8 out of 11 positive nodes. I went in search of people like myself and found a web site of survivors who had extensive lymph node involvement. One lady had over 20 positive lymph nodes and is 15 years out and doing just fine. That gave me hope which kept me strong and positive. Staying positive is a very important weapon in your battle. Hang in there -- as you complete each hurdle-- you will realize that you can indeed make this journey and eventually put it all behind you. I wish you the best!!!

      over 5 years ago
    • bethmac3s' Avatar

      Hello, I wanted to let you know that I am a survivor, and that in my support group, there is a 39 year old woman who had 19 nodes removed, chemo, while pregnant, stage 4, and she is doing AMAZING! Just thought you should hear that! Hugs!!!!

      over 5 years ago
    • CountryGirl's Avatar

      I had a chemo buddy. A friend paired us up. When she went I to surgery, they discovered that there was a second tumor on her lymph node. The lymph node tumor was larger than the tumor in her breast. She refused to tell me what stage she was. I think she was 4. My chances of survival were 30% and I remember her saying, "that's great!" She is thriving. In fact, she can outrun me in a 5k.

      over 5 years ago
    • JudyW's Avatar

      I had Stage 3C with many lymph nodes involved -- those under the arm, in the chest wall, and above the chest. I had chemo, double mastectomy, and extensive radiation. I have my two-year-post-treatment MRI in a couple of weeks.....say prayers! I believe it will continue to be a roller coaster my whole life, but perhaps, it will diminish after awhile. When I had my mastectomy, they took out 24 lymph nodes, and 17 of them were still cancerous, even after chemo. I'm sure I'm nowhere near out of the woods, but I'm two years clear -- I hope! Every birthday a victory.....

      over 5 years ago
    • DianaL's Avatar

      Hugs to you HearMeRoar! I had two sentinel nodes out of the three that were removed at the time of the lumpectomy that turned out to have microscopic cancer cells. I had to have a mastectomy and I chose bilateral because the downs were wearing me out. They took 13 nodes at mastectomy and they were all negative and there was a positive side--no radiation!!! I took Taxotere and Cytoxin for 4 treatments, 3 weeks apart. Had my first three month check up yesterday--blood test markers came in below normal--no cancer and all my nodes were fine. There really is a light at the end of this long tunnel. My mastectomy was in June and I did not get to start chemo until September--nothing moves fast enough at this time.
      You will get through this with flying colors and you will look back and know that you got through all these trials! Thinking of you and praying for you!

      over 5 years ago
    • mdc's Avatar

      Diagnosed in 2004 with no lymph node involvement, Stage I. I had a lumpectomy, 4 cycles of A/C, and 33 radiation treatments. My maintenance drug was Tamoxifen.

      In December 2006 I felt two lumps - one at the side of my breast and one under the arm. Diagnosed February 2007 with Stage IV bc. (The two lumps were actually lymph nodes. The disease spread to the lymph node and bone, (spots on my spine and right hip). I went on Avastin and Taxol. I think I had 6 cycles of treatment before going on Femara. Several months later the disease was active again and I went back on Taxol without Avastin. Following this I went on Fasoldex for several months. In January 2010 I started on Taxotere as part of a clinical trial. I was on Taxotere for about 1.5 years. In October 2011 I started on Gemcitabine as the Taxotere was too toxic for me and had stopped working. My last treatment on Gemcitabine was February of 2012. I started on Xeloda the last week of February 2012. (My hair grew back while on Xeloda. It was very nice.) My last Xeloda treatment was in December of 2012. The last couple of months on Xeloda my cough had come back and my breathing was rough. I felt pretty bad. (The disease had spread to my lung while on Taxotere and had gotten better for a while when I was on the Gemcitabine and Xeloda.)

      I started Ixabepilone In January of 2013. I've had two cycles so far. The treatments are 21 days apart. The drug must be working as I feel wonderful. My energy level is back and with the exception of hair loss the side affects are not awful.

      Reading the information above might be depressing but I wanted to show you that regardless of the number of times the disease raises its ugly head there is hope. That is what you want to hang onto. Right now I feel great. If I did not look in the mirror, I would not realize I had the disease. This is not to say I don't get scared. I do but I try not to let it consume me. I'm enjoying my life. Right now I hope the disease goes dormant and I'm able to go on a maintenance drug. The longer I hang in there the better my chances are of new drugs coming out on the market.

      Feel good. The lymph node involvement does not mean you'll have a spread. My friend was diagnosed in 2005. She did have lymph node involvement. So far, she has no evidence of the disease spreading.

      over 5 years ago
    • Kathy504's Avatar

      Dear Roar, It's normal to feel scared. We each can get all worked up by the numbers, survival rates, etc. But at the end of the day we need to remind ourselves that no one on this planet is going to get out alive! So live well, live strong and make each day count. The folks who went into the Trade Center on September 11th never knew that was going to be their last day. We need to have our crying time but then get up off our pity pots and enjoy the gift of life. Hang in there, Dear One.

      over 5 years ago
    • whirl's Avatar

      I have a very dear friend at church. She had several lymph nodes positive. I say she was in her 40's when diagnosed. She is now 15 years later without reocurrance. There is hope

      over 5 years ago
    • Topazcat's Avatar

      Allow yourself to feel these down days,but know that you will have fantastic up days too. Cancer is a roller-coaster! Don't let it get to you. Hang in there and fight back! I was diagnosed in November 2010 with stage IIIB Inflammatory Breast Cancer. I was told it was a type of cancer that is very aggressive and deadly. I was given a 30% chance of surviving 5 years. I had 16 chemo sessions, double mastectomy, 20 lymph nodes removed with cancer found in 18 of them, 36 radiation treatments, and am now on Arimidex for at least 5 years. It has been difficult at times, but I decided arly on that cancer would not win this battle. I still have roller-coaster days, but the up days are much more numerous. I have had 3 PET scans since my treatment ended, and all of them came back great!

      over 5 years ago

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