• How are people dealing with loss of taste?

    Asked by Charlieb on Sunday, January 8, 2012

    How are people dealing with loss of taste?

    Starting two weeks into chemo I lost most of my sense of taste. I am now into my second round and everything "tastes" the same; anyone eat Poi? Eating is really becoming a chore even though I keep trying to be upbeat and just eat what everyone else is having. How are other people dealing with everything tasting disgusting?

    12 Answers from the Community

    12 answers
    • markmather's Avatar

      It takes a while to adjust to taste and eating. I was eating alot of apples until my mouth became so sore I had trouble chewing. Then I settled on organic lemonade. I found that sour and bitter food and drink seemed to be more appealing. Lemon drops were also good to suck on and gave me some sugar for energy. Another thing that worked for me was organic soups especially miso. Good luck.

      almost 5 years ago
    • GregP_WN's Avatar

      Loss of taste is a terrible part of this, frustrating I guess. But you have to eat, I tried different things, once I found something that I could taste a little, I ate that. Mashed potatos and gravy and milkshakes is what I ate a bunch of. Good luck, and keep remembering, it will get better one day!

      almost 5 years ago
    • susie81610's Avatar

      If I find something that taste a little bit good I eat it until I'm full because I know the next time I wont like it. I eat alot of spaghetti O's they seem to slide down easy and do have a little protein. Baked beans. I just try and find stuff that will go down easy and has alot of protein. Just keep on trying and don't give up you will find that one thing that you can't live with out.

      almost 5 years ago
    • CountryGirl's Avatar

      I relied on my husband. When he said I didn't eat enough and made me a plate, I ate as much as I could. I drank cranberry juice and carnation instant breakfast. I ate weird thing like fried eggs with lots of pepper and mustard squirted on the top. Gross!!

      Sores in the mouth can be horrible. My oncologist gave me a mouth rinse which worked surprisingly fast. If it hadn't worked, my pharmacist said that a stronger prescription that requires a compounding pharmacist also exists.

      I also developed a little ketosis and had a big spot on my tongue.

      almost 5 years ago
    • TomLand's Avatar

      At first I couldn't eat. Taste would change by the hour - drove those trying so hard to cook for me nuts. Then my taste and appetite returned. Perhaps yours will as well.

      I do have a constant taste in my mouth that is not normal but doesn't seem to affect the flavor of food.

      I read someone in here say that chili became a two to three times a week meal because it was the only food that maintained its taste. Good luck!

      almost 5 years ago
    • Jackie's Avatar

      After total body radiation many years ago, my full tasting ability has not returned. When I do taste, it is a general taste - I certainly can't distinguish certain ingredients in a dish. I have found that I largely enjoy food based a little on taste and more on texture. I have also found that I like to eat casseroles - where the flavors have blended together. Since adopting my children, a more recent round of radiation due to breast cancer (which did not affect my taste buds), and the fact that I am now in forties, I have really focused on eating foods packed with vitamins and minerals. My focus for eating has shifted from enjoyment to nutritional - but that is certainly not to say that I won't occasionally eat that piece of cool and smooth cheese cake or some crunchy pita chips!

      almost 5 years ago
    • nancyjac's Avatar

      I've just had learn to eat based on the clock rather than feeling hungry or because something tastes good. That isn't actually so bad really. I think part of the whole obesity epidemic in modern society may be due to the emphasis on eating because it tastes good rather than because we need the nutrition....but I digress. I've found that for me, sugar free butterscotch hard candies help mask the metallic taste and makes other food more pallitable. Citrus has the opposite effect for me. It seems to intensive the bad metallic taste. I guess we just need to do some trial and error to find what works best for each of us.

      almost 5 years ago
    • Keephopealive's Avatar

      At one time the only things that tasted good were milk, thank heavens because I love it, rice with butter and salt and salad...I craved salad. It varies I am sure with each chemo and person. This time I went 13 treatments before any side effect showed up.

      almost 5 years ago
    • Oquin61's Avatar

      I just finished my second round with loss of taste, it is horrible... Not only was dealing with loss of taste but I was on a neutropenia diet....which is nothing fresh, like salads or fruits or veggies and no seafood... Chicken noodle soup helped, and ensure, which has lots of vitamins that you need right now, the chocolate is th best, actually Slim fast was a treat for me. Trust me I know what you re going through. You brain knows what the food should taste like, but your mouth tells a different story. Sour candy can help wake up your taste buds....

      about 4 years ago
    • turbineman's Avatar

      I lost my taste for 18 months, smell lost as well. I have been using Nasonex spray, two sprays once a day, and I have much of the tasting back again. Not everything and not easy to guess what I can taste and smell. Eggs are a strong taste and some stronger tasting items I don't get at all. Still can't taste gasoline, but that is fine!


      about 4 years ago
    • jekoontz's Avatar

      I first noticed a change or loss of taste about six-months into my original treatment - Velcade, Dex, etc.. We have a favorite salad place here in Sacramento and I thought they had put the wrong dressing on my Caesar Salad. Over time only very spicey food had any taste at all, but by then I was losing me appetite as well. Stargely I found cottage cheese and mandarin oranges to be satisfying and practically lived on them for a year or so. During the healing process after my transplant I found things started to taste in a familiar way. Fortunately for me my taste buds seem to have recovered and my enjoyment of very spicey foods has remained. I'm sure we're all different in this, but though frustratingly long, my taste returned.

      about 4 years ago
    • 2ndChance's Avatar

      I'm not sure if there really is anything that can be done. I loss all taste for food myself and I went through 5 rounds of chemo. I also had the problem with a metallic taste so I switched to plastic dinner ware. One thing that helped a little bit was sour candy. I was having treatment during my second round when the man beside me told me to try sour candy, specifically Lemon Heads. It does help a little bit but its not a cure and not everyone likes sour candy. Sorry I couldn't be of more help.

      about 4 years ago

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