• Help Help. I need advise on dealing with what i am feeling right now. Please read and give any advise you have. This might be a long post

    Asked by sbmontgomery on Monday, October 8, 2012

    Help Help. I need advise on dealing with what i am feeling right now. Please read and give any advise you have. This might be a long post

    Grade 2 Astrcytoma July 3 2012. Finished Chemo and Rad about 2 wks ago. Feel worse than ever. Have dr. app. Tues. Feel like I'm losing hope that anything is going to make me better. Fell about a wk ago and hit my head. Had MRI and they said everything was fine. I saw the MRI and it looks like nothing changed since they found it the first time. How long will it take to see if anything is working. Will it get small, get big, or stay the same. My temper is bad. I have 4 children, 22yr daughter who cares for me and now seems to resent me for being sick. She yells at everyone and takes out her anger on my 12yr son, 10yr daughter, and 4 yr son. I yelled at her this morning like I never have before. Its been building up for so long it all came out at once. She gave up fall semester at college to help me. I do feel bad that she can't go to school or get a job right now. I try to keep things inside to protect my kids. Yesterday was the worst. My husband had to help me off the toilet 1st time

    17 Answers from the Community

    17 answers
    • Karen315's Avatar
      Karen315

      Hi sbmontgomery. I ended my chemo for brain cancer about two years ago, and I felt a lot of the same things. After my radiation (5x week, 6 weeks), the size of my tumor did not change size and I was crazily upset. The doctors told me (and what I figured out later) that 1. A lot of the tumor was still visible but it was dead and no longer growing. 2. The radiation (and chemo) keeps affecting you body for a while after you stop treatment, so the tumor could stay the same size, or it could decrease. If the size increases, thats when there is a problem and they will have to address it again. Also, the extended effects could keep you feeling bad for a while longer - this may be your toughest time. My radiation effects were the worst. During the weeks before and after the treatment I had serious depression and had to be taken to the hospital again, and an antidepressant really helped (and I still take it). I hate to say that I am not 100% better, but I would say I am 90% better with the depression, body/speech coordination, fatigue, etc. I wish the same (or better!) for you , and keep telling yourself that you'll get through this and you WILL feel better .

      almost 9 years ago
    • Judit's Avatar
      Judit

      Wow! you really have your hands full! You and your family need emotional support. If you have a Gilda/s Club nearby, run to it. I'm sure your time is tight with all your reponsibilities, but for your mental health, and that of your family, find support groups. There are peope near you who have gone thru what you are dealing with and there are others who have been where your family is. No one else understands. I hope you find help soon. Our Gilda's Club closed & we joined the ACS & are now known as HopeClub. Call your ACS for info re support systems in your area.

      almost 9 years ago
    • seededmelon's Avatar
      seededmelon

      I am so sorry that this is a time of being overwhelmed. I am 42y mom, single...my 21y old gave up fall quarter last year to come home (diag. 6/2011). It was good for both of us. She helped with my then 14y son.

      I can tell you that I improved after being away from side effects of chemo and radiation, however it was about 6-9 months after. Once I left treatment due to toxicity (chemo), I ended up starting chemo again on a different schedule 7 months later. My tumor is inoperable and had changed over the 7 months I did not take chemo.

      I have found that each day brings different challenges. Somedays it's vision, or balance or speech or a combination of things.

      Best wishes,
      S

      almost 9 years ago

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