• Healing agents from proton radiation

    Asked by karinelsen on Tuesday, July 17, 2018

    Healing agents from proton radiation

    I have had 33 proton radiation treatments following my surgery for Schneirderian inverted papilloma cancer in my sinus cavity.
    Would appreciate any feedback regarding side effects to proton radiation. Thank you!!
    Aloe & Aquaphor, my healing necessities.

    7 Answers from the Community

    7 answers
    • geekling's Avatar
      geekling (Best Answer!)

      Look up "black seed oil".

      Congrats on finishing the protocol.

      8 months ago
    • LiveWithCancer's Avatar

      Hi @karinelsen, wow! That's a lot of radiation treatments!

      Did they tell you to expect issues with your teeth? (I had already lost mine so didn't experience any side effects there, but so many people do.)

      I didn't have proton radiation, but when I had "regular" radiation to my neck, I experienced some fatigue. It wasn't completely debilitating, but I didn't really want to do too much. That fatigue stayed with me for at least 6 months, maybe more.

      After I finished my treatments (I had 15), my skin burned a little bit, I guess. It just turned a little red. It didn't hurt. I used my regular lotion on it. It went away in just a day or two.

      When reading about proton radiation a few minutes ago, it sounds like the side effects from it are very similar to those you get with photon radiation.

      What did your radiologist tell you to expect?

      8 months ago
    • barryboomer's Avatar

      What side effect have you gotten so far? From my understanding Proton Rads is excellent because it stops at the tumor and doesn't go through the body to the other side. For burns I found 1% Hydrocortisone Cream good....and I took Tylenol and Advil....Aloe is healing....

      8 months ago
    • GregP_WN's Avatar

      Proton Radiation is very different from regular radiation. I had 28 regular tx's to my head neck throat area in 1988 then 10 years ago I had 20 more to the same area due to a 3rd diagnosis. My teeth fell out, had the occlusion in my arteries, which caused a mini-stroke. I have a laundry list of side effects from it. I can't comment on what you should expect, but I am interested in knowing just exactly what side effects you have had so far, how you handled the proton radiation and any more information you can share. We have people asking about proton radiation here all the time and since it's such a new form of it, not much information can be shared.

      Thanks for posting.

      8 months ago
    • karinelsen's Avatar

      I have 4 answers from above, but do not know how to respond to each (very different from FB!)
      @geekling - I am going to ask my dermatologist about black seed oil.
      @LiveWithCancer - i had 3 beams of proton radiation aimed near my eye and nostril. I did not have any issues with my teeth. I was able to work 1/2 day throughout the 1st 15 treatments, however the last18 treatments had me exhausted sleeping about 16 hours a day. My proton Dr. told me sleeping =healing.
      @barryboomer - 18 months later and 2 blood vessels in my nostril cauterized and 3 Avastin injections in my eye!!
      @GregP_WN - i too have a laundry list of side effects and life changes.How do I continue to get through this??? I have a great team of friends, coworkers, DRs, nurses and a great sense of humor.
      Please advise me how to better respond to each post..........

      8 months ago
    • geekling's Avatar

      OMG, I do hope you escape side effects. I know there are lots of lawsuits regarding Avastin eye injections.

      I remember being tired. I still get that way sometimes. It was so exciting for me that I realized at a point in time I was strong enough to push a vacuum around so I thought is was a good time to use a gym. I did yoga and it was so difficult. I started out with 2 minutes on an eliptical machine and slowly worked to make myself stronger. It takes time.

      Best wishes to be able to happily go forward with your life.

      8 months ago
    • LiveWithCancer's Avatar

      @kerinelsen, you did awesome with your response!! The only other thing you could have done is respond to each person in a separate post. Your way is wonderful!!

      I have never heard of Avastin treatments in the eye! I had Avastin (along with Carboplatin and Alimta) as my first-line treatment, but through my veins. It is scary to me just thinking about injections in my eyes!!!

      8 months ago

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