• Hospice care for last 6 months of life

    Asked by Ncbb on Tuesday, May 15, 2012

    Hospice care for last 6 months of life

    We have stopped all treatments on stage 4 lung cancer and have moved on to pain management with a prognosis of 6-9 months to live. We have a tube to drain the lungs every two days just installed today. She has decided she wants to die at home, not in a hospital, and has a no feed, no artificial lung function, etc in effect. My question: Is "medicare covered" hospice a good thing for us? She's not happy about the idea of no "preventative cancer care" being covered once we go "on" the hospice plan. I am POA and not sure which way I should go. I think Hospice care will benefit us all, but she's feeling deserted by her Doctor and any hope if we go on the Hospice plan. I KNOW others have had to weigh this decision and I really would appreciate your feedback on this.

    20 Answers from the Community

    20 answers
    • Mollie's Avatar
      Mollie

      It took my grandma about a month to give the go aged to go full hospice. Once they did the intake and the RN, LVN, and social worker came out things settled down to a once a week "checkup". For all of us, my grandma included, the best thing about hospice is that they're available 24/7, literally. This Monday, which was a holiday, we had some huge concerns and a nurse came out to help us within an hour of our phone call. They are the most well
      Put together organization I have ever seen. On last Friday we needed more morphine, they were there in 1 1/2 hours with two bottles, just in case. They also provide respite care if YOU need something, grocery shop, Dr. appt, whatever you need they are on it!!! Let me know if this helped and if you'd like my phone number or email let me know.

      over 9 years ago
    • smidge's Avatar
      smidge

      Hospice care is a good thing! My mother has stage 4 lung cancer and I have her in my home, under Hospice Care. They so not offer preventative, but make every attempt to keep my mom comfortable. They take care of all medications, nurses visit every week and a doctor once a month. When times get rough, they can and will bring in Crisis Care nurses around the clock. Just my 2 cents, but I don't know what I would have done without them.

      over 8 years ago
    • amkates' Avatar
      amkates

      i just started hospice myself about a month ago. I also thought it meant I was giving up and was going to die soon. But to be released from the hospital since they decided that no more can be done to fight the cancer and I was in so much pain the thought of just going home was not an option I still hurt too much. My dr.s promised from day one I would not be in pain so why am I. Well anyway where I live they have a in-patient hospice called Home-stead, and that is where I was transferred until the got the right combination of meds for me to be pain free. I was still nervous but the minute I was taken in the front door all fears were gone. Each room is a quilt theme not a room number, it looks and feels like an upscale SPA or B&B. The nurses were able to get me the right meds and then I came home. However they also have a respite program that if I or my family need a break, or someone at home gets sick or has an emergency I can check in for 5 days of rest. I now have Hospice visits once a week until the time comes I need more. The nurse and caseworker are like friends to my family and myself. They have even called my daughter-in-law to check on her, she lost her dad suddenly the week I went in hospital and is 3 months pregnant with my first grandchild, I would not trade this experience for anything. I do not know what the future is going to hold but being comfortable with them now will make the transition easier towards the end. Did I mention I am only 50 years old. Keep the faith I do.

      over 8 years ago

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