• How do I best support my husband who wants to holistically treat his MCL?

    Asked by HeatherMon on Tuesday, October 22, 2013

    How do I best support my husband who wants to holistically treat his MCL?

    He was diagnosed in May and the biopsy showed it was not aggressive at this time. He has chosen not to get any more tests until he feels it is aggressive. How do you know if it is aggressive?

    4 Answers from the Community

    4 answers
    • Clyde's Avatar
      Clyde

      I understand his desire to avoid harsh treatment, especially in light of his diagnosis, but I can't understand not watching closely. Did he get a second opinion? You obviously can't force him but perhaps bargain with him or appeal to him to do it for your peace of mind. And allow him to gloat every time the test shows no change.........a little gloating will be a very low price to pay if you can get him to watch it closer. Good luck.

      over 7 years ago
    • Schlegel's Avatar
      Schlegel

      I do not know about MCL. I have follicular lymphoma, a slow growing type. At one point I chose to wait over a year for treatment when I knew I had tumors so I could go on a mission trip to Haiti. My doctor was okay with this. After ten months changed my mind because I was getting more fatigued. I have a friend with FL and was diagnosed in 2007, tumors in her thigh, and she has never had treatment. Whether or not he will get treatment depends on where the tumors are and whether he is symptomatic. And, it sounds like, at this time, you should NOT be waiting on him.

      over 7 years ago
    • Ellie59's Avatar
      Ellie59

      I understand your husbands desire to not go through the harsh treatment of chemotherapy. I believe strongly in alternative medicine and it's benefits for many chronic conditions. I have experienced first hand through acupuncture and naturopathic care those benefits .
      Having said that I also know that mantle cell is a aggressive cancer. Would he be willing to consider alternative medicine as complementary instead of exclusive. As far as No one has survived Mantle Cell using exclusively alternative treatments. I am not saying it can not happen just saying I have not heard of it. I am a support volunteer for the leukemia and lymphoma society. I take to many patients and 99 percent go with traditional treatment.

      I asked my own oncologist who is amazing and very alternative medicine friendly. He said in his opinion Mantle Cell is to aggressive to treat with anything but chemotherapy. Not that long ago Mantle cell was considered a terminal diagnosis. I had a stem cell transplant two years ago and am now a two year survivor . Yes the treatment was horrible and debilitating, but I would do it all again. I am still here and that is all that matters.

      I have known two people who tried alternative treatment for Mantle Cell. One lived 15 Months the other 8 months. I strongly encourage your husband to talk to other patients and survivors. To join a blood cancer support group, and contact the leukemia and Lymphoma society for info.
      It is a intensely personal choice how to treat our cancer. I can only speak to my personal experiences.
      You both are in my thoughts.
      Feel free to contact me or have your husband do so if he would like.
      Ellie

      over 7 years ago

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