• How do I cope as a caregiver??

    Asked by Leukemia_WN on Thursday, January 24, 2013

    How do I cope as a caregiver??

    I know AML is treatable, but after 2 rounds of chemotherapy and no remission, my husband is discouraged and wants to give up and enjoy whatever time he has left.

    6 Answers from the Community

    6 answers
    • nancyjac's Avatar

      How does he know there has been no remission?

      almost 4 years ago
    • Queen_Tatiana's Avatar

      First off, I too am a caretaker for my husband with colon cancer. I do wish I could find other caretakers in my area (Seattle) to meet up with in person, but until then I am here on the board. When my husband, Peroll, finished his first round of chemo 8 1/2 years ago, he was very discouraged and very depressed to the point of being suicidal. I am, by profession, a social worker, but I felt completely out of my realm and didn't know what to do for him or with him. To make a longer story short, I learned that chemo messes with the brain and brings on this state of discouragement and depression. The good news is that it can be 'fixed' with simple medication. My husband has been to the 5% line 5 times in the last 8 years and other than the one time he has not felt discouraged or depressed since. The antidepressant he takes does it's job well. I encourage you to speaak to the oncologist about what is going on and ask for meds as the other thing we learned is that oncologists don't know a lot about depression and chemo. I wish you all the best.

      almost 4 years ago
    • ticklingcancer's Avatar

      If AML is treatable....why give up? Life is worth fighting for. Chemo does in fact XXX with your brain a bit and he may be depressed. Might not be a bad idea to have him share these issues with his Doctor. They may decide to put him on some medication while he continues his treatment. Continue to encourage him. That's the best thing you can do as a caregiver.

      almost 4 years ago
    • SueRae1's Avatar

      Your husband is having a normal emotional reaction, and needs to talk to someone about the emotional impact having cancer is having on him. You may also want to speak to someone because being a caregiver is hard, in many respects harder then being a patient.

      Your DH had very optimistic expectations of how long it would take for chemo to work. Perhaps you can sit down with his oncologist and talk about his treatment and possible time frames. S/he can also recommend therapists who specialize in treating cancer patients and/or their caregivers.

      You should try to build a support system for yourself, otherwise you will burn out in no time, as well as you husband.

      almost 4 years ago
    • CancerwithJoy's Avatar

      Hi! I'd like to help you with this. Have you heard of Imerman Angels? I volunteer with them & they're one of many helpful resources I know of. They offer FREE 1:1 Support . . . for Caregivers too! Maybe you could sign up with them & request some support so you could talk to someone? Here's the link to check it out & you'd say Request a Caregiver Mentor. I certainly hope this helps you!! http://www.imermanangels.org/get-cancer-support.php

      almost 4 years ago
    • CancerwithJoy's Avatar

      Oops, sorry, I hit answer too soon! I also wanted to tell you to please check out http://www.caregivers4cancer.com I hope these help you out!!

      almost 4 years ago

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