• how do you cope when your a caregiver and you have no family or friends in area

    Asked by Janine44 on Monday, February 11, 2013

    how do you cope when your a caregiver and you have no family or friends in area

    I moved here 10 years ago and am 5 hours from my only family and being home on SSI I have no friends around here as I don't leave the house for anything other then shoping doctors office and hospitals

    3 Answers from the Community

    • Becky@UMich's Avatar
      Becky@UMich RN, BS, OCN, Cancer AnswerLine Nurse

      Hi Janine44. You may want to consider checking into respite care. Respite care can provide some much needed time off from caregiving – to rest, relax or take care of other responsibilities and still be assured that your loved one is still getting all the attention and care needed. There are a wide variety of respite care services available; designed to give you the time you need- whether it’s just a couple of hours every week, every day, or for an extended amount of time.

      Volunteer respite care is accepting help from others- neighbors, friends, or volunteers from area agencies. The volunteer stays with your loved one while you run errands or go to the store. Many communities have caregiver programs where volunteers are matched with caregivers to provide relief. In home respite care can include companion services, homemaking and personal care assistance.

      Cost of non- volunteer respite care varies with the type of agency and the services needed, but sometimes federal and/or state programs may help to pay. In addition, long term care insurance policies may cover some of the cost of respite care.

      A good place to start is to talk to a social worker at the hospital/clinic/office where your loved one receives care. The social worker likely has experience with local respite care services, and can provide you with guidance on ensuring quality care. Your local American Cancer Society[phone number redacted] or www.cancer.org) may also be able to provide you with names of local respite services/voluntary organizations.

      Taking Care of YOU: Self Care for Family Caregivers from The Family Caregivers Alliance has some great tips and strategies that you may find helpful. To read visit: www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=847

      Hope this information is helpful.
      Becky RN OCN

      over 5 years ago
    • Queen_Tatiana's Avatar

      I too am the caregiver for my husband with colon cancer (Peroll) and until 2 years ago I also had my mother with severe dementia (94 years old) until my care. While my husband is mobile my mother was not and I was literally stuck in the house, with her, 24/7. For my own sanity I brought in respite care for her 3x's a week for 4 hours at a time. It was so nice to be able to get out of the house and mae some friends. I took classes at the local community college and recreation center, joined the gym, took a private yoga classes and began living again. Two years ago it was time to place mom in a care facility where she is doing great and we visit (and take her little dog with to visit her every Sunday.) I want to add that we have no other family in area--I lived here and mom moved up here to live with us when she could no longer live alone.

      over 5 years ago
    • ElizaM's Avatar

      In the middle of my treatment last year I moved to be closer to my son who lives only 8 mins away now, as opposed to 2 1/2 hr drive. I honestly can't say it made any difference to the amount of support I received from him - I think guys just don't handle these situations well, and mine is certainly no "nurse". I too am very lonely and don't leave the house except for essential shopping and all those medical apts. Cabin fever is not pleasant, rather life-denying as opposed to life-affirming. Financially I am ruined thanks to the overwhelming medical costs of treatment so couldn't afford to go anywhere or do much of anything - it's a rather hopeless feeling and I really understand your situation. I never did have a caregiver of any description, but through a local church I was able to get rides to and from treatment with their volunteers. You may want to ask the local charities or churches if they can provide any respite care for you. Fortunately I am well enough now not to require that but socially I feel drained and very lonely. If it wasn't for skype and being able to visit that way with my sister in England, and old friends in my previous neighborhood of almost 30 years I think I might just quit on this battle and check out. I wish you well, as I wish us all.

      over 5 years ago

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