• Hi still leaning to navigate the site ! had a TT 3 weeks ago. my surgeon said I will need Iodine Radiation tx . my questions

    Asked by Baileysmom on Thursday, January 31, 2013

    Hi still leaning to navigate the site ! had a TT 3 weeks ago. my surgeon said I will need Iodine Radiation tx . my questions

    Approx how long after surgery will I receive Iodine Radiation Tx.
    and my 2nd question is who orders this tx. My Endocrinologist ?
    I follow up with him next month. Thanks in advance for your help...

    9 Answers from the Community

    9 answers
    • nancyjac's Avatar
      nancyjac

      Those are questions we can't answer for you. You will need to ask your doctors.

      about 4 years ago
    • SMT4's Avatar
      SMT4

      I'm not sure how it works for you, do pls sake your dr. But the LID or low iodine diet happens before Ri . He is giving your body time to rest and heal. This link is Info on thyroid cancer. http://www.thyca.org/

      about 4 years ago
    • carm's Avatar
      carm

      Hello, the radiation treatment (usually I-131) is ordered by a radiology oncologist usually. You might want to check out a website called chemotherapyadvisor.com. Although it is not a chemo, for thyroid disease this is cnsidered standard treatment. The site is free to join and it lists the regimens for each cancers. Yours would be listed under endocrine. Best of luck to you. Nancyjac is correct though, your doctor is the one who can answer that question for you and you should always keep that channel of dialogue open, Carm RN.

      about 4 years ago
    • bavin's Avatar
      bavin

      After my TT early May I had my RAI in late June. I think this really varies based on need but it is usually pretty quickly following the surgery. My endocrinologist was the one who scheduled it. Good luck!!

      about 4 years ago
    • Nenny-Who's Avatar
      Nenny-Who

      Yes you have to do the low iodine diet first and more testing to see how much of the gland is left before the doctor can tell you. I can tell you when I did mine I had my gland out in May and had theiodine

      about 4 years ago
    • Nenny-Who's Avatar
      Nenny-Who

      Oops and had treatment at the end of September.

      about 4 years ago
    • emsavard's Avatar
      emsavard

      The endocrinologist usually is the one that sets up the appointment with the radiology oncologist. That doctor will decide the dose of RAI that you will receive. I had my 1st treatment about 6 wks after my TT. I was not placed on thyroid hormone medication until after the treatment. Are you on thyroid replacement medication now? If you are, and are not having the thyrogen shots to raise your TSH, you will have to be off your medication for about 1 month. If you are having the thyrogen shots you remain on your medication. Check out my blog http://papillarythyroidcancerguide.com/2011/04/12/hypothyroidism-symptoms-when-preparing-for-a-radioactive-iodine-treatment/ This may help you. Please message me if you have any other questions.
      Elaine

      about 4 years ago
    • Bea's Avatar
      Bea

      The Oncologist or his Radiologist in nuclear medicine will administer your RAI in a few weeks. You will need to go on a low iodine diet first. They doctors should have explained all this before you had your surgery.
      Make sure you keep a good supply of calcium in your body. I didn't have enough and went back into the hospital. This was due to the parathyroid gland, it was stunned for a few days so my calcium levels went down drastically. The RAI isn't bad, just do what they tell you, keep away from pets and people for about 10 days. I had to board my dog and cat because the amount of radiation was significant for the first dose. Good Luck!

      about 4 years ago
    • Bea's Avatar
      Bea

      You can get the low iodine diet cookbook from thyca.org. It is a great website for people with Thyroid Issues. All you do when you cook is use non-iodized salt. Make your own bread and watch the iodine in foods. You will do fine.

      about 4 years ago

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