• Having double mastectomy with reconstruction soon. Getting expanders then implants...any advice or wisdom to give?

    Asked by tutuca67 on Thursday, September 6, 2012

    Having double mastectomy with reconstruction soon. Getting expanders then implants...any advice or wisdom to give?

    4 Answers from the Community

    4 answers
    • mominmi's Avatar

      Hi! I just had a bilateral mastectomy on 8/27. Was in the hospital for one night and discharged the next day at noon. Took pain meds for 5 days for a pain level of 4 to 6.....Tylenol 3 (Dr prescribed Vicodin but Norco/Vicodin makes me sick.). Dr had me take Keflex three times a day for 5 days to prevent infection. The drains were removed yesterday 9/5. Somehat uncomfortable at times (just below collarbone and in armpits) but not so much that I need to take any meds. Took a three mile walk today.....tired, but so glad to be feeling like myself again. First tissue expansion to be done on Wed. 9/12.

      I had a bunch of pillows in bed....several behind my head and shoulders and one supporting each arm while I slept on my back. I needed help showering the first time and used a bathrobe belt to attach my drains to. I wore the hospital compression bra for 5 days then switched to a sports bra. I found that I had discomfort under my arms ....lots of swelling plus the sports bra was rubbing my armpits. Switched to my regular bra on 9/4 and felt much more comfortable.

      I had no nausea...but did feel a little queasy/dizzy after my first shower....I think I overdid it! I'm now 10 days post-op and feeling pretty good....first oncologist visit tomorrow. You will get through this.....

      about 8 years ago
    • busymom0413's Avatar

      I had mine bilateral on 11/11 with expanders. I am getting those exchanged in 2 weeks. I was in hospital 3 days due to blood pressure dropping so low. I had nausea and throwing up but I always do that with anethesthia. I had 2 drains for 3 weeks and the other two for 4, they were quite uncomfortable. I went Christmas shopping after a week. I had someone carry bags and purse. Would not advise that but needed to be done. Not too bad. Tissue expanders have been uncomfortable for me but excited about exchange surgery. Did not take alot of pain beds mostly at night for about 3 days at home. Stayed on antibiotics while drains were in and I did have musscle relaxers for a few days. Not bad ! Best of luck to you.

      about 8 years ago
    • LadyM's Avatar

      I just completed my reconstruction in April 2012. I overdid it when I had my expanders so (by my own doing) , avoid lifting!! I had a blood clot removed after I deceided to be impatient and bring 2 gallons of milk up from the garage. My surgeon who is an ANGEL, fixed it but it could have been very serious. I had a Lattisimus flap done with saline implants and I could not be happier.

      about 8 years ago
    • Denise916's Avatar

      I had a bilateral mastectomy on 8/17. I stayed in the hospital for 3 nights. I ran a low grade fever and my blood pressure was dangerously low. They gave me morphine while in the hospital and I came home with muscle relaxers and an antibiotic. The first few days at home were not terrible but a little tough. I could not get in and out of bed by myself or sit on the sofa or get up off the sofa without help. I had the drains. They didn't bother me much. I slept on my back with my head raised. I got used to that but felt very tired during the day. Always take time for a nap. It makes you feel so much better. The expanders are somewhat uncomfortable. I can only describe it as wearing clothes that are too tight. You just can't wait to take them off. I had my first "fill" a couple of weeks ago which was painless. For some reason I had some stuff that had to be drained out before the doctor could put the saline in. When I left the doctor's office my husband and I stopped at a store and I noticed my blouse was soaked. i looked like a lactating new mom. That only lasted for a few hours. I am always aware of the expanders. Not in a painful way, but just an annoyance. I am back to driving and walking. We went to New Hampshire this past week just to get away from everything and take in the nature. We did lots of walking and driving. I did well. Felt bad that I couldn't do any hiking. Although I do feel tired now that I am home. I am very surprised that the recovery from a major surgery like this is not all that bad. I expected worse. Just go very easy on yourself, don't lift anything and sleep as much as you can. You will do fine.

      about 8 years ago

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