• help me:)

    Asked by Agnese on Saturday, October 10, 2015

    help me:)

    Hi to Everyone! I am Agnese, an italian student. I am studying "Design and Communication" at the Polytechnic of Milan. To one of my bestfriends was diagnosed a cancer a few months ago. From that moment I decided to write my master degree thesis about cancer and to develope a service to help caregivers during the patient's journey. I know how hard it could be and i admire each of you. It would be helpful for me, my thesis and i hope for all the caregivers in the next future if you can fill a simple survey. It would help me to better understand your effort, your psicological and phisical needs and the relation between patien, caregivers and the hospital. If you want to partecipate it will be completely anonimous. Just let me know.

    Thank you so much!

    16 Answers from the Community

    16 answers
    • Carool's Avatar
      Carool

      Hi, Agnese. I'm not a caretaker and never was. I'm a breast cancer survivor, diagnosed 16.5 years ago with stage 1 triple-positive (HER-2-positive, ER-positive and PR-positive). I'd like to take the survey, if you think info from a former patient, one who hasn't been in treatment recently, can be useful to you. In any case, I wish you all the best with your thesis - and best of luck to your friend.

      almost 4 years ago
    • geekling's Avatar
      geekling

      I was a caretaker ... put up a list of your questions :)

      almost 4 years ago
    • Ejourneys' Avatar
      Ejourneys

      Hi, Agnese. I am a cancer patient and I am also caregiver to someone with MS. I'd like to take the survey as well, and I give @GregP_WN permission to share my contact info. Also, I can let people outside of WhatNext know about the survey -- I would just need to tell them how to access it and/or how to contact you. I wish you and your friend all the best. Thank you for doing this good work.

      almost 4 years ago
    • Schlegel's Avatar
      Schlegel

      I am willing to answer the questions, but I do not see the survey.

      almost 4 years ago
    • Agnese's Avatar
      Agnese

      I've sent the survey links to all of you in your private pages

      almost 4 years ago
    • Agnese's Avatar
      Agnese

      Thank you to all of you:)

      almost 4 years ago
    • Schlegel's Avatar
      Schlegel

      I see the survey is for caregivers. Sorry, I am a survivor. I do want to say that with a diagnosis of CLL, he should be around a long time.

      almost 4 years ago
    • Agnese's Avatar
      Agnese

      i am still studying hard to develope one for the fighters/survivors:) i will let you know

      almost 4 years ago
    • Ejourneys' Avatar
      Ejourneys

      Hi, Agnese -- I got a message that you wrote on my wall, but I didn't see anything posted there.

      almost 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      @Agnese, I sent you an email, I need a response, please.

      almost 4 years ago
    • Carool's Avatar
      Carool

      Hi, Agnese. I can't respond to your survey, unfortunately, as it is for caretakers only, and any answers I'd give would be inaccurate and therefore damage the results of the survey. If and when you develop a survey for cancer survivors, I'll be very happy to participate. I wish you all the best in your work. Best, Carool

      almost 4 years ago
    • Agnese's Avatar
      Agnese

      Hi to everyone:) I am gonna explain what is going on. GregP-WN as the Community Mgr, told me it's not allowed to send u surveys. Of course he is doing his job and he is enforcing Regulation. I didn't know about this and i am so sorry because I never wanted to not respect you or him. My aim is the opposite:) So i am wainting for the Greg's answer. Hoping he will understand my purpose and give me an hand to share my survey:)

      almost 4 years ago
    • Ejourneys' Avatar
      Ejourneys

      @Agnese, this post by Heidi Floyd on tips for caregivers (of breast cancer patients) might be helpful:
      https://www.linkedin.com/pulse/20140701233217-29645529-cancer-how-to-help-when-you-don-t-know-what-to-do
      Heidi has been both a caregiver and a breast cancer patient.

      almost 4 years ago
    • Agnese's Avatar
      Agnese

      Thank you so much:) it's t amazing how generous and unselfish you are:) thank u so much:) I am still waiting the Greg's mail:)

      almost 4 years ago
    • NHDianne's Avatar
      NHDianne

      I'm fighting the disease for 3 yrs now, had chemo and radiation and would be glad to help if you develop a survey for pts and survivors. Nice topic for thesis.

      almost 4 years ago
    • Agnese's Avatar
      Agnese

      GREG PLEASE, CAN YOU TELL ME IF I CAN SHARE MY SURVEY OR NOT? I am still waiting for your confirm

      almost 4 years ago

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