• Hospice

    Asked by BudBandit on Wednesday, March 27, 2019


    I'm stage4b lung cancer,I saw my oncologists yesterday 3/26/19,he wanted to start a chemo cocktail,taxol and carboplatin, but my blood count wasn't right,and after I told him I was fatigued (in bed) most of the day and not being able to eat etc. he wanted to put me on hospice care,I asked him to give me a week and let me think about it.My question is ..has anyone been referred back to treatments from a hospice worker?

    42 Answers from the Community

    42 answers
    • BudBandit's Avatar

      I just returned from my visit with oncologists #1,I asked him about the palliative care he said he was going to check to see if I qualify.By that,he said once something or the other in my blood gets to a #2 level its going to be to late for chemo or anything,I'm either right there at it or I am there.He is going to set up more scans head to waist or toe,whatever.I am going to stay with his decisions, all the records are there,the equipment and the ppl already familiar with my case.I told him I will accept his best decision and that I wasn't ready to throw in the towel yet,at the same time,I don't want to be on feeding tubes and iv's just for my next treatment.The juggling between 2 drs.at this point seems futile so to make it less stressfull I'll just take what comes. Dr #2 scheduled a checkup to see if I was eating or gaining weight back that appt is a week or so off so I'm going to cancel it and see what these new tests are showing and see what dr. #1 wants to do.I also asked about the clinical trials and I didn't have anything in my criteria that would benefit anything.Wmsavs,I do have have family and friends around but not close,of course my wife is.My brother, this pass weekend, drove four hrs. one way and we watched a 3 hr.movie together and he went home :) Tried to get him to stay the night but he had to go. I'm grateful for the time,don't understand why he drove that far for a movie, but that felt good.

      7 months ago
    • LiveWithCancer's Avatar

      Awe, @BudBandit. I'm so sorry that the test results are not coming out more in your favor. Sometimes the cancer is just too fast and too stealthy.

      You are in my thoughts and prayers. How I hope your doctor can pull a rabbit out of his hat. In the meantime, your attitude amazes me. Probably one reason why your brother was willing to drive 4 hours to watch a movie with you!! It was worth those three hours together to drive 8 hours. I'm glad he came and you enjoyed the time together.

      Big hugs are winging their way to you ... and lots of prayers are being said on your behalf.

      Please let us know what you learn. I'm pretty sure you're making the same decisions I would, if I was in your shoes.

      7 months ago
    • wmsavs' Avatar

      Wonderful visit with your brother @BudBandit and glad that your wife is with you. You and your brother gained a lot more by spending that time together than just watching a movie together and I think you know that. Please try to consider that second opinion to just make sure that first doctor is calling the right shots. In the meantime, please continue to keep us posted.

      7 months ago

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