• Hopes shattered

    Asked by magdem on Saturday, January 5, 2013

    Hopes shattered

    Here I am in Houston. Hopes shattered. Was waiting to have the Whipple next Tuesday. Had abdomen and pelvis CT scan this morning then met with oncologist.Cancer has spread. Lesions in lower part of both lungs. Everything canceled - no Whipple. I asked how long and she said 2 years from date of dx which means 1 1/2 years. Right now I am devastated. Lots of tears with husband. Have appointment tomorrow to see how we will proceed and try to get clarification. Was so shocked I know I didn't hear/understand everything.

    11 Answers from the Community

    11 answers
    • Debbie's Avatar

      magdem- so sorry you're going through this. Keeping you and your family in my prayers.

      almost 4 years ago
    • SpunkyS's Avatar

      Supporting you as you go through this hope reversal. Keeping you and your family in prayer. Sending cyber hugs wishing they could be real.

      almost 4 years ago
    • Peroll's Avatar

      magdem, I know how you feel as I have been in the same spot before but you need to know that this can be fought and won. The survival numberrs you were given are averages and are at least 5 years old, thus your chances are better as treatment has gotten better. I have personnaly hit the 5% side of the probability 5 time in a row so it can be done. I assue that you are at MD Anderson in Houston which is the best place you can be right now. Be positive and tell the Drs you want to fight and win. Good luck and let us know how it goes, we can help support you through this.

      almost 4 years ago
    • Nancebeth's Avatar

      I am sorry you are going through this. But believe in yourself and fight. My thoughts are with you.

      almost 4 years ago
    • leepenn's Avatar

      oh my gosh - i'm so sorry for your terrible news.... hugs hugs hugs hugs during this difficult time.

      almost 4 years ago
    • gwendolyn's Avatar

      I am truly sorry to hear you are faced with this devastating news. I hope you can come away with some treatment options after your appointment tomorrow. I'm sure you didn't comprehend everything you were told today. No one would be able to.

      almost 4 years ago
    • Kristinaako's Avatar

      I wish I have something positive to say. My friend who is 45 and been diagnosed in April of 2012 is hanging on to life by the last straw. It is unreal to see how someone so capable and big and strong deteriorated in 7 months time.
      I am sure you ask God - why? WHY YOU'VE BEEN DEALT THAT CARD?

      almost 4 years ago
    • JMS's Avatar

      Dear Magdem - Terrible news, I agree, but this doesn't necessarily mean that you can't beat the odds. Chemo can still help considerably, as can the most positive attitude and internal strength you can muster. I think it's more the last two that have gotten me almost through my treatments - and I intend to continue fighting for as long as I can fight. Stay positive and your partners-in-cancer will help you along the way. JMS

      almost 4 years ago
    • Onoi11's Avatar

      Dear Magdem, I feel your disappointment in receiving the shocking news rather than the Whipple surgery. You will likely find ways to cope through new avenues. I am in a similar situation and await news as to whether I'm a Whipple candidate or not. Are the lung lesions removable? Will you seek a second opinion?

      almost 4 years ago
    • janabel681's Avatar

      magdem- I am so sorry to hear that the cancer has spread. I go out to Houston to meet with Dr. Wolff at MD Anderson. I do not know who you are seeing out there or if you are even being treated at Anderson. If you are not at Anderson, get in to see them there. I have been so pleased with what they have done to save my life. I was not a candidate for the whipple. At Mayo I was given 6 months to a year. That was Dec. 23, 2011.... Here I am over a year later. If you want more information contact me.

      almost 4 years ago
    • sullymum's Avatar

      Hi Magdem, I am sorry that you are having these emotional ups and downs..and that is saying mildly. I too was diagnosed with IV stage pancreatic cancer metas to liver...I too was to have the Whipple procedure in August 2012..until they did a biopsy of the liver and noticed the cells came from the pancreaus. I share your feelings, was devistated when the oncologist surgeon told me "not a good situation"...and from there went on a very evasive chemo regigime...I started in October 2012..and now finishing round no 8 this Monday 14Jan13...we will do a MRI to see where we are...Please do not give up the fight...there are stories of this aweful cancer that have beat the odds...Faith and Hope and Love (from family and friends of which it sounds you have) are the entities that will beat this cancer. I too walk everyday...clears the head and good O2 clears the brain/body. We must fight this thing and I am one that wont give up...not to say I dont have my "pitty parties"...but I believe I was brought here for a reason...Did I say that I lost my job 1month before diagnosis...This is OUR journey..I think from reading your post...you are a fighter and stubborn...lets FIGHT

      almost 4 years ago

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