So are you guys and gals telling me I'm the only one with this issue? Wow seems strange. lol

No. You're not alone. I worked with my oncs and gyn on this one, and am on Vagifem daily (normal dosage is twice/week) and that helps me somewhat. Of course, it depends on your cancer type as to whether or not you can use hormonal supplements. We also tried me on an estratest - an estrogen/testosterone supplement, but while that helps many, it didn't help me. My desire is still quite low. However, while I usually want to be left alone, I do it for my husband, and usually end up enjoying it, too.

Other suggestions: acupuncture, integrative medicine. And plenty of lubricants.

I am lucky to have a very understanding husband. I am rarely in the mood for sex anymore. When I'm feeling okay physically, I feel like I look like a complete toad. We don't have sex as much as we used to, but I find that even if I'm not in the mood and we have sex, I end up being glad that we did because it is very satisfying and a great stress reliever. Plus, it helps me feel normal. Be patient with yourself. Good luck.

Husband has had zero interest since the day of his diagnosis. I have zero energy but also grieve this loss in our life together.

Lol Thanks Krbrowndog thats my thoughts at times also. I would just be happy laying and holding but wont do that because I know what mental XXX I will pay. Marriage wasn't wonderful before cancer and after 25yrs even though I'm young I just want to be held. I know its not really funny but thanks for the laugh I tell my therapist that all the time he needs help and she agrees but you can't make someone go to counseling. :)
Hope you have a great day!
Thanks Susie