• How has WhatNext helped you on your cancer journey?

    Asked by GregP_WN on Wednesday, May 22, 2013

    How has WhatNext helped you on your cancer journey?

    We’re working on a promotional piece with the American Cancer Society and we would like to know in what ways WhatNext has helped you on your cancer journey

    25 Answers from the Community

    25 answers
    • Clyde's Avatar

      I've gotten far more information about treatment options than I would had I only listened to the Doctors at my center. Its a great resource for ideas that I might have missed otherwise.

      over 7 years ago
    • BuckeyeShelby's Avatar

      First, this site shows me daily that I am not alone. Second, I can ask "stupid" questions that I might not feel my oncologist would take seriously -- like will my cat get sick if she licks me while I'm on chemo... Then, it also helps me boost my self-esteem a bit by paying the help I got forward -- I like being able to make suggestions to others to make their journey a little easier.

      over 7 years ago
    • Rosa's Avatar

      A lot! I can read other people experiences, ask any question I have, learn about treatments, everything from a first view perspective.
      We can look for info online, but first hand experience are much more accurate, real, and even less scary.
      I know that there are many more feeling what I feel and don't feel whiny. I can cry and I can laugh with their comments.
      They are my psychologists and my psychiatrists.
      You all help me stay positive, brave, hopeful.

      over 7 years ago
    • JeanB's Avatar

      There is no better support than someone who has "been there, done that." This site is where I get my head straight and when I see the doctors I know what to ask. Nothing takes away our power like cancer, and nothing gives it back like WhatNext.

      over 7 years ago
    • greensmythe's Avatar

      When I initially diagnosed on November 12, 2012, I was given no support or guidance by the twelve year old oncologist who told me I had Stage IV lung cancer and that I had a year to go- along with several other stupid comments. I was in shock. Luckily, I found this site, and I found Harry ( God bless him) and I was directed by Shoeless to the IU Simon Cancer Care Center in Indianapolis- today I am in remission, and on maintenance- thanks to the intelligence and guidance of this site, and a wonderful oncologist at IU.

      over 7 years ago
    • toverway's Avatar

      It has helped me with my thyroid cancer, the people on here are so sweet and will answer you in a heart beat. when i was first told i had cancer i was scared to death, but with a couple of new friends i met on here got me through all of this...

      over 7 years ago
    • sandikf's Avatar

      I was so pleased when I found this site-wish I had found it sooner. It is so nice to know that others feel the same way I do and I am not imagining things.

      over 7 years ago
    • Tallgrass69's Avatar

      I ask ?'s and alway's get good advise down too earth caring advise not say'ing that the nurses and the dr's dnt care but u can feel the love. I can cry, vent and be myself because what next understands. It just makes all the difference. I like to answer a ? if I can I have had a long fight. Im glad I found WhatNext!!!!!!!!!!

      over 7 years ago
    • AlizaMLS's Avatar

      I've been helped greatly by the Social Workers at CancerCare (as I often advise folks). Their brand of support is unlike conventional "therapy" and is specifically geared toward the cancer patient and her(his) caregiver-in my case, my fiancé. We're both very grateful to them for what they've done and continue to do as I'm awaiting my reconstruction.

      over 7 years ago
    • Ydnar2xer's Avatar

      WOW, what a question! I somehow found WhatNext the week I was diagnosed last August. After spending hundreds of hours on the site since then, I feel like I am among friends every time I log on. I've appreciated the expert advice of Carm, the steadiness and experience of Greg and the humor of Tickling Cancer among a lot of other people who KNOW cancer firsthand. WhatNext has been answering my questions, calming my fears and validating my feelings from the very get go with this cancer. It has been amazingly valuable to me!

      over 7 years ago
    • Gabba's Avatar

      It has lifted me up and made me stronger...after working as a nurse practitioner for over 42 years (yes I was a pioneer in the field), I recently retired and this site has given me an opportunity to continue to offer advice (not medical for legal reasons) as someone who has worked in medicine for many years and "knows the ropes" the best part of this place is that I can pay it forward...so many have been wonderful to me during my journey I want to help others with theirs...even if it is just a virtual hug. WhatNext is a blessing!

      over 7 years ago
    • Netsy's Avatar

      This site gave me hope that I would get through the journey! These are people that can relate to what I am going through! Cancer survivors have unique bonds that transcends understanding. I was able to learn about lidocaine ointment to relieve the pain associated with radiation of my breast and creams that really made a big difference! My radiation oncologist started recommending things I learned from this site!

      over 7 years ago
    • MarianneT's Avatar

      I found WhatNext almost 2 years after my treatment. I wish I had found it earlier on; however I am so happy that I have found it now. I have had a great personal support team but lets face it, they don't get it like all of you do. Plus I fear they are tired of me talking about cancer all the time. They would never say it but I am sure they do. I can't help it...it is always there. My sister recently told me to "stop talking like that" when I spoke about potential recurrence. THIS IS MY REALITY!!! I am sorry I NEED to talk about it. Thank you WhatNext for giving me a safe, caring and understanding environment to let it all out. I am also grateful to maybe be able to reach out and help others, or just listen to them, or rejoice with them...it is good for the soul! This is like a family!

      over 7 years ago
    • EAGLESOAR's Avatar

      It has been a source of information, an outlet to ask questions, lend support to others and hear from other cancer survivors/caretakers who are going through the cancer journey. The site has helped me gain knowlege just reading about other people's questions and the answers given. It is a very useful tool to me.

      over 7 years ago
    • music's Avatar

      It is like Alcoholics Anonymous for cancer!
      All the nice people who are involved in this project have cancer or have a loved one who is or has been there.
      There are a lot of questions that you don't have the time or just don't want to ask your oncologist.
      Experiences from others who have been there for a long time can help you to find solutions and give you ideas. Knowing that you are not alone and that you can help others is very important.
      Some people like FreeBird and Greg P_WN have been very important for our journey, they give us a lot of information on what to expect and a lot of hope!
      Thank you for being there!

      over 7 years ago
    • JennyMiller's Avatar

      WhatNext gave me a place to go where people listened, understood and supported me.
      The "Twilight Zone" of the Cancer World is a very lonely place. Family and friends are hovering just outside in their effort to show their love and support but they just don't understand -- they do not have Cancer --I do!
      WhatNext was my Beacon in the Storm - I was no longer alone. It is not one of those "doom & gloom" scary Cancer Sites - WhatNext is a positive source of hope and strength.
      WhatNext became my "family" in the cancer world.
      I was helped so much!! -- One example was the hint to take Claritin (not Claritin D) to prevent bone pain from the Neulesta Shot. Now, I try to "pass it on" and help others on WhatNext.

      over 7 years ago
    • suvivo69's Avatar

      I have received no help not even from the ACS, I am a 4 years survivor and cannot get my appointment if I do not pay on my bill from Watson Cancer Clinic, am on a fixed income and get no help. The Chemo has damaged my teeth and I cannot afford to get them fixed. ust want a little help with the bill

      over 7 years ago
    • suvivo69's Avatar

      They haven't

      over 7 years ago
    • DaveWaz's Avatar

      Wow! Feeling pretty emotional right now. I was feeling a little down today and I remembered we posted this question. Wow is all I can say. Thank you for giving us the privilege of helping you along your journey. Thank you to the WhatNext team, the American Cancer Society and our partners for helping to make WhatNext great. Please know we take our jobs very seriously and that everything we do is for you.

      Founder, WhatNext

      over 7 years ago
    • LeslieR's Avatar

      WhatNext.... thank you. I AM NOT ALONE!!!!! No matter how much love and support I am given from family and friends, NOTHING takes the place of fellowship with other cancer survivors.

      over 7 years ago
    • TessElizabeth's Avatar

      For me, WhatNext is support, help, connection, and friendship. I don't feel as alone either. My friends try to empathize but they don't understand what I am going through. They don't know how it feels to hear the word, "cancer" and have that word be about you. I love and appreciate my friends but WhatNext has been my place where I can go to and communicate with people who are on or have been on the same road as me. Whilst visiting, a friend told me that her mother was recently diagnosed with cancer and feeling very alone with no one to understand her feelings. I told her all about WhatNext. Her mother will be joining, if she hasn't already. Thank you so much for this WhatNext and for everybody who is part of it.

      over 7 years ago
    • 4ellieluv2's Avatar

      I have been helped a lot by all the great information, the support, knowing that no question is a stupid question...having a community of people who are going through the same thing and understand how difficult it is in all aspects....Most of the people around me who are relatives, or friends just dont get it ! and wonder why I am "so moody" ? how does one deal with that? namely me..it wears me out....sorry I just added some personal stuff I got on a "roll"

      over 7 years ago
    • Bug's Avatar

      I don't know what I can add that has not already been said. Not feeling alone...being able to ask anything...the support...Carm, Greg, Tickling Cancer and so many other wonderful folks, the opportunity to try to help others...so many things. Greg and David, if you're ever having trouble with the site and wonder why you stay involved, or if you’re having a down day for whatever reason and could use a pick-me-up, please know that your efforts are very much appreciated by a lot of people. WhatNext is indeed a blessing.

      over 7 years ago
    • sandikf's Avatar

      I wish I had found WhatNext months ago would have relieved my mind on a number of things. I am glad I found it. Quite a few of others questions have answered my own and let me know I wasn't losing it lol. I also like that some of my answers may have helped others. Thanks Greg for making this for everyone!!!

      over 7 years ago
    • Gabba's Avatar

      This site has allowed me to pay it forward...simple as that...I have connected with great people...there is strength in numbers and we are a force to be reckoned with!

      about 7 years ago

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