• Hello, I'm new here and looking to jiust talk with someone about all of this

    Asked by Bloodproblems on Wednesday, November 13, 2019

    Hello, I'm new here and looking to jiust talk with someone about all of this

    I have been to the doctor and gotten a diagnosis but haven't started any types of treatments. The doctors are still deciding on a plan of treatment from what I understand. How do you deal with all of the swirling emotions? It's like my mind is on a roller coaster.

    14 Answers from the Community

    14 answers
    • Dawsonsmom's Avatar
      Dawsonsmom

      Bloodproblems, you are in the most anxiety provoking stage.....waiting for a plan. The anxiety is out the roof and it is hard to manage. Distracting yourself is the best thing you can do, but realistically, it is difficult at best. Once you get a treatment plan the anxiety gets better b/c you begin to feel like you have some control. Hang tight and read posts on this and other sites. Everyone here has been where you are and knows the difficulty and fear you are feeling.

      2 months ago
    • Bloodproblems' Avatar
      Bloodproblems

      Thanks for your reply, I am new to having cancer and can't seem to wrap my head around the whole thing. I'm trying to come to grips with the reality of it all.

      2 months ago
    • Bengal's Avatar
      Bengal

      Been where you are. Probably the hardest thing you've ever had to face? Two and a half years into this dance and I'm still in denial. "This can't be real." This happens to other people, not me." I will wake up and discover it's all a bad dream." As Dawsonsmom said, the next few weeks will be incredibly hard just coming to grips with your diagnosis. My cancer center had a " nurse navigator " who proved invaluable in those first days, talking me through it all and offering a shoulder and tons of reassurance. Find that person and talk to them.

      2 months ago
    • Teachertina's Avatar
      Teachertina

      I was in shock at first too. That was 13 years ago. Those first weeks were like being on a bad ride that wouldn’t stop! Someone told me to write down all my questions and concerns for my next conversation with my oncologist and to stay off the web searching for my disease. That was good advice! I also got a second opinion about the recommended plan of treatment, which turned out to be in agreement with the one I already had. You can skip that if you truly trust your oncologist and don’t want to wait another day to start your treatments. Take someone with you as you go to appointments. Support systems mean so much! Check back with us here to let us know how it’s going! We have been there, done that!

      2 months ago
    • 2943's Avatar
      2943

      This is a journey. There is a whole new language to learn as you start down the road. Write your thoughts, questions down between visits. Makes appts. so much easier. Take someone with you. So hard to hear everything and take it in with your emotions, too. Remember, you are the captain of this team. If it gets going too fast, tell them to slow down! It takes many to fight this ‘ugly’!
      There is a whole great support team here also. Stay in touch. Hugs!

      2 months ago
    • JaneA's Avatar
      JaneA

      The diagnosis - waiting for treatment to begin is the worst part of this. Uncertainty robs us of our confidence. One of my good friends is a 14-year multiple myeloma survivor. She goes out to the center in Little Rock AR from GA. She went almost 3 years before she had a single treatment, then had a stem cell transplant and went 9 years before her counts inched up again. She's been in treatment again and her numbers are almost normal again. Best wishes.

      2 months ago
    • GregP_WN's Avatar
      GregP_WN

      There are lots of people here that are more than willing to listen, give a little motivational pat on the back and offer their own experiences with almost any issue you could be dealing with. Most all of us have been there and get it. We on the WhatNext team wish you the best.

      2 months ago
    • cllinda's Avatar
      cllinda

      Getting any kind of cancer diagnosis is rough. We deal with so many unknowns at this time. It was good to talk to my priest when things were getting crazy. And my friend Karen, would take me out for coffee and just let me get off what was bothering me. She didn't judge. She just was my shoulder to cry on, listen to me, and treat me to coffee.

      2 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Dawsonsmom so nailed it. Once you have a treatment plan, it is so much easier to drop into warrior mode to kick some cancer butt. We are here for you. Most of us have either gone through something or, like you, are awaiting their turn. Hang in there until your team comes up with a strategy.

      2 months ago
    • Bloodproblems' Avatar
      Bloodproblems

      Thanks for your replies, I just can't stand the waiting. I have another week before I go back to the doctor and I can shake the feeling that while I'm waiting there is a monster inside me eating its way out. Sounds gruesome I know, but that seems to be the visual I get. Thanks for your encouragement.

      2 months ago
    • po18guy's Avatar
      po18guy

      Sorry to hear of this. The waiting is indeed the most difficult stage. However, that time is needed to ensure that the best possible treatment plan is formulated. Since you have a diagnosis, I suggest that you devote some time to knowing the enemy - as well as how to defeat that enemy. There have been some real advancements made recently in Myeloma treatment, and that is very encouraging.

      You can learn much from the International Myeloma Foundation:

      https://www.myeloma.org/online-resources

      As well as the Multiple Myeloma Research Foundation.

      https://themmrf.org/

      A ton of really good information there, as well as very encouraging patient stories and new treatments that are emerging.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Things will probably calm down for you sooner than you would expect and life settles into a routine. Or, that's what happened with me. At the beginning, it was a whirlwind of tests and biopsies and new doctors that had to be seen. It wasn't long before there was a schedule and there was far less uncertainty about "what's next."

      Good luck! We've all been where you are now ... and I imagine that most all of us can relate to that feeling of uncertainty and fear and confusion. We're here for you.

      2 months ago
    • Bloodproblems' Avatar
      Bloodproblems

      Thank you again for your feedback and comments. It's good to have a place to come and talk to someone who gets it for what we are going through.

      2 months ago
    • meyati's Avatar
      meyati

      Hi, I just saw your question. You can talk to me anytime--about any thing--- What are you interested in---I bought jigsaw puzzles and worked them non-stop. That helped me focus. I did that for the first year. Find something that causes you to focus. I also like to make model airplanes.

      Good luck

      about 1 month ago

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