• Hepatocellular Carcinoma

    Asked by lyndon864 on Monday, June 30, 2014

    Hepatocellular Carcinoma

    I was first diagnosed as Liposarcoma and they did an extensive surgery on me slicing part of my liver, colon, and stomach. Hospital made a biopsy and change my diagnosis to Hepatocellular Carcinoma
    fter 2 months my oncologist with the same hospital started me with NEXAVAR (Sorafenib) been taking it for a month and went to another Specialist for second opinion and told me to stop NEXAVAR because it is only for patients who did not undergo surgery (unresectable case only). Have to follow my second doctors order and still waiting for more MRI / CT SCan of my liver and bloodworks per his order. Now I am doubtful of the operation done to me by the hospital and treatment of NEXAVAR they have given me.
    Can I question my 1st oncologist why he prescribed the NEXAVAR and secondly question for the hospital for not verifying my diagnosis first prior to the operation?
    I need some inputs from other ptient's with regards to this. Thank you

    2 Answers from the Community

    • GailRose's Avatar
      GailRose

      Well I had a 15 lb. tumor on my liver and it was removed. I was only prescribed Nexavar after they found a few spots on my lungs. They cannot remove the spots so the Nexavar was to just keep the spots from growing. Are all of the tumors/spots removed? My understanding is that the Nexavar will not "kill" the cancer just keep it from spreading. The nurses at the Nexavar help line can answer a lot of your questions.

      about 7 years ago
    • Kathyd's Avatar
      Kathyd

      I too had a liver resection in 2011 and a reoccurance in 2012. Have been on Nexavar ever since. I wish they had put me on in back in 2011, then maybe I would not have had a reoccurence. My surgeon said that he could have one another resection, however because my cancer had spread to my lng I had to gon on Nexavar. Like I said I wish they would have started me on in back in 2011, then maybe I would be off of it by now. It is not a traditional chemo drug, It is designed to slow the growth and cut off blood flow to the tumor. Hope this helps

      about 7 years ago

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