Hi. I'm Aliza, a BC patient and the site's unofficial resident Medical Librarian. I offer advice (usually non medical [Librarians try to avoid giving med advice-it's against our Code of Ethics and is a bit illegal as it's practicing medicine sans license], but I do offer referrals to doctors, hospital, insitutions, agencies, books, media, etc. as well as research when requested or required. I am allowed to speak from my own experience as well as those of family and friends.
I was very upset to read about your circumstances. I'm in NYC, one of the medical meccas of the country. Your mammography should have indicated quite clearly to your Breast Surgeon the kind of tumor(s) he/she was dealing with. It's most distressing to hear that you will have to have a second surgery.
I am guessing since you had a partial mastectomy that you are currently home. I had a mastectomy and they let me go after one overnight.
This is what I would recommend for you as radical as it may seem. I would not return to the same
Breast Surgeon or Facility where you had your surgery performed. I would instead (I'm hoping that you have a caregiver or can draft one for what I'm about to suggest) contact MD Anderson in Houston, Texas or The Mayo Clinic in Rochester, Minnesota and have whatever Lincoln, NE facility treated you get their medical records department to get your records to one of these places (Breast Surgeon especially) asap!
When you return, you can have their Breast Surgeon (whichever hospital you choose) there communicate with your Oncologist in Lincoln, NE, provided that you liked and respected his/her opinion. If not, it's time for a change. It's important, I think that you live near your oncologist because if you are to have chemotherapy, that could take some time.
If you contact The American Cancer Society, you will find that they maintain a Hope Lodge (inexpensive or free lodging) near MD Anderson in Houston (just Google) as well as one in Rochester, MN (you can also Google). There are emergency low cost or free flights for cancer patients as well. I do not have that information, but will try to contact an acquaintance who does to provide that for you
I know that this is all kind of a shock after finding out more bad news, that you now have to contemplate going a distance for competent medical care. Remember MD Anderson is ranked #1 in the country as far as Cancer care is concerned and I don't know what spot the Mayo Clinic holds, but it's an excellent hospital, so much so that the late King Hussein of Jordan was flown in there to be treated for his Cancer.
I hope that you'll forgive me for perhaps taking you out of your "comfort zone" at what seems like a difficult time. I'm suggesting this because (if it were me and I weren't in NYC), I'd want the best shot at a good outcome. The outcome of your last surgery was lacking. We on the site all want you to have the best shot at getting rid of your Cancer, simple as that!
If, aside from contacting my friend re the free flights, I can do anything else for you, please don't hesitate to ask me, I'm happy to help you. You can message me here or email me offsite.
Hang in there-thiings wil get better! I know! Please keep us posted re your progress.