• How do you talk about worsening symptoms?

    Asked by rocketman on Wednesday, February 22, 2012

    How do you talk about worsening symptoms?

    I feel like it is harder to breathe and I tire more easily. My wife has noticed and is concerned that things are getting worse. She said "Don't lie to protect me." We are scheduled for a follow-up CT and oncologist appointment March 20th.

    I am thinking about going to see the oncologist sooner. However, I do not want to worry my wife unnecessarily. So, I am thinking about going to the appointment by myself. Does anyone have advice on what I should do?

    11 Answers from the Community

    11 answers
    • susie81610's Avatar
      susie81610

      HI:
      If things take a change I usually call my oncologist and in to see her either that day or the next don't wait around doesn't do good for the body or the mind. I choose to go to my Dr appts alone unless I know something real important needs to be discussed where I need another brain. This is a family effort but in the end what I do is up to me. I won't lie to my family but I like to know first. Selfish maybe but to me it is still control!
      Have a happy tomorrow. Go to the Drs.
      Susie

      over 7 years ago
    • StephMooneyham's Avatar
      StephMooneyham

      I would definitely get an appointment with your oncologist as soon as possible. That was how they discovered my cancer had came back and metastasized this time. I was supposed to have a regular checkup in mid-January, but I'd started experiencing worsening symptoms before than and just knew something was wrong, so I came in earlier to see what was going on.

      I know it's hard to do this when you have loved ones you want to protect; I'm the exact same way because I know it's putting so much stress on them. But when it comes down to it you have to put yourself first at times like these. You don't want things to get worse than they already are.

      over 7 years ago
    • RobinMartinez's Avatar
      RobinMartinez

      Definitely, I'd move up the appointment and level with your wife. It's always good to have another person at your appointments to help you ask questions, make notes, remember things to tell the doctor and things the doctor says, etc.

      You don't mention whether you are on treatment. Some treatments have a known side effect of pneumonitis that can cause breathing symptoms and tiredness. This particular drug-caused problem cannot be gotten rid of with antibiotics and almost always requires steroids. I don't know whether it applies to you, but many doctors don't know about this potential side effect.

      And as others have said, the problems may not be related to the cancer at all. Good luck!

      over 6 years ago

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