• How did you feel when diagnosed withTriple Negative Breast Cancer knowing there is no recourse after treatment?

    Asked by DarleneDavis on Friday, September 14, 2012

    How did you feel when diagnosed withTriple Negative Breast Cancer knowing there is no recourse after treatment?

    I couldn't get it out of my head that I have no recourse against reoccurance and if I did reoccur it could be anywhere. Just recently I have heard of many people living with this type of cancer. What did you change to help with reoccurance?

    5 Answers from the Community

    5 answers
    • ticklingcancer's Avatar

      Hello Darlene, I have a friend that's currently battling triple negative breast cancer. You're right about the recourse after treatment. I just happen to stumble accross this article one day. I hope you find this helpful. I also heard of an experimental drug called ABT-888 which they've been trying out on triple-negative cancer. You might ask your Oncologist about it. I think the "technical" name for it is Veliparib. It may or may not be an option for you. It's currently in clinical trials so maybe your insurance and Dr will approve it. Good luck with your treatment.


      about 4 years ago
    • nancyjac's Avatar

      I think maybe you have some misconceptions about TN vs. TP. I have triple positive inflammatory breast cancer. I have to have additional treatment but I also have additional means by which cancer can recur that TN does not. Your recourses should you have a recurrence are the same as mine.

      about 4 years ago
    • leepenn's Avatar

      I think this is a two-sided issue. On the one hand, it's WONDERFUL that I don't need to be on drugs like arimidex or tamoxifen... with all their side effects and everything. On the other hand, it SUCKS that I don't have something that's proven to reduce the probability of recurrence.

      For me, I had a complete pathological response with neoadjuvant chemotherapy, so added drug therapy would not drastically reduce my chances of recurrence. In fact, my chances of recurrence are estimated at about 5% because I had that complete pathological response. So... that's quite good. So, at the end of the day, I'm in the grateful camp, actually. Also, chemo tossed me into menopause, and because I had triple negative breast cancer, I was able to start hormone replacement therapy...

      There are some clinical trials going on looking at longer term drug therapy to cut down on the chances of recurrence.

      This XXX is scary - no doubt.
      I am trying to keep my attitude positive... and to keep my mind on LIVING rather than worrying!

      Good luck. I wish you a peaceful afternoon.

      about 4 years ago
    • MarnieC's Avatar

      Hi there DarleneDavis - I read the article that ticklingcancer attached and it's a good one. The author discusses the importance of exercise and nutrition in battling TNBC, but left out one more thing that really helps: the body/mind approach. I used meditation and visualization during my breast cancer treatment (8 yrs ago) and still do it now. I am in great health. I also wrote this article recently on TNBC: http://marnieclark.com/category/triple-negative-breast-cancer/
      If I can help you in any way, Darlene, please let me know. I'm in the process of creating some meditation/visualization MP3s to help others with their healing - you might like to sign up for my newsletters so that you'll be aware when I get them done. Sending hugs!

      about 4 years ago
    • ConnieB's Avatar

      @nancyjac ~ my Oncologist and Surgeon both told me that DarleneDavis is right about triple negative breast cancer and recourse/reoccurance possiblity.

      almost 4 years ago

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