• How is everyone doing today? Please check in and let us know how you are.

    Asked by GregP_WN on Monday, October 29, 2018

    How is everyone doing today? Please check in and let us know how you are.

    Sometimes we all get busy and don't check in here. We are all interested in and concerned about everyone's condition and how your treatments, surgery, scans, or recovery is going. So how about a quick update?

    18 Answers from the Community

    18 answers
    • Bellabu's Avatar
      Bellabu

      Thanks for asking, I am in the middle of treatments, about halfway through. It's getting tougher each time and I struggle to get out of bed on those treatment days. But I know I have to do it! I'm looking forward to January 15 when I am supposed to be done!

      8 months ago
    • cllinda's Avatar
      cllinda

      Going to my yearly oncologist appointment today. My doctor retired so I'm meeting the new replacement. Little bit tired of these appointments but it's good to check in once a year.
      Had my mammogram and was told it was clear. So happy for that news!

      8 months ago
    • BoiseB's Avatar
      BoiseB

      My arm is still painful from last week's surgery. I use a walker to get around and I have to put weight on the arm to get around so I might be irratating it.

      8 months ago
    • Sparkplug's Avatar
      Sparkplug

      I’m hanging in there one day at a time. I don’t want to bum anyone out, but I suffer from clinical depression in the winters, so that makes it harder to keep a positive attitude through all of this. But I’m still happy to be here and I’m now halfway through my chemo. I’m blessed with grandchildren and lots of love.

      8 months ago
    • carm's Avatar
      carm

      I hope all members are doing well and I am here should anyone have any issues that an oncology nurse might help with.

      8 months ago
    • cllinda's Avatar
      cllinda

      Was told I will need shots to help my bones. I forgot what he called it but I think it started with the letter P. Every six montgs. I guess it's pretty expensive because they are going to check with my insurance company to see if it's covered.
      Any information about this would be helpful.

      8 months ago
    • carm's Avatar
      carm

      Prolia (denosumab) and they have a coupon and a patient assistance program.

      8 months ago
    • JustForToday's Avatar
      JustForToday

      Visits to oncologist and radiologist to address my newly occurring breast pain have not been helpful. Oncologist said she was not concerned that cancer had returned and radiology technician told me she felt that the radiation after surgery had damaged my breast and it would continue to hurt. She said it was normal. I explained some of my pain was under my arm where there was no swelling (only burning pain). I said the oncologist had written the orders so that if the breast and underarm pain could not be identified by mammogram that an ultrasound should be done, it was ignored by the radiology clinic. They sent me home after telling me my pain was normal, would continue and mammogram was clear. After researching the internet with the exact items I had told the oncologist and radiology technician I found that it could be lymphedema. When I do "manual lymphatic drainage" exercises I found on uTube I get some pain relief. Does anyone know if Medicare will cover palliative care if I call to make an appointment? After being dismissed by the oncologist I am not anxious to try to get her to do a referral.

      8 months ago
    • Julia468's Avatar
      Julia468

      @JustForToday, I have a very swollen, very painful thigh. I have also been told its normal, its lymphedema, its a giant hematoma, its damage from the radiation. I get some burning in my leg, I've been told from pressure on my nerves. I hope you get some relief. I dont see why you couldnt get pallative care. I don't have medicare but a different government/state insurance program. They fully support pallative care.

      8 months ago
    • Julia468's Avatar
      Julia468

      As for myself this week. Its been a bit rough. I'm still positive and glad to be here. It has been so hard to watch my husband struggle with pain and vomiting. Hes lost over 50 lb. Hes finally on tpn, which hasnt helped relieve his discomfort. He is supposed to start chemo, but feels too sick and weak. Our daughter just wants to snuggle him but all that wiggling upsets his stomach.

      As for me, my leg is so swollen and sore, havent found a way to relieve it yet. Im still hopeful for the lymphedema clinic in another week. The clinical trial is going well. I occasionally have vomiting, but the worst side effect has been extreme fatigue. The kind when you fall asleep talking on the phone and wake up saying nonsense. Emotionally, its been a rough week. I'm worried the pain has lowered my patience for dealing with our daughter, plus im so tired. Regardless, I'll br trick-or-treating tomorrow!

      8 months ago
    • ddeangelis' Avatar
      ddeangelis

      I'm starting radiation today and I'm a bit nervous about it. I don't know what to expect or the side effects I will face.

      8 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @ddeangelis, I wonder how you did today with your radiation treatment? i think the worst side effect people have from radiation is fatigue. Some people burn. I did--barely--and it only appeared AFTER all of my 15 treatments and was only there for a day or two. It never hurt or anything. I hope you feel more comfortable with the whole radiation thing now that you've done it once.

      8 months ago
    • Terri's Avatar
      Terri

      Just went to the oncologist today. I had some lab work done and she ordered a brain MRI. Melanoma loves the brain, and getting it there is a fear of mine.

      8 months ago
    • ddeangelis' Avatar
      ddeangelis

      Did well with my first radiation treatment. A little burning sensation on my chest and I came home and slept an hour, so that's about it. Now at least I know what to expect and the staff at the hospital were terrific.

      8 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @Terri, I agree with you. Lung cancer loves to migrate to the brain, too, and it can be worrisome. The good news, at least for lung cancer that metastasizes to the brain, it is usually treatable by radiation (SBRT, I think, usually). Still scary.

      Here's hoping your MRI will be clear!!!

      @ddeangelis, I'm glad that you made it through your first radiation treatment with no ill effects :) They will become "old hat" pretty soon, I imagine. The worst part for me was the long drive I had to take every day to get the treatment. How many treatments must you have?

      8 months ago
    • BarbaraV's Avatar
      BarbaraV

      In the 8 years since I was diagnosed with SLL/CLL, I have had 3 treatments and 3 remissions. I am now nearing the end of my 4th treatment (2 more to go). I'm on a 4-week cycle of Bendamustine + Rituxan. I feel pretty crummy for the first 2 weeks after treatment and then, almost as though someone flipped a switch, I feel better for the remaining 2 weeks. This means I have to cram everything I need or want to do into the 2 good weeks. My oncologist told me early on that each remission is usually shorter than the previous one so I am getting to the point where it won't make sense to treat again, especially since the treatment makes me feel worse than the disease. I am ok with that. I'm already older (77) than either of my parents got to be and I've had a good life. We all have to die of something and SLL/CLL seems like it might be an easier way to go than most other types of cancer (I've also had breast, colon and skin cancer). I didn't mean for this to be a "downer". When I tell friends about my attitude, most agree with me. Some don't but say they admire how strong I am. What choice do I have? We do what we have to do.

      7 months ago
    • Terri's Avatar
      Terri

      Update: My brain is okay! It’s nice I still have one!

      7 months ago
    • Diane17's Avatar
      Diane17

      I have all my treatments done. Just finished radiation. My biggest thing is my ups and down of depression. Before cancer I was a happy person with a positive attitude. Now I'm not sure what I am. It's frustrating and confusing.

      7 months ago

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